Books, Links, and More

We've compiled resources in both French and English, to give you the broadest possible range of available information. To see resources in French, click in the top right corner of the page.

If you have a favourite palliative care resource that doesn't appear here, suggest a resource below.

Diseases
ALS
A Caregiver’s Handbook for Advanced-Stage Huntington Disease The purpose of this handbook is to help caregivers know what to expect as the illness progresses and tips for providing care.
Huntington Society of Canada National information website with helpful resources for patients, families, and health care providers.
Huntington's Disease Youth Organization Website by Huntington's Disease Society of America contains resources for children, teens, young adults, and professionals.
Understanding Huntington Disease: A Resource for Families This guide covers a wide range of topics for family/friends. Available in English and French as a downloadable file, free...
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