Discussion Forums



2nd opinion in another province 
Started by Jeffboomer
16 Mar 2015, 6:45 PM

My wife is just diagnosed with cholangiocarcinoma, stage 4, inoperable. We live in Saskatchewan. Is it possible to get a 2nd opinion in another province, or is it easier and quicker to just go to the U.S., like the Mayo clinic?
Report this post      
 
Reply by KathCull_admin
16 Mar 2015, 7:30 PM

Hi Jeffboomer
Welcome to the discussion forum - I am glad you found us.  Members in this community offer caring support and understanding - regardless of distance.  

I think your question would be best answered by our Ask A Professional service. Our team of experts has access to information that will help you and your wife make a decision.

Have you been able to talk with your healthcare team about your questions? Has your wife been feeling unwell for some time?

Take care
Katherine
Report this post      
 
Reply by Jeffboomer
16 Mar 2015, 7:53 PM

Thank you. I will Try the other site. The one person did not know and suggested your website but I can ask other staff.
 
Report this post      
 
Reply by KathCull_admin
16 Mar 2015, 9:25 PM

You're welcome Jeff. I'm sure you'll hear from our Ask a Professional team soon. In the meantime, I'm sure other members on this forum will share their experiences with you too. This is a time of many questions - not all of them medical in nature. We're here and listening.
Katherine 
Report this post      
 
Reply by KathCull_admin
21 Mar 2015, 3:09 AM

Hi Jeff
Just wondered if you were able to get the information you needed?
Katherine 
Report this post      
 
Reply by NatR
22 Mar 2015, 4:15 PM

Hello Jeff,

I am so glad you found the forum.  I hear your question, I know your concern to find an answer, to reach out for the very best support and care for your wife.  It is what we all want to do - get the best care.  

I dont have the answer, I am wondering if your own doctor can direct you to second opinion?
I know that many do try to find answers and best care from other parts of Canada, and from the US.  I hope that you find what you need.

In the meantime this forum is here for you, we all are caregivers, family members, and loved ones just like you - and we listen best.

Update when you can, and knoiw that you can let your hair down here, you can be anonymous here.  It helps to share feelings and know others have some understanding of the same journey.
Best wishes,
NatR 
Report this post      
 
Reply by JennJilks
26 Mar 2015, 8:46 PM

Jeff, 
I am curious about your question.
Do you mean to question the diagnosis, or the fact that they say it is inoperable? 
Bile duct cancer is something I'd never heard of.

If you are questionning the diagnosis, it seems a rare disease, 2 out of 100,000 people have it, usually diagnosed long after symptoms appear.

I did one quick search of Google, and they way that by the time it is diagnoses it is too late to treat it.

I did a bit of research. 
All the best to the both of you.


Two sources: the first [gov. means it is government]  is a good one: 

Cancerous tumors of the bile ducts are usually slow-growing and do not spread (metastasize) quickly. However, many of these tumors are already quite advanced by the time they are found.


and wiki


Cholangiocarcinoma is considered to be an incurable and rapidly lethal malignancy unless both the primary tumor and any metastases can be fully resected (removed surgically). No potentially curative treatment yet exists except surgery, but most patients have advanced stage disease at presentation and are inoperable at the time of diagnosis. 
Report this post