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Reply by Digger
23 Mar 2013, 3:56 PM

I clicked on the links to your blog Jenn - much useful information arising from your experience as a care giver. Thanks.

I found the distinction between grief, mourning and bereavment helpful - a map to chart the journey back to life.

I am observing that the grief journey is affected by what happens in the dying process, especially the 'where' part. Dying at home seems to be a large factor in helping those left behind to come to terms with loss and this was true in my case.

In BC, about 18% of natural deaths are at home. When you ask people where they want to die about 4 out 5 say they want to be at home. Yet the numbers show the reverse is true.

It seems to me, what we can do for those we leave behind is to die a 'good death'. Perhaps it is time to have a conversation about dying responsibly. I am seeing that those who take the time to explore the inner world and examine their life journey (art therapy, life review, journaling help) generally experience a death filled with grace, dignity and ease - so much better for the living.

Dale
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Reply by JennJilks
23 Mar 2013, 6:44 PM

I very much agree, Dale. Have you seen the NFB film Griefwalker? This post talks about it:

Not success. Not growth. Not happiness. The cradle of your love of life... is death.


While many want to die at home, it isn't fair to loved ones in many situations.
Have you done a Life Review? I find it helpful with clients.

 
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Reply by JennJilks
23 Mar 2013, 6:45 PM

"You must listen!"
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Reply by eKIM
23 Mar 2013, 7:09 PM

Hi Dale, Shelly, JennJilks, others

I am learning so much from this discussion!  I have been a resident support volunteer for 3 years, but I have always felt that at a minimum it’s a 10 year apprenticeship.  I do appreciate your guidance so much.  I wish I could have had this resource when I first began.  I wonder how many others there are out there like me.

Dale, you suggested that we might consider a separate “discussion thread”.  I whole-heartedly agree.  I am a sponge for information, in my life-long quest to become the best that I can be in palliative care volunteer work. 

I wonder if Colleen would have some ideas on setting this up and maintaining it?

Thanks so much again.

- eKim

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23 Mar 2013, 7:30 PM

Hi everyone,

eKim and Dale, anyone can start a new thread as both of you have done in the past. Please feel free to do so. It is best to use a subject that is very clear. I look forward to seeing more discussions of this nature.

Jenn, I corrected your earlier post, changing "list" to "listen".

Thanks everyone for your great comments.
Colleen 
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Reply by eKIM
23 Mar 2013, 11:07 PM

Would someone else start a new thread on this please.  I just want to sit way in the back on this one and raise my hand once in awhile.  I am the student here.  Jenn, Dale, you both have so much to share, here.  You have no idea how many people that you will help.  Thanks,  eKim

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Reply by mzmojo
24 Mar 2013, 12:49 AM

I have been dealing with my loss of my mom basically on my own or with the help of counsellors/psychologist.  My "so called" friends that have said "call if you need anything" are not there.  They do not answer the phone, they instead will send me an email.  I have one friend that has not called me since i saw her at my mom's funeral on december 27th.  i was friends with her for over 20 years.  I am no longer considering her that good of a friend.  people say they want to help, to call no matter the time, am i ok??? really???  these friends know how close my mother and i were and yet, my phone barely rings.  i have gone for breakfast and dinner only once since my mom's passing.  i called one friend in january before she was leaving on a vacation.  asked her to call me when she returned...still waiting.  i always give people so many chances but i think this time its different.  i lost the most important person other than my daughter and my dad and they are all steering clear of me.  God forbid i should still be feeling any sense of loss, heartache and emptiness!

I only want to be hugged.  It doesn't have to be a constant but just a hug would be nice.  getting asked out for lunch or chatting on the phone would help too.  not sitting here thinking all the time about my loss.  sure, i will talk about my mom for a while and i'm positive i will even cry, but then we will talk about other things in life.  i think that true friends and family shouldn't scatter; i think that if they truly care about me, they would be here regardless of how it makes them feel awkward inside.  i would have done it for them.  i guess i was just raised differently...
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Reply by eKIM
25 Mar 2013, 3:25 AM

mzmojo

I read your post and it touched my heart.  I wish I could say something profound, but I cannot.  I do not know what to say.  I cannot help you.  Perhaps someone else who has experienced something similar can give you some guidance.  I can perhaps share with you some “life experience” of my own.

I have spent a lifetime trying to figure out why people do what they do or why they don’t do what I wish they would do.  The natural outcome of this train of thought is sadness.

We perceive their actions (or lack of actions) to be directed towards us, in order to hurt us.  Nothing can be further from the truth.  While we fret and fuss, they are blithely continuing on with their lives, barely giving us a thought, never mind thinking about our distress.

Being a very simple person, I went looking for a simple answer.  Very simplistically, I coined the following phrase, “Most people, most of the time, are mostly going to do what they mostly see to be in their immediate self interest.”  I know this is an over-simplification, but it sure seems to answer a lot of unanswerable questions for me about human behaviour. 

Also remember that we can wish that people would love us more, but the truth is that someone can only love you as much as they are capable of.  This has nothing whatsoever to do with your worthiness – you are worthy.  It is entirely to do with their personal limitations.

Like I said in the beginning, I cannot help you.  But please remember, you were created in perfection, precious and loved.  Your Mom is looking down on you, is there by your side in spirit.  Look to her for the validation that you are beloved.  The opinions and lack of concern by others are nothing in comparison to this sacred truth.  

I have a feeling that your problem will be your solution.  The extraordinary love that you and your Mom shared will be the unstoppable force that will help you heal.  Trust in the process.  I hate to spoil the ending, but everything will turn out all right.

-eKim

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Reply by marstin
25 Mar 2013, 5:59 AM

Hi mzmojo,

What I have learned in this journey is that many people tend to not know what to say, are afraid of doing the wrong thing, are  just not capable of dealing with serious issues like yours or just not as trustworthy as we thought they were. It's a very difficult thing to deal with when you are already in so much pain. I have learned the hard way the same as you and what I can tell you is that you may find a very few gems among all of those people who will be there no matter what. Most of mine live at a distance and were childhood friends but they came forward when I just couldn't take anymore. It is so difficult to understand why people do what they do and I know how badly it hurts. I also had a friend who came and took me out for a day when my husband and mom passed away but has barely called since. I have gone through all of the emotions known to mankind due to this kind of behavior and have now learned to accept it and let it go because to do otherwise would only cause me more harm. Of course you want to talk about your Mom. My Mom was my best friend too and although it's been 6 months since I lost her, not a day goes by that I don't want to pick up the phone and call her or take her out for our daily running around.  It is a very difficult loss.

This forum has given me such good friends, ones that are always there with kind words, encouragement and virtual hugs when there is no one else there. Please know that there is always someone here for you.

Hugs,
Tracie
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Reply by Digger
25 Mar 2013, 2:23 PM

Hello All,
I am going to start another discussion thread called Bearing Witness / Holding Space. 
I am also going to ask that comments not be long essays - this helps flow the dialogue and the insights.

Dale 


 
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