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Reply by Tian
29 May 2013, 4:36 AM

Dear NatR

My sincere condolences to you on the passing of your mother. Things are bad enough without you placing unfounded blame on yourself. As you yourself said it is almost impossible to visit from three provinces away and among her children you were the one who cared the most for her. Your brother's actions at the end need not be of any concern. Thankfully your mother's suffering is over. And I am thankful to her for raising a daughter  who has been a great support to many people both on and off this website.

Tian 
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Reply by JennJilks
29 May 2013, 1:21 PM

You know Natrice, you make the best decisions you can at the time.
I think caring for family members is the hardest. My volunteer work is never as hard as caring for my mother was. You are always afraid of not doing enough, or making the wrong decisions.
 There are many bereavement groups, available through local hospice and community home support offices. They will help you deal with the guilt, and we ALWAYS have guilt, no matter what!
I feel guilt that I left my family, hubby, son, daughter, behind to care for my late mother and father. (I should hvae taken leave from work, as mom died 6 weeks after I moved to care for her).
Just the opposite of your situation!
You have been incredible caring for your loved ones. No question that this helped your family. 
Live in the present. Forgive yourself. You made a decision. Full stop.
Ontario offers 211 services, where you can find grief support, either individually, or through support groups, or art therapy is wonderful!
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Reply by KCBJ
02 Jun 2013, 12:12 AM

My sincerest condolences to you and your family. I'm so very very sorry Nat. I truly wish I could give you comfort and help as you have done for me and many others. But at these times, in reality, there is nothing that can be said.

You have, yes have, a mother that you love and cherish. The distance nor her passing doesn't diminish that, but makes it stronger. Your mother would not have wanted you to feel any sort of guilt. Please take comfort that she will always be in your heart.

Everyone above has said everything else that I would have said. Take care and know, as you've always told me, that you are not alone.

Barb
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Reply by NatR
02 Jun 2013, 12:29 AM

Thank you Barb, thank you every one,

i have been home for a couple of days, fortunate to have good friends to cry on their shoulders -  

i feel a numbness now, and tear up easily and ununexpectedly I am grateful to each of you for thinking of me.

its true - when you have friends to share things with it helps.

at this moment I feel so much relief that mom is at peace, so much sadness as I look through old photos of long ago times.

i do know that I inherited a passion to fight for others, a caeprehiver instinct that led me to caregiving career - and for that I am eternally grate full.

i also sat beside a young woman on the flight from Grande Prairie Alberta to Edmonton, on my way back to Ontario 
this lady had lost her husband last fall and was left with four young children - she was still tearing up talking to me about her husband
I was grateful she spoke to me about her story 

i told her about Virtual Hospice and how much support is out there on the Internet.

i hope she will reach out as well 

you are all survivors and daily live with the trials and triumphs of life.
so very honoured to be able to converse with each of you

thank you all so much.
sincerely
NatR 
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Reply by NatR
02 Jun 2013, 12:35 AM

Dear Jenn,

i don't think I thanked you

you have lived your share of caregiving and grieving
your words to me are valued and appreciated  
thank you very much
sincerely, 
natR 
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Reply by winter
02 Jun 2013, 1:34 AM

HI NAT

GLAD TO SEE YOU ARE BACK, AND ALL WENT WELL.
I AM SORRY IT SEEMED LIKE I NEED ADVICE OR HELP, IN ACTUALLY FACT IT SOUNDED LIKE I WAS INDISTRESS, BUT IN ACTUALLY FACT I AM DOING EXTREMELY WELL...

ALL I WAS TRYING TO SAY THAT I, TALKED WITH FAMILY THAT HAD ISSUES WITH MY DECISIONS IN PLACING MY MOTHER IN PALLITIVE CARE, AND THEY WERE THE ONES WITH ISSUES WITH THE PALLITIVE CARE, BUT I HAD A GOOD RELATIONSHIP WITH THEM IN THE END....

I WAS JUST TRYING TO SAY TO YOU, THAT IF ISSUES ARE THERE THEY CAN EXPRESSED...OR IF YOU CAN LIFE WITH YOUR FEELING IN THE END....YOU KNOW..

i AM SORRY THAT EVERYONE TOOK WHAT I WAS SAYING THE WRONG WAY...

I MISS MY MOM, AND I KNOW LIVE GOES ON...AND THAT THEY WOULD WANT US TO GO ON WITH OUR LIVES...

I AM SORRY NAT THAT I DIDN'T EXPRESS, MYSELF CORRECTLY, I WISH I COULD TAKE BACK WHAT I WROTE...

NAT YOUR ARE A TRUELY NICE WOMAN...

IN THIS WORLD OUR ANGELS WHO ARE BY OUR SIDES GUIDE US IN THE RIGHT DIRECTION AND ATTEMPT TO ASSIST US IN THERE BEST OF THERE ABILITIES, IT IS WITH OUR STRENGTH TO OPEN OUR HEARTS AND MINDS TO NEW EXPERIENCES...

TAKE CARE ALL AND PRAYING FOR ALL.... 
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Reply by marstin
05 Jun 2013, 4:29 AM

Hi Winter,

I just wanted to let you know that I don't think your words offended anyone. You speak from the heart and that is all that matters. Having lost my mom also 9 months ago and having to deal with family garbage, I understand what you are saying.

Take care,
Tracie
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Reply by NatR
05 Jun 2013, 1:26 PM

Dear winter, no worries,

you are not offending anyone, as Marstin said;)

we all are different in the way we express ourselves and work through pain and loss

i do hope that everyone is having a good day, spring is finally arriving, and I am dealing with my loss and feelings day to day.

little things set me off, remind me of my mom.  But I am relieved that she is at peace, and everything else I need to let go of.  

Just the other day I walked past a display of soft slippers and first thought was - get a pair to send to my mom, and the tears came and I was overcome  with her kilos again.

even as I write this the tears come, wishing I had had one more chance to hug her, to see her face.

we are all going through life and supporting each other -  thank you all 
best wishes to all
NatR 
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Reply by eKIM
05 Jun 2013, 5:07 PM

Hi NatR


 


Sorry for being slow responding.  My excuse?  Life kinda messes one’s schedule and priorities up at times.  “Life is what happens to you while you are busy making other plans.”


 I am sorry to hear about the passing of your Mom.


 Yes it is your turn to ask Virtual Hospice for help – we will all get our “turn”


 The good news, just like you are there for others, we are here for you, NatR.


 Many times I refrain from posting back to people because I feel that I have nothing constructive to say, because I have not walked their path, and therefore cannot relate to their pain.


 This time, I can.  NatR, in telling your story, you have allowed me to see similarities to my story.  I struggled mightily with my Mom’s death years ago.  So let me share with you.


My wife and I were living three provinces away, at the time, running a business.  Being away from the business was very difficult.  My Mom was living in Ontario.  My sister lived in the same town and was constantly at Mom’s side, near the end.


 I had tremendous guilt because I couldn’t be with her, especially in her final days. 


 Mom (doing what Moms do), totally understood, and always said things to lessen my guilt feelings.  After all, Moms have spent a lifetime putting their childrens’ lives first, before their own needs, feelings, desires etc. 


 Moms do this because they want to, not because they have to.  The happiness of their children is their number one priority.  They’d have it no other way.  Our Moms would not want us to feel guilty and unhappy.  That would work towards the very opposite of their goal – to raise happy children.


 My Mom also struggled all her life, in not one, but two dysfunctional relationships.  Putting her children first, I think, gave her a focus for the meaning of her life.  At least that is how she made her children feel.


 My Mom too was in a “facility” for her last years.  I have no guilt, however, because it is there that she received the care that none of her children could provide.  Sometimes, despite our best intentions, we must let go and let others take over.  We simply are not able to take care of them ourselves.


 NatR, how many times have we, here at VH, told others to let go of the guilt?  Guilt most often is either unwarranted, or at least, exaggerated to the point where we are unhappy.  Unhappiness is the exact opposite of what our Moms want for us. 


 When I went through my “guilt trip”, I wallowed for some time until I had the “inspiration” to realize that the best way that I could honour my Mom’s memory was to fulfill her number one goal – to be her happy “child”.  When I finally “turned that corner”, my outlook and my life improved dramatically.


 You simply have to “bloom where you are planted.  Geographically, you couldn’t be with your Mom.  You did the next best thing in caring for your disabled family member, NatR.  The fact that you sacrificed so much to care for a disabled family member, must fill your Mom’s heart with such love and pride. I use the present tense on purpose, for I can always feel my Mom’s presence, looking down and comforting me. 


 And, NatR, I have a dysfunctional, estranged sibling in my life too.  The only thing that I can do to assuage my guilt over this situation is to know that I am putting my own little family, here, first by protecting them from all that negative energy.


 In my hospice volunteer work I see the “dysfunctional family syndrome” all the time.  I reach out to the dying, non-judgmentally, offering them comfort and presence.  I suppose that it is my way of “paying it backwards” – or whatever – for my own contribution to the dysfunctionality of my larger family, and also mot having been there for my Mom in her final days.


 As far as letting go of the anger; remember the entire purpose of doing so.  Letting go of the anger is a procedure in self-care.  It has everything to do with you and really, nothing to do with them.  As you “stew” in your anger, they are chomping down on their “Big Mac”, blithely unaware of your existence, never mind your pain.  Picture that metaphor the next time you feel anger, or pass a McDonalds, or both.  Let it put a smile on your face, and thereby release the pain from your heart.  If we pause and think about it, then it is so evident: life is just too short for all that “stuff”. 


Yes, your Mom’s struggle is over.  The same with my Mom.  Picture your Mom in a better place – a place of infinite Love, Joy and Peace.  See your Mom, looking down, smiling gently and simply wishing Love, Joy and Peace fill your life, NatR.


 Ps  I would like to offer you thanks, NatR.  You have “made my day by putting a smile into my heart.  I have been dealing with some “stuff” lately.  I became introspective and self-absorbed wallowing in “negative emotions”.  My spirit is elevated and my heart is lightened in reaching out to you. 


 I have had one of my core beliefs reinforced.  I try to be “Outward Reaching” as opposed to “Inward Seeking.  “Whenever you are feeling ‘down’, go do something nice for someone – then think about it a lot, simply, to put a smile on your face.  When the effect wears off, then it is surely a sign to go do something nice for someone all over again.


 Hey, little Virtual Hospice Virtual Sister.  I send to you my thoughts and my prayers.


 - eKim

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Reply by NatR
05 Jun 2013, 11:52 PM

Dear ekim

thank you for your long and uplifting note from the bottom of my heart.

you have given me perfect advise  
thank you for sharing your story - it does help very much

sincerely,
natR 
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