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Reply by KathCull_admin
09 Mar 2014, 8:39 PM

Hi Sue
Got outside this afternoon and saw people I hadn't seen since last year - it is acutally +3 I think. Have you been able to get out? 

How has the journey been this week?
Take care
Katherine 
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Reply by Sue B
10 Mar 2014, 5:57 PM

Well, my week has been interesting. I've been nursing my husband through a bought of stomach flu. At this point you have to understand that he usually never catches anything - EVER! This winter he began in late January by getting seasonal flu which developed in to pnumonia, which developed in to double pnumonia and went bilateral (this was while I was in the hospital) and only got over that about a two weeks ago. Then he got the stomach flu and was really ill for four days. In his sleep he mumbles that God hates him. So it's been interesting.
On the other hand, just prior to him getting sick my sister came to stay for a couple of days. It was so nice to see her and spend some good chatting time. We'd sit in the kitchen and talk about this and that. She pointed out thatven if we had a house with twenty living rooms, each alrger and nicer than the last, we would still talk in the kitchen. She's right too.
I've been trying to come to terms with the respiratory arrest and recovery. And of course with the various thigns I learned from that, and am still learning. So much of it is really hard to put in to words. I can't tell youhow often I've sat down here and tried to put some of it down; every time it's ended with me cancelling and signing out. I still can't, so I suppose some things will have to go unremarked.
My RT is quite pleased with how I'm doing. (She comes on Fridays.) I was quite surprised, as I though I was kind of behind. But it would seem not. She's given me some very gentle exercises and a super short walking time, three times weekly. This on top of the daily pursed lip breathing exercises (I'm so bad for forgetting to practice that one.) So...yay me?
Today began bright and early with me out to the lab for a plethora of tests. It really was not too bad at all. 6°C and only the smallest bit of a mist. I tell you, I couldn't get home to eat and get a drink fast enough though, LOL! It was SO nice to get outside. I look forward to the warmer, drier weather.
Love, light and blessings
Sue
 
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Reply by KathCull_admin
14 Mar 2014, 2:49 PM

Yay for you indeed Sue! Sometimes it is hard to be objective about ourselves - so it's good to have that outside observation.

I hear you about having trouble putting down words. As I am responding to your post I am struggling to find the words - the more I try the more my brain shuts down (and then the computer shut down too!). So my plan is to ruminate (nice word eh?) and sit down and write this evening when hopefully my mind and keyboard are in sync. Stay tuned.......
Katherine 
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Reply by Sue B
16 Mar 2014, 7:39 PM

Definitely a three star word! 
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Reply by KathCull_admin
16 Mar 2014, 8:32 PM

I like words, quotes and phrases. Am trying to increase my brain power by doing crosswords but I am not always patient enough to complete them!

Sue, I have been thinking about my earlier brain freeze. I have cared for people who have had a respiratory arrest and who are recovering from illness, but I have never had that experience and I wonder if my inability to comment is because I feel any words I use are inadequate for something that is/was so life changing for someone else.  Anyway I continue to ruminate on it and understand if/when you  need to cancel and sign out without comment. I am always interested though in what you discover as you think.....

I am really glad that your exercises helping and your breathing is improving. Sometimes its the seemingly small things that make a big difference - 


How has your husband been Sue - if he is not used to being sick (I am not either) I imagine it is not an easy role for him to be in.

Glad your sister's visit came first - I agree kitchens seem to be the place for conversation - the chairs and table - with room for coffee or tea and elbows to rest.

Take care
Katherine 



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Reply by Sue B
17 Mar 2014, 6:01 PM

Hi Katherine,
I think the only way you could kind of "get" how a respiratory arrest feels would be to hold your breath for way longer than you usually would, until you basically suck in air involuntarily. I wouldn't actually recommend that, but it would give you a sense of what it's like. I arrested due to gas trapping due to the COPD. You know how people say they wouldn't mind drowning because it's supposed to be peaceful and stuff? Well it's a lie. Man oh man, respiratory arrest is f*&%ing terrifying! There is not one peaceful thing about it! You don't just go calm and pass out, you claw and gasp and it is all 'round horrible!

That said, Steve is pretty much fine now. And no, he didn't take it well at all. Imagine a 4 year old in a snit. I know that's a rotten thing to say,but it is completely acurate. Thank gods it's over.

Re: the kitchen... Sometimes I think I'd be happiest in a place that had a HUGE kitchen, a bedroom or two and a bathroom. I usually spend so much time in the kitchen and so little in the living room, what's the point of having one? He-he-he.

The part I'm having trouble with now that I'm home is how little I can do. I can't bend, nor stretch too high, and this really does limit everything. Have you ever tried to just make a meal without bending to, say, get a pan? And there is limited counter (i.e. easy reach) space. I can't pile everything I use on the counter and first shelf; there just isn't room. And there is ahuge list of chores I'm supposed to avoid; dusting, vacuumming, etc. It's advised that I get some one else to do them. I have no idea who. It's not as if I can afford to hire a maid (yes this was a rant).

Well, I hope you have a fun St. Patty's Day. Take good care of yourself.

Sue 
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Reply by KathCull_admin
26 Mar 2014, 1:27 AM

Hi Sue

Breathing, in and out, in and out – I take it for granted.  It just happens right? But your description reminds me what happens when it doesn’t just happen. I have a postcard in my office from the Manitoba Lung Association Easy Breathers.  It is the picture of a woman, smiling into the camera, with nasal prongs, holding a bouquet of tulips, living with COPD. I had the opportunity to meet her and I know she can’t always smile – the prongs tell a story.


I am not familiar with the home care program in BC and in Chilliwack specifically. When they advise you ‘not to do’ – do you they give you any ideas ‘how to’ ?   Rant away Sue – it sounds as though your hands are tied – in more ways than one!


Having looked at your blog – I see that you are an active woman with lots of interests – it must get frustrating to be so limited. I remember meeting a woman, who because of health issues, could not work. She told me when she hears others complaining about going to work, she tells them she would love to be able to work and cannot. I imagine you might love to get at vacuuming, cooking and cleaning - or not:).


Hope you and Steve sleep well tonight Sue - take care.  Good night.


Katherine

 

 

 

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Reply by Glasslady001
26 Mar 2014, 1:01 PM

Hi Sue and Katherine,
I have not been on this site for awhile now, but took a few minutes to catch up on the last few posts.
Sue, your words rang so true about the drowning.
I have had asthma my entire life and was diagnosed with COPD a couple of years ago. I have been in respiratory arrest more times that I can count and it is absolutely terrifying.   I remember literally begging for a tracheotomy more than once.

I am a counsellor by profession, so talking is a large part of my job (listening more so).. when I have an exacerbation and can't talk (or listen for that matter), it just hits home how fragile we really are. I am lucky in the sense that my COPD is not too advanced yet, but I know what is coming... I would not wish it on my worst enemy..
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Reply by Sue B
26 Mar 2014, 5:18 PM

Hi Glasslady,
SO true! I have had the sorrow to know some pretty horrific people in my life, and I can't think of one that I would wish this on. Trust me when I say that that is really, REALLY saying something!
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Reply by moderator | modératrice
31 Mar 2014, 5:43 PM

Hi Sue B,

Passirose has started a new thread Un peu peur...A little afraid.... While she posted in French (her first language), she is also fluent in English. Would you consider using Google translate to understand her message and respond to her in English (unless you also speak French). I think you may be able to relate well to her situation.

Click here to find her message

Thanks
Colleen
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