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01 Jan 2012, 10:01 PM

Yes, Plum1, I was wondering exactly the same thing. How did the holiday go Nanlovesu? 

Did you read VHcath's post in Come introduce yourself? She speaks beautifully of healing and grief and how it is not just a solitary moment in time.

 Talk to you both again soon. 

 Colleen

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Reply by Cath1
07 Jan 2012, 9:29 PM

Dear Nanalovesu


I have read your posts and feel so much for what you are going through. I know that while words from strangers may seem to some not to have much weight when it comes to offering comfort, for me it is sometimes those very kind words from people who don’t know me intimately, or at all, that arrive to heal my heart at the precise moment when I most need to hear them. Especially appreciated is the opportunity to indulge in any conversation about my late mother, even if it is only for a passing moment between people unfamiliar. If loved ones and friends shun the conversation and our need to keep speaking about the person we have loved and lost, we must find someone to listen, even if it is a professional, as a way to keep the person a part of our daily thoughts and conversations because they are worth it and we cannot all let go in the instant of death the lifelong presence of a loved one.


I speak often about my late mother and I do notice that at times some people feel uncomfortable. I suspect they worry that I may be dwelling too long on her death yet that kind of concern is unwarranted because in my mind I am not negatively focusing on her life or her death, I simply have a need to embrace her essence as a current part of my life, if only in words and feelings. I speak about my Mom and relive memories with my children, her grandchildren and great-grandchildren, and I know these memories will impact upon the experience of us all as a family as time goes on and as their memories and mine fade, especially those of the younger ones.


My Mom used to talk a lot to me about her grandmother, her mother’s Mom, and the way she described her, a woman I had never met in life since she had died by the time I was born, brought her to life vividly in my imagination. I could sense in the twinkle of my Mom’s eyes and the smile on her face the palpable and deep love and respect my mother had for her grandmother, and while I never knew her, I always felt that I did. Little things, like her sense of humour, and way of expressing herself, as told to me by my Mom in legendary stories of a time long ago, made my great-grandmother a real and living person in my heart and much more than a time-worn, two-dimensional black and white photograph could ever convey. I felt a connection with my Mom’s grandmother, my great-grandmother, all of my life and I still do. My great-grandmother is revered by me for having loved my Mom so well and for having made her feel special in her childhood. It is important to memorialize those we love when they part this world as they are a link to our roots and our life’s experience.


For some the holiday season exaggerates the feelings of loss of a loved one and our sorrow intensifies, but at least the holidays keep us all busy and, thinking practically, there is less time to succumb to our own personal states of mourning and much more natural support from loved ones whom expect the holidays to be difficult for us. I find that the “let-down” period after all the glittering lights are no longer gracing the Christmas tree and when the family gatherings with food and merriment and bustling activity have passed, the quiet returns and may feel rather disconcerting.

Being alone with my feelings to reflect is innately comfortable for me as I have always been a person to put pen to paper to express myself for relief when I am feeling sad, but I realize not everyone finds the same value in the written word. The thought of publically revealing the emotional turmoil that for me is felt churning within takes courage but somehow it is also accompanied by the hope that by sharing these intimate feelings with virtual strangers we will discover a newfound strength to calm the waves of grief – even if only while writing – through the desire to help someone else recognize their own experience in ours, and that thought is soothing to me.

Nanlovesu, I hope you will let go of the regret of not shedding tears at your husband’s funeral as you were kindly trying to accommodate and comfort others by not permitting yourself to cry. It was a terribly big burden to add to your already devastated heart at a time when your shoulders could bear no more. I have found that some people do want to see us “buck up” or “be strong” and this advice is often because they too are falling apart and are afraid that your expressed emotion will cause you or them to lose control. You obviously are grieving deeply and understandably the immense loss of your mate, and you need never apologize to anyone for how you are feeling.

I am the worst when it comes to apologizing to others when I need anything, even just to cry, which is a legitimate need when we are mourning. I have learned to accept that my children who naturally feel protective of me, as I had felt about my Mom, don’t wish to see me suffer, but they have been wonderfully understanding about my need to express my feelings of denial, anger, sadness, despair and acceptance – all of these emotions are still evolving and changing within me – as I assured them that while sometimes I may seem to be completely heartbroken, I will explode literally if I cannot share these deepest and most private feelings with my nearest and dearest. I think that talking about how I am strong – stronger – because I can express these difficult emotions and how I know I will be okay with time and with support, how I needed them to trust me and my ability to cope with the emotional calamity to survive and to be happy again, helped us all navigate this foreign terrain of grief.

On my late Mom’s birthday in September, I realize now I had been holding in all kinds of feelings. My eldest daughter and I went to my Mom’s gravesite and I wept uncontrollably for a very long time. The intensity of my heartache surprised me at the time but it felt good to experience such a strong release of emotion and it felt especially good to have my daughter’s arms around me as I wailed without reserve. I have not cried like that since and I don’t feel the need, but I will again without any fear should the need arise. I hope you will have a conversation with your kids to explain to them that while it can seem scary to see one’s mother grieving and crying for the loss of her husband, their Dad, it will be better in the long run for you all if you share some of these heartbreaking feelings together knowing you are all strong and you will all survive this experience of loss.

We cannot protect our loved ones from feeling the pain of sorrow and nor can they protect us, but to heal we should try to reach out and trust that they will be there for us as we will be for them in the reality of the overwhelming depth of emotions all are likely to feel. Your instincts are right Nanalovesu, tears are nothing to fear but it is a lonely and depressing experience to feel that we must keep our sorrow hidden away privately while we cry secretly. I know I tried to do what you do so my children would not realize the extent of my grief, but once I risked trusting myself and them and our relationship to expose the truth of the depth of my feelings, and to help them with theirs, I was impressed with how much we all grew together in mutual understanding and support and indeed acceptance.

Nanalovesu, if ever you need to cry openly, please find someone whom you trust and feel you don’t need to spare, someone who won’t feel threatened or overly concerned by you doing so and just go for it! We have an opportunity to show our children by example that while life causes us to cry loud and long when we lose someone we cherish, that by doing so we honour the person and our own humanity and feel more connected to one another by expressing the truth of our hearts and by living courageously through the spectrum of emotions we share.

You and your children are never alone, nor am I and mine. Like you with your late husband, I feel my mother is a guardian angel helping us through. I believe in the healing presence and power of angels.

All of us here share something in common and it is much more than death and angels, it encompasses the very nature of life, and hope, and support, and empathy, and the willingness to embrace a bright future that has painted upon it a changing landscape of emotion for each of us. There is no right or wrong way to experience the death of a loved one. It is a heart wrenching experience that leaves us learning to process the enormity of it all. We need to follow our own inner guidance first and foremost as we allow for otherworldly moments when our angels whisper their wisdom in our souls. Kindness and compassion, patience and forgiveness, for ourselves and for others, helps us to travel this new road without a clear destination.

We are all strong – much stronger than anyone of us ever knew when life as we once knew it seemed predictable, I suspect.  As for crying out loud, in company, wailing to the rooftops for the injustice of our particular loss, that is not only predictable human behaviour, in my opinion it is the healthiest thing one can do to heal one’s heart and to ease the pain over time.

After a summer rain the sun shines high in the sky and our eyes behold a colourful rainbow as we gaze breathlessly in awe of its splendour. Nature never ceases to amaze the most hardened or hurting among us. With tears glistening in our eyes, we are like the rainbow with angels peeking through the sun that will surely shine upon us again to reveal the power of love and the beauty of nature. Love is a living within us and all around us, above and beyond us, timeless and true, as we cherish our life and embrace our loved ones, and hold dear our memories of all those we love, forever.


To everyone here: All the best in 2012!:)

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Reply by nanalovesu
19 Mar 2012, 9:49 PM

Thought I would share my new experience after the passing of my husband. Income tax time has come, and as I was gathering all the information needed to file his final return, once again, tears rolled down my face.  I saw the journedy I had been thru with him. It hurt my heart. Anger also was felt at the lack of direction I have in what I could claim on my return.  It was his wish to pass away at home which I fulfilled as best as I could. Because our income had been drained from a long haul of illness, I couldn't afford help to care for him at home... I was a nurse on a triple shift, or that's what it felt like. I did received respite help during the week for about 3 hours a day, which was used to tend to the necessary chores outside the home like groceries and mail.  And now, I can't find any sort of credit for my tax return regarding caring for a spouse at home.  I've heard they are working on one for 2012 but not for 2011.  So here I sit, grieving again, angry and not looking forward to  tomorrow.  Life does not seem fair..... it has been a difficult road... and I'm so very tired. My husband passed away one month before his 58th birthday, one month before our 5th anniversary and had been doing so well after a liver transplant 4 years ago.  I tried so hard to help him live and feel like I failed.  And now, I probably will have to pay income tax to the government, which I can't do.  I am a WIDOW at 52 , and finding it financially difficult to survive. Does anyone have any advice, I desperatly need some right now. 
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Reply by nanalovesu
20 Mar 2012, 6:11 AM

It's one in the morning and I can't sleep yet I'm so tired. Shedding tears doesn't help anymore. My heart hurts and feel like a part of me is gone, I'm incomplete.  This is what grieving can do to a person.
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Reply by Cath1
21 Mar 2012, 11:20 PM

Hi Nanalovesyou:

I have read your recent posts and I'm sorry you are having such a discouraging time of it. I understand.

Without having any expertise in tax matters, I cannot help you on that front except to say that I understand that financial stress certainly doesn't aid in emotional healing. I know that from my own life's experience.    

Your identity was very much entwined with your late husband's which naturally happens in intimate relationships so I think your feeling "incomplete" is a normal response and it will take more time to adjust to the new you without him. You of course are still the same person in essence but the joy and security you felt as a woman and wife - as a couple - is no longer there and you're hurting and wishing you could feel safe and happy again. I believe your grief will get more bearable as time goes on and you will learn new coping skills. Be kind to yourself and realize you are making progress. Don't expect too much of yourself as you must grieve in your own way and in your own time. It's a highly personal journey you're on, but you are travelling the rough road alone. We are here for you. Even in silence, when no one writes back in the moment, someone is reading and feeling for you. I hope you feel the love!

Grief does change our outlook on life and everything we once knew no longer looks the same under the shadows of sorrow. The way we once felt feels different when grieving, but when we take one moment at a time without expecting to be fully restored to the way we once were those moments become hours and then days, and soon weeks and months and years pass and we find ourselves again. Although we are definitely refined by the experience, we learn to feel comfortable in our newfound skin. 

 While we may never be exactly the same person after suffering a loss of a loved one, we will and do experience joy and happiness but it may be experienced in a new and different way.

On the weekend my youngest daughter turned 30 and our family held a surprise party for her. I was immersed in making decorations and cooking and baking and the surprise was pulled off perfectly! My eldest daughter created amazingly touching slide shows that included moving memories of my once little girl with music to match the mood. Then the birthday girl's partner got down on his knee and proposed to her in front of all her family and friends. I have no words to explain my elation - it was a memorable moment for her and her hubby-to-be and for us all!:)

During the slide show there were of course included family photos of my Mom. My tears of joy mingled with sentimental tears in the moment as I was conscious that my Mom was missing and it reminded us all how much we miss her. I was uplifted by the fact that our joyous feelings far outweighed the sad ones. My Mom would have wanted it that way.

My daughter also deserves to experience the high moments of life just as my Mom did when she was living - and so do I. Finally I am at that point in my grief, and while I know my feelings can change with the day, I feel able to handle my emotions and thoughts much better than I could even a month ago. I so hope that you will find your way to that much more bearable place of confidence in yourself and in your life soon.

Thinking of you and hoping you can sleep better tonight. Hugs!:) xo  

VHcath
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27 Mar 2012, 10:28 PM

Hi Nanalovesu,

Not being able to sleep must be so hard. I was thinking about you today when I came upon this article.

Tips for Coping with Sleeplessness in Grief 

Let me know if any of the tips help. What have other people done to help the sleeplessness?
 
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Reply by Cath1
28 Mar 2012, 12:19 AM

Hi Nanalovesu:

Are you having an easier time sleeping during this past week? It's lovely to see that Colleen did some research for sleep problems that many people experience when grieving. You are not alone in any way, and the tips in the article are great for anyone experiencing sleep problems.

I am excerpting #3 from the list of suggestions because I think it is such sound advice: "Avoid self medicating and alcohol which can offer only temporary escape, have serious side effects, can affect motor coordination and mental acuity, may lead to dependency, can magnify feelings of depression and can disrupt patterns of sleep."

None of us would welcome the risk of magnifying our feelings of depression, so if we can resist the temptation to self-medicate, it's a wise choice I think in the long run. I'm not a big drinker, but when my Mom died often wished I could just be sedated for the rest of my life because I couldn't imagine that I would ever again be able to feel like I had before she died. I was right, I don't, but the new me is a deeper, truer, and a more compassionate version of the old me.

I wish I didn't have to experience my Mom's death yet I had no choice but to face it, and I am left to embrace each new moment of my precious life even when sadness clouds my view and I have no idea when the sun will shine again.

There are ways we improve through grief, and life has a way of rewarding us with new experiences, deeper self awareness, gratitude for love and relationships we have that help so much to manage the pain we feel for those we lost, and a new perspective on life, ourselves and others.

As difficult - even tortuous - as it may feel a lot if not most of time we spend grieving, it can be a healthy thing to feel and experience fully the painful reality in order to deal with it and to become strengthened by resilience that develops as a result over time. The thing about the pain we feel when we lose someone we adore is that there is no actual escaping the cruel truth of it all no matter how much we wish to, yet we can find comfort and peace if we reach out to others, spend time with those we love and who understand, and talk or write about the complex and distressing feelings that seem to take control of every aspect of our lives despite our best efforts to be strong.

Strong is far overrated and a misunderstood concept in my opinion. Any person grieving is as strong as the largest and most ferocious ox no matter how much sleep they claim or lose, no matter how many tears are privately shed or openly rained down upon others, no matter how they smile or laugh, no matter if they fall down every day to get up again, those grieving are heroic in every way!

I don't think it is humanly possible to feel strong in the typical sense when faced with the profound loss of our loved ones. We are human. We cry. We lose sleep. We feel anxious. We feel numb. Lost is how many people feel in the wake of sorrow. It is natural. People care and want to help us get through each day. We must always remember that no matter how we personally experience grief that there is someone who will completely understand and accept our feelings at whatever stage we are on the grieving continuum.

For me this approach to grieving is helpful. It's like exhausting the grief by allowing yourself to feel and process every painful emotion until numbness takes over to dull the pain. The numbness is also an uncomfortable feeling but it beats the relentless sadness that overtakes us body and soul. Grieving hurts physically. Our hearts may actually ache as you say your does Nanalovesu. I have felt that same pain and it hurts beyond all description and you may feel it will never stop aching, but it will.

Sleep is so important to heal and to feel replenished with renewed energy each day as sorrow causes us to expend so much energy emotionally and physically as we learn to accept our loss and to cope with it.

For some mourners, the grief feels too overwhelming and intense, and they may need help with prescription drugs if they cannot cope or sleep for prolonged periods of time. This is a decision that should be discussed with one's doctor.

Thinking of you tonight Nanalovesu and everyone in our loving and healing Virtual Hospice community. Sweet dreams.

VHcath
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Reply by nanalovesu
28 Mar 2012, 4:40 AM

Thank you for the replies and the suggested article for sleeplessness. I should elaborate a bit more on my life as it has been and as it stands right now.  About 3 years ago I started having trouble with pain and walking on one side. I no longer could climb stairs and so we moved into a home that was all one level. After several test, and doctors apts it was determined I had MS and put on medication to help.  Shortly after my husband was diagnosed with cancer, and I begged the doctor for help.  It was my husbands wish to pass away at home and I carried thru with love and determination.  And now, here I am, wishing I had died that day too.  Or thinking life just isn't fair...... I have to deal with a lot of physical pain, mental pain, as well as emotional pain.  Seems, my whole world has turned into painful experience.  It also feels like I'm a prisoner in a box of memories.  Wondering if I should move to another place in order to make a new start.  But I really don't know what kind of new start it will be.  My journey in life seems to be painfull.

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Reply by Cath1
30 Mar 2012, 12:49 AM

Dear Nanalovesu:

It's heartbreaking to hear in your voice how life and loss has broken your spirit. I hope you always remember that there are many people who have felt exactly as you are now, and with time and the support of others, our broken spirits are healing, just as yours will as well, I believe. It is much more important though what you believe and I hope that you will find your faith in life and in yourself renewed, and that you will be able to trust in your ability to get through this terrible time in your life.

You are right that life is not always fair, and some people certainly have more than their fair share of difficulty, as it seems did your late husband and you. His journey through painful experience has ended and I am sure he has been rewarded by a peaceful spirit in his new life, as I believe the next life whatever it is, it is idyllic and souls are free of pain and worry. What do you believe about the afterlife?

Your suffering is especially hard to handle since your physical health is effected by your having MS. I don't know that much about MS, but I imagine it causes your daily life to feel more challenging than life may be for those without such an illness. Does your MS contribute to or exacerbate symptoms of anxiety or restlessness or lack of energy? If so, these type of symptoms could cause you to feel less equipped to cope well.

I feel for the suffering you are going through and I hope that springtime, with more opportunities to get outdoors in the fresh air and sunshine will help bring you some much needed relief from carrying the weight of your longing and loneliness so heavily in your heart. I wish I could say something or do something to ensure you that your life will not always feel so unfair and stressful, that you will not always be hurting as you are now. I am praying for you and believing in you that your courage and your honesty about expressing your grief will one day be claimed as your victory through it.

I think many of us can relate to the fantasy, and indeed the very real wish to be reunited with our loved ones. Being parted feels sometimes too painful to bear, yet we carry on somehow. We do find our way to journey past our fears and sadness. We find our own way, sometimes by following others, sometimes in isolation, but eventually we do find our way to a place where we again feel life is worth living and that we are worthwhile even in the absence of the ones we love.

There is no place sweeter in our imaginations than the heaven of our individual dreams, but those of us left behind mourning the loss of those we love, still and always, must wait for that grand and glorious reunion until Nature determines the time. We all have to grapple with the randomness of Nature, and by becoming personally acquainted with grief we never again doubt its power. To know grief is to know the meaning of hell on earth and while no one chooses to be scorched by its fire and fury, the healing flame of our inner spirit and survival instinct is incredible and will ultimately deliver us from the depths of despair to introduce us to a lingering and compassionate state of peace within. In time, this is what I am hoping and praying for you, Nanalovesu, and for us all.

I hope you sleep well tonight and may your dreams give your rest and hope.

VHcath

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02 Apr 2012, 1:03 PM

Hi Nanalovesu,

How are you doing? Have you been sleeping better these past couple of days? 

You're so right that life just isn't fair and it looks like our newest community memberCaron has been dealt a dose of unfairness too. She posted a new thread called 
Husband is dying. VHCath and Tian have written wonderful, thoughtful and welcoming responses, but I thought she would also like to hear from you.  

Would you like to write a message to her here?

Thank you
Colleen
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