Hi Carrie,
You have been on my mind as well these past few days – I am so sorry to hear that your husband is in bed and not able to enjoy the first days of spring. This cancer knows no boundaries and takes and takes … how I wish and pray that there will be a cure for this monster. My husband’s cousin is a scientist in cancer research in the states. He has phoned many times to see how my husband is doing … and he is so frustrated and sad that even he cannot help his cousin survive. He told me that there are treatments out there ( in the states ) that are in clinical trials that have helped some people go into remission … but there is nothing yet for small cell lung cancer.
I don’t have any answers either as to why we have to endure all this heartache … I so wish I did. I too have watched my husband reduced down to someone who cannot do much anymore … and it bothers him so much. We are trying to enjoy our time together as much as possible, in taking day trips to the mountains or getting out around the city at least once a day. My husband was sleeping and not eating for at least 2 weeks, and then the doctor put him on an I.V. for hydration and started him on steroids and it has helped a great deal … he “woke up” as the doctor put it. But for several days this past week he was again sleepy … so I wonder what the next week will be like.
It sounds like you need to get someone in to help with the house etc . Do you have anyone that can give you time off from caregiving … you need time to yourself as well. Would it be possible for your husband and you to be outside … so you both can enjoy some warm weather. We had a friend of my husband offer to build a ramp from the dining room to the deck so that he can wheel himself outside … it really lifted his spirit up to do that.
Take care and know that you and your husband are thought of and prayed for …
Carol