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Reply by KCBJ
06 Apr 2012, 10:02 PM

I want to tell you all that you have helped me and I thank you sincerely. It has been very helpful being able to put this out in writing to you, and reading your responses and stories, and feeling your support. Think that was all I really needed.

My obligation is based on how I was raised. As for love...not sure if there is any love left, but there is definitely obligation. And, although I don't have a life of my own per se, I do try to take a couple of hours off from work to see a movie once every other month. (yes, I do return to the office afterwards) My work also keeps me quite busy and allows me to concentrate on other things.

This sort of reminds me of an old horror movie, The House on Haunted Hill. I might have to write a book after this is all over...mommy dearest, the canadian version.

Thanks again.
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Reply by Cath1
06 Apr 2012, 10:45 PM

Thank you KCBJ!

Remember that real love, the kind that is tested and true, never looks anything like we read about in fairytales or see in romanctic movies, it is not always so delicate and rarely is it a squeaky clean and sanitized emotion, but love for your Mom is present in your heart! I can feel the love you have for her. The deep and abiding care and love and unbelievable patience you give to your Mom lives within you and her both, and to me that is as obvious as it is beautiful, even painfully so.  

No one who has gone through the challenges that an illness like your Mom's imposes upon you could feel soft and fuzzy feelings of idealized love all the time, and your expressions of feelings of frustration and sadness and generally just feeling burnt out and discouraged does not detract in any way from the fact that your love for and commitment to your Mom is remarkable.

Whenever you have feelings you want to share, the discouraging moments when you may feel fed up and unsupported, or the happier times when your Mom makes you laugh, you are welcome here as a dear part of our community.

Easter for those whom are religious signifiies a new beginning. I hope your reaching out to share so honestly your experience will be the beginning of a new way of life for you where you feel important and cared for as you continue to care even when it's not easy for your Mom! Hugs xo
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Reply by NatR
06 Apr 2012, 11:27 PM

Dear kcbj

You are getting great feedback from all of those who replied to your notes

I agree you are not only being manipulated but also controlled And abused 
I don't know why family members especially parents feel they can tell you what To do for your whole life
I have had a bit of experience in what you are going through
I speak from an equal footing so to speak- not judging but very sympathetic

Cath is correct you are very close to being a senior yourself.  You wrote asking for input and you are certainly in need of direction

Please follow Cath's advice and get professional help - and advice on finding a placement for your mom

Regardless of the fact she is your parent - you do not have to be a martyr and give up your life for her
You are as entitled to having a social life, a relationship,independence and to be happy.

Simple things we are all in needoff.
Please think carefully and get local support from your health community, doctor etc.

My heart goes out to you
I understand your pain, and you deserve so much more in life than to take abuse regardless of who is doing it
My best wishes to you.
NatR
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Reply by Cath1
08 Apr 2012, 12:23 AM

Hi KCBJ:

I was thinking more about your last response, and it occurred to me how insightful and realistic was your reply. Your Mom is 98 years old and seventeen years ago you had made a conscious decision to commit yourself to caring for her despite the challenges it would entail. In the past five years your Mom's health has worsened with her dementia and along with it her moods have become increasingly more difficult to manage, and yet you remain committed to caring for her out of your deep sense of obligation. These days not many people would make such a self-sacrificing decision, but I do think you deserve to be admired for trying desperately to stick to your family values, and you have my admiration. I know I could not cope with such a demanding and disheartening situation for so long.

I hope you will continue to communicate with us here or with others while you're going through this arduous journey with your Mom because whether by choice or not, you have a lot on your plate to contend with alone. It is near impossible for you to maintain a healthy state of mind and a peaceful heart without the perspective of others because so much of your life is ruled by the needs of your Mom. Her moods are not rational and as long as you realize that her behaviour is not your fault you will survive this experience. Please write when the pressure builds because at least that will help to defuse some of your frustrations and sadness,

I understand that at this point, after having devoted so much of yourself to your Mom's care that you are reluctant to give up the course you have taken to try another plan. About a year before my Mom died, after a particularly trying day with her, I wrote about how I would feel to see one relationship in my life through to the end. By the time I finished writing I started to recall the softer side of my Mom, the way she could thrill me with her laughter, the way only her eyes could console me, the way she loved to be needed by me and to hear my voice at the end of the work day. We spoke on the phone every day. She was lonely but would never admit it. She was dependent upon me but too proud to admit this even to herself. My Mom was by nature a quiet and gentle person. She was in her earlier days until her dementia progressed highly independent and self-sufficient. She was not overly demanding of my time, and yet at times I felt she intruded into my own psychological space to fill a void in hers. It was not easy for her or for me to accommodate one another's differing needs but we managed to do so, imperfectly, yes, but we succeeded.

I just want you to know that however you choose to proceed insofar as reaching out for assistance to help you cope, I respect your decision. I am here to listen, and to laugh with you at the funny side of life where dark humour can lighten the painful reality of living in challenging times. Not many people could - or would - cope with your circumstance with so little support and I hope one day in the future you will have many more opportunities to focus on your own needs as you kick up you heels and enjoy life, You sure deserve a break and I hope you take one every rare chance you get!;-)

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Reply by KCBJ
08 Apr 2012, 7:33 PM

Life is short and stuff happens that we have little to no control over. I've chosen this path, but as I've said previously, had I known I would have run as quickly as I could in another direction. Who knew my mother has such a strong constitution!

I've seen how the elderly are treated in the hospital my mother was previously in for her really heart attacks, falls and strokes. I've heard about horror stories in some of the nursing homes. Granted, there are times I'd like to run myself into a pole, but I have my dogs to consider.

I found out some years ago that my mother doesn't have life insurance. Once again, I'll be paying for the rest of my life - not only mentally, by financially. But we make of life what we can - some good, some bad.

I thank GOD I do have the strength, even though I am beginning to waiver. I definitely will speak to someone professionally, but really, I don't see them saying anything more than what each of you have been saying. The time will come when my mother will have to be put in a home, although she's determined to die at home. Good luck with that! I wouldn't doubt she'd outlive me at this point.

It is difficult to speak with a friend as they just do not understand my circumstances. So you have helped to make me feel a little better and I thank you for that.

I wish you each the best and I will come back and talk often.

Barb
           
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Reply by Cath1
08 Apr 2012, 8:48 PM

Hi Barb: Happy Easter! ;-)

Thanks for writing to us again today. I'm so glad your will stick with us as you continue to care for your Mom. Any time the pressures build and you need an outlet and a friendly ear to listen and a good heart to care, we are here for you.

It's great that you will seek some professional advice. I don't know what will be suggested to you, but it can only help to unburden yourself with someone who should have the skill and the resources to intervene and make wise suggestions for your Mom's and your situation. It's great that you are open to trying that route.

I agree with you that the way elderly people are treated in hospitals and long term care homes or nursing homes can be troublesome, although there may be some great places out there, they require that you be highly involved in your Mom's care to ensure she receives good treatment, should that become your choice for her down the line.

Thinking of you today, Barb and looking forward to connecting with you again soon. You are a trooper! Never forget that you are making a difference for your Mom! I visited my Mom's grave today and took her pink tulips and sang Hallelujah for her as she sleeps peacefully deeply hidden from view underneath the newly sprouting Spring grass. She is ever present in my mind and my heart as she hovers around me in daydreams and night visions, and in symbols and in signs she is seen high in the skies sprinkled silver with heavenly clouds. I miss her so much. No matter what we go through in life with our loved ones, when they are gone, our hearts miss them and mourn them every day. All we have left are our memories and the unending love they left behind to live within us and to comfort and console us in our sorrow. We honour them by loving others to the best of our ability, until one beautiful day in the hereafter when we meet again, and when they and we will be restored in the light of love's glory and grace. Wishing love and peace for you, Barb and for your Mom. Take care. xo

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24 Apr 2012, 1:48 AM

Hi Barb,

It has been a while since we have heard from you. How are you doing? We all look forward to hearing from you.
Colleen 
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Reply by Cath1
28 Apr 2012, 5:17 PM

Hi Barb (KCBJ):

Like Colleen, I am wondering how things are for you lately. Have you managed to get any respite care for your Mom so that you can get a bit of a break?

Let us know when you get a moment how you're coping. You are on my mind more often than you may know, Barb, and you remain ever welcome by the Virtual Hospice community to share your feelings and frustrations with us. Your story still echoes in my heart . . .

Hugs xo
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Reply by KCBJ
29 Apr 2012, 5:37 PM

Hi everyone! I'm still alive. Just haven't logged on for awhile. I take one day at a time. Nothing has changed but I'm still hanging in. Let's face it... a good many of us have a normal relatively happy life. Then there's others that are tested more and more each day. Hope you're all keeping well.
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Reply by Cath1
29 Apr 2012, 6:48 PM

Hi Barb (KCBJ):

That's a great attitude you have and one we should all emulate. So glad to hear you are coping by living one day at a time. It's not always easy to do, but taking things as they come and not letting ourselves get carried away with worry about the future helps us maintain perspective in the moment to face whatever the day brings.

As you say, appreciation of the positive things in our lives is also important.

Thanks for updating us! Take care!:-)
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