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Reply by Cath1
15 Jul 2012, 5:18 AM

Hi Barb (KCBJ):

Thank you you so much for taking time out your evening to write to me!:-) It means a lot to me especially knowing how very precious little time you have to yourself!

Barb, you are beautiful - 10 years ago and today - and I don't need to see an updated photo to know it as I see the beauty of your heart and soul in your writing. I honestly cannot imagine how you've endured for so long with so little help and emotional support. I know if I were in your situation I would have completely caved under the pressure. I think I can safely say that I have never met anyone in a comparable situation, and I imagine if I did meet such a person they would not have the humour or courage that you definitely do have - You are amazing! It must sound trite to you to hear my glowing appraisal of you and yet if you could stand outside of the frame of your photograph for a moment and take a really objective view of yourself you too would see the spectacular woman I see and admire!

When my Mom was living I can say that only her last few years from my perspective were difficult for her to live and for me to watch as I tried to help and protect her. As you know and I have written before, my Mom had a mental illness all of my life and yet those years though they included many trying times for her and for me and other family members, it was not until she passed her 80th year that the pressures on us both really grew and became more seriously challenging and hard to bear. When I think of my Mom's last few months, they were the hardest times in my memory and her last week of life was for me the ultimate heartbreak. When I read about others, like you Barb, and so many more people on this site who themselves or their loved ones have been suffering for extended periods of time, I am in awe of the capacity of the human heart to endure. I am not certain I could cope with what others must, but I guess when we have no choice over what circumstances life hands us, we learn to adapt as you do so very well.

I wish you could have a real holiday from your pain and sadness next week, Barb and I hope my wish for you somehow comes true. If I was a genie it would!:-) Your Mom is beyond blessed by you, beautiful Barb - never forget it!

With affection -hugs- xo
Cath1  
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Reply by KCBJ
15 Jul 2012, 6:48 PM

Cath1 -- what doesn't kill us allegedly makes us stronger. Like everyone else, I simply have assumed the responsibility. Don't kid yourself. If I knew this would have happened, I likely would have taken a different path (and not left a forwarding address). But sh*t happens and we deal with it. There's nothing wonderful or great about it. Sadlly, it just is.
 
Better get going for now my friend. We'll talk again soon. 
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Reply by Cath1
16 Jul 2012, 1:17 AM

Dear Barb (KCBJ):

I hear you. I understand that you find it impossible in the moment to see anything wonderful or great about your Mom's situation or the responsibility you have accepted for her care. I think if any caregiver could foresee the demands and the sacrifices required of us we would find it hard to imagine that is is possible for us to endure them. But how many of us really would choose to do things differently when a loved one needs us? We are who we are and people generally try to live up to their own expectations of themselves and rarely do we look realistically that far ahead to see or plan for the obstacles that will be put in our way. So usually, people initially respond naturally and automatically to a loved one's need, a cry for help, a call for assistance without our ever considering the length of the journey or the end point. Love is our basic motivation I believe, in the beginning.

I do believe that when your Mom passes away you will then have a chance to look back on your involvement with her over all these years and your loyalty that was guided by love and a deep sense of obligation to her and you will have great peace of mind. That may not seem right now like much of a comfort but I hope one day it will be for you a mighty and lasting consolation.

By honouring your roots and the person you are and were raised to become you have chosen to give up so much so that your Mom could have so much more. Hindsight is always 20/20 and I suppose had you known twenty years ago how very much sacrifice would be required of you for such a long time you may have decided to do from the beginning just a little less, accept a little more help, make room for a few more friends and outlets for yourself, and get your Mom used to the fact that you too had some healthy boundaries that should be respected and human needs that deserved to be fulfilled.

Yet, I suspect what happened to you is like what happens to many of us, to some degree or another. One day leads to another and then before we know it is weeks then months and then in your case many years before we realize how deeply immersed we are with caring for a needy loved one and by then we have set the tone for the future and it is hard to extricate ourselves from the situation to start over with a new strategy that includes time and care for ourselves. 

Still, I do believe it is never too late to re-think things - to step back and adopt a new perspective - a new plan - to seek help and outside support that could help guide us from whatever point in the journey we happen be in as we are travelling. There are always forks in the roads we travel, and my wish for you is that you will meet with one soon and that you will choose it and allow it to take you in a happier direction. Your Mom need never be abandoned by you as you travel through life together, Barb, but maybe you can allow yourself to discover the sights off the beaten path that will lead you to find some much needed and well-earned respite soon! Your forest is full of trees blocking the sunlight and I wish for you to be led to a clearing where you can breathe in the fresh air and be warmed by sunshine and possibilities.

With affection -hugs- xo
Cath1  


  
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Reply by KCBJ
20 Jul 2012, 1:12 AM

Hi there. Well, so it begins -- the 4th anniversary of the craziness has started. Yep, my mother must have a built in clock in what's left of her mind. I so dreaded this period it isn't even funny!! I've gone so far as pushing back my vacation 1 week. How pathetic!!

The thought of spending 3 weeks at home with her is simply terrifying to me. I can't even hold my tongue cuz it is just so ridiculous already. I am truly tired of being a lifelong baby sitter. If it wasn't for the dogs... Just no escape!! No escape!!

She has more clothes than she can shake a stick at, with price tags on them yet. There are piles and piles in her room, yet she still accuses me of stealing the clothes I buy her for some imaginary lover -- female lover yet. And this all happens at work. That's the kind of job to have, preferrably not female but se la vie.
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Reply by Cath1
20 Jul 2012, 4:20 PM

Hi Barb (KCBJ):

Could you risk inviting a friend over for lunch outside on your patio one day while you're on holidays? Maybe one day each week even? Is there anyone who knows your situation with your Mom that you could trust to include in your life that would accept that she is difficult but that could also come to visit with you despite how difficult your Mom's mood may be?

I hope you have at least one person who is willing to do this for you because it would give you something to look forward to and you need support. Truly, Barb, you must find a way to accept some support and let go of worrying - even for a few hours a week - about how your Mom will respond. No one can have control all the time. You are not responsible to give up your entire life so that your Mom's moods are appeased. What does this accomplish? When you think about it both of you are then miserable and neither of you are getting your needs met.

I hope you will see that you really need to get some balance into the situation because otherwise you cannot be a help to your Mom and she certainly is not able to help you. Every time I read your messages I can sense the utter burn out you are experiencing and it is hard to know it and not be able to do anything about it. Please think of some way to inject a little happiness and hope into your life, Barb, because you are suffering in my opinion more than your Mom. I wish so much for you that you will find the key to unlock yourself from this prison you are in and I hope that you get the help you need to cope with your Mom so that your softer feelings for one another can rise to the surface.

With affection -hugs -xo
Cath1      
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Reply by Brayden
20 Jul 2012, 5:43 PM

Dear KCBJ,
I can hear that emotionally you are totally at the end of your rope. Therefore I would like to go one step further than Cath1 stated and suggest that for your vacation time you should have your Mother go into a Personal Care home to give you respite. I know of a number of cases where the family worked through the social worker and placed their loved one in a personal care home for a few weeks. My own father in Winnipeg did that just to recover from looking after mom 7/24. You owe it to yourself to give yourself some love. . My heart goes out to you.
Brayden
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Reply by NatR
20 Jul 2012, 7:09 PM

Dear KCBJ,
I tried to post earlier but it got deleted somewhere...

Both Cath1 and Brayden are saying what I want to say to you.  Being a caregiver to your mom and taking the full brunt of not only doing the job but verbally assaulted continually is taking a toll on you...you may not see it - but it will.

Taking care of your mom is your first priority but you needing time for you is also a priority.  Burnout is what is happening to you - not to mention you feel captive as a caregiver.  There is nothing worse than feelling trapped in what you feel is the right thing to do.

Making sure your mom gets her needs met doesnt mean that You have to do it 24/7, regardless of her being your mom and genetic bonds etc.  Making sure that you are okay is equally important.

It is time for you to take the bull by the horns, take the great advice you are being given and see what you can do to give yourself a real vacation.  

The other thing I was going to say is to create some "appointments" for yourself  - that take you out of the house.  You are a victim if you continue to allow your mom to control every minute of your life...I am sorry to sound blunt...but at this point..>I feel more sympathy for you...than I do for your mom in her situation.

Your decisions are yours of course...but just sit and think about your life and how totally it is consumed by caregiving and involvement.

I caregive too.  I only do it part time, but in the number of hours I am caregiving, it results in round the clock responsibility.  I not only give care but have to deal with behaviours that are hard to watch, hard to hear, hard to handle.  

I am learning that I deserve time for me...and I still feel guilty doing that for myself...and my corner is not nearly as tough as your corner.

I also feel an obligation, a need to be there..for my family member.  But I also have learned...that I cannot do it all.  Burn out is a real concern.

Do sit and talk with someone about your situation...there has to be a solution for you. As much as we appreciate your notes to us...we ..I...feel powerless to really make a difference...as the load for you is pressing you down.

You need to value yourself as much as you value your mother...and her needs.
I hope this comes across in the right way.  I tend to say things bluntly...and for that I apologise..but I have walked in your shoes...just not nearly as far as you.

I have worked 8 hr shifts, double shifts, and I know how just a couple of those doubles can wear you down...not only physically but mentally.   Even working a full time job...with a day off here and there...and only 8 hrs at a time...staff get burned out...and go on stress leave often.  Why? because it takes its toll.  Do you now see that you are taking the place of 3 staff around the clock? well, considering you go to work, that means you are covering 2 shifts...evenings and nights..not to mention every weekend...and not to mention you give energy to a job.

Just wishing and hoping that you will follow everyone's advice and look after you...
best wishes...as always..
A fellow caregiver,
NatR 
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Reply by KCBJ
20 Jul 2012, 11:07 PM

Thanks for your responses everyone!! You are definitely right, all of you, and I know it. I will be 'pretending' to have to go to work over the 3 week period. I'll be writing a couple of articles for my department and will doing the interviews while on vacation, so that will also keep me busy for a couple of days. We'll see what happens.

thanks so much for just being there!!! 
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Reply by NatR
20 Jul 2012, 11:21 PM

Yay!!! Big relief on this end! So pleased you are getting yourself in order!!!! Making up commitments - its awesome!  It's a great start at looking after You -who is so very worthy of SelfCare

I am so proud of you
Dont forget phone lines also miss calls!!! Turn yours off and don't think twice
The disconnect will feel so good after awhile that you will want to regularly re-charge your batteries

Thanks for accepting my thoughts with kindness - as all of us just want you to be able to keep going - and be the best caregiver you can be
Your oxygen mask goes on first!!!!
:) hugs natR 
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Reply by Cath1
21 Jul 2012, 4:40 AM

Hey Barb (KCBJ):

You have come up with a brilliant idea and I hope it works out to give you the break you deserve. Never mind Rolaids, your idea will surely spell for you: R E L I E F!:-) lol

Yours is a new start that says you are recognizing that you too are important and deserve some time to yourself. Your first step to emotional freedom is taking you in a much healthier direction! I hope you will realize that with some creativity and planning you will be able to devise a strategy for co-existing with your Mom that you can both live with. Since your Mom is already adapted to your usual work day routine, I imagine that your "escape plan" will work out without arousing your Mom's suspicion.

Ideally, I think if you could take Brayden's advice and contact a local social worker to discuss either in-home care for your Mom so you could get away for a bit - or - respite in a care facility - short term - the little bit of space put between you and your Mom might restore your perspective and after a week or so apart you may be able to see her in a new light and she may view you with fresh eyes as well. Even if the time away from one another proved not to have the same healing effect on your Mom, you would know that there is nothing you can do to change her illness but you do have the power not to allow her illness to defeat you. You have been so focused on your Mom's needs for so many long years that you have lost sight of your own, but you have come to a turning point in your life, Barb, as you can no longer ignore your need for personal space which is a real need crying out from your soul. Keep trusting your own inner voice and it will guide you to the courage you will need to stand up for yourself and to make it a good habit! 

You have made a very positive decision and you are about to take action and by doing so in your own and your Mom's best interests, you are no longer immobilzed by fear or an overly developed sense of obligation. As Natrice supports you with her dynamic, living wisdom throughout her post, I especially love how she says that you as a caregiver need to put on the oxygen mask first! Take a deep breath, Barb and believe in yourself as we all do!

I hope during this vacation that you will rediscover some more of the wondrous world you've been missing and will have a chance to indulge in a few carefree moments of joy! Keep us posted as to how things are working out. You're walking in unknown territory, but remember we are all here with you to listen, to help you and cheer you on as you define this hopeful and exciting new path that will lead you right back to a stronger and happier you - the you who loves your Mom but who also knows you need and deserve your own life! You can do it, Barb!:-)

With affection -hugs -xo 
Cath1

  
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