Hi Carforus,
i was was a caregiver in nursing homes and did care for residents with Parkinson's. I think for the patient with Parkinson's - their body loses abilities first and it's very hard for them to accept care, and from my experience I saw exhausted spouses hand over their loved one unwillingly to long term care.
its very difficult - dealing with Parkinson's, MS and other conditions that increase the need for daily support with care, dressing, feeding, etc.
i am sure each person has a different experience - in how long they can manage at home, in how the affected person handles the condition. I can't answer the specific questions/concerns you had but I can empathize with you.
i hope that you will find encouragement here and a place to just chat, air concerns and between all the participants we can be supportive to you. I think feeling alone and not knowing what the future holds - is a difficult thing for sure.
thats why this forum is a great place to stop in and ask a question, share your thoughts, get some responses and know that you have an invisible but real circle of support.
We all care about each other. I wish this forum had been in existence many years ago when I struggled with loss, pain, frustrations, and felt alone.
that is what the Forum offers - people with real life stories helping others. Bring your coffee or tea and type your thoughts;) if one can't figure out what to say, another will!
Cheers and and hope today is a good one,
best wishes,
NatR