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Reply by marstin
10 Feb 2014, 4:05 PM

Hi Melinda,

Although it sounds funny in a sense, I can also imagine how it surprised and angered you. Len was always a really calm,gentle, soft spoken man but as his cancer advanced he had moments where he would snarl at the girl's and be downright vicious. I don't know how many times that I had to console one of our daughters when he would say something that just totally crushed them. Like you, I didn't let it slide and told him off. He would back off and seemed to understand when I told him how cruel he was being but he never apologized to them for it. I'm sure they still have the emotional scars from it. He would swear at me and a friend of his that helped care for him too. I don't know if it was the effects of the cancer or the medication but he became childlike and it was hard to not respond to. I guess what I'm saying is that I don't think it's uncommon for this to happen but it sure hits the anger button. Did you feel better after yelling at him? Lol! I found that it released some of the stress of all that was going on.

I hope today goes better for you. I had the same issue with Len sitting downstairs smoking and watching tv and me running up and down checking on him. A baby monitor would be a great solution. I wish I'd thought of it at the time.

Hugs,
Tracie
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Reply by Melinda
10 Feb 2014, 6:50 PM

I have always told my husband that I will miss him terribly...but not the cigarette smoke. We built a new home two years ago...just shortly after he was diagnosed...and he agreed to only smoke in the basement...well it still smells...but lose some, win some. And of course I worry about second hand smoke for myself..thankfully I am out of the house all day.
The TV is on constantly downstairs (day and night)...he also sleeps down there on the couch. I close the bedroom door upstairs and run a fan to drown the noise out at bedtime. He does not come upstairs very offen because he cannot smoke up here...so he remains in the basement..very sad.
This has been our living arrangement since we moved into the new house...all because of smoking...oh well. And now he is sick and cannot drive. He has no hobbies so just sits and watches TV and smokes. Before he was always out and about...
A friend of mine is going to lend me her baby monitor. Wonder if that will work? Yeah, I did feel better after yelling and truthfully did not care one bit what happened to him! LOL!
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Reply by marstin
12 Feb 2014, 3:51 AM

With you being a non smoker I can imagine how it irritates you that your husband chooses it over being upstairs with you. I have to admit that I too am a smoker and beat myself up daily for not finding a way to give it up. That's next on my to do list when I get out of this stressful situation of selling my house and finding a new place for my daughter's and I.

Len stayed downstairs most of the time (except for stays in the hospital) because he decided that we should renovate our bedroom so that I would have my dream room. He slept downstairs in the suite we have and I slept upstairs on the couch. Sadly, he passed away long before it was ever completed. Lol! It didn't really get completed because his 'friend' that was doing it was taking advantage of the situation and charging me an outrageous amount for his shoddy work and I had to fire him. Anyway, I found it easier for Len to be downstairs because as time went on it was a real struggle to for him to go up the stairs.

Does your husband have any friends who could come and pick him up and get him out once in awhile? Is he able to be out and about? I think depression comes with knowing how ill you are. Len spent alot of time smoking and watching tv but as time wore on, he gave up the cigarettes and rarely watched tv. I think I was happier when he was able to do those things.

Did you get the baby monitor yet? At least with that you can hear if there is a problem but then again you may have to listen to the tv talking to you at night. Nothing's ever easy.

Hugs,
Tracie
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Reply by Melinda
12 Feb 2014, 11:48 AM

Lol!!! I never thought of the TV talking to me all night!! Scratch the baby monitor!!
I used to smoke fifteen years ago...it took me seven tries and the last one finally caught.
Its a miracle I quit with Stan such a heavy smoker. So if and when you decide to quit, I want to wish you the best of luck with it! It won't be easy, but I don't miss it a bit.  And another funny thing...that seems to make our lives somewhat the same....Stan has hired a "buddy" of his who is coming by every day and finishing our basement. I am upset about this because the guy is sloppy in appearance and work.  It will be another mess I will have to deal with "after"...the fella will definately be fired and not get another penny from me! Did you ever get that bedroom finished?? I will be able to keep our house after...I am planning on not making any major changes in my life for at least a year.
Stan does not have alot of friends at this point. He is so negative that I find they have drifted away. He does have one brother who will visit and occasionally take him to an appointment. But thats about it...as time goes on I find I don't want to spend time with Stan..this really worries me and I wonder if other people feel this way? He is down there in a huge cloud of smoke and very negative and grumpy! Not a pleasure to spend time with.
I actually got him to come for a drive with me and it was a nightmare. He was so cross I could hardly wait to get back home. Yet he claims he is fine and not in pain..but obviously he is miserable and bored..which I cannot help with him and when I do try to spend time with him and do stuff, he is awful ! We did go and see a physiatrist about his mood a year ago. She put him on medication and it did help but I think its time to go again (IF I can get him to agree to it it!) I offen wonder if this behavior of his is normal and my being fed up and angry about it normal?
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Reply by marstin
12 Feb 2014, 5:08 PM

Lol! Well the baby monitor might be okay during the day just not when you want to sleep.

Oh how I hate being a smoker. I used to stay upstairs but go down to the basement to smoke. It kept me from smoking so much. Then my computer crashed and I started going downstairs to use Len's. Now I spend most of my time downstairs and it drives my daughter's crazy. I think it's depression but hate the thought of taking anything for it. I keep promising myself that once I get out of this place I will be able to tackle quitting,

Len had a strong personality and made a lot of decisions in his final 6 months that have left me with quite the burden. He decided that we should remortgage the house and get a second mortgage on it so that we could do the work here. I stressed so much over it when it was happening but wanted to believe that he was right and that he would beat the cancer and life would be okay. He also wasn't good at doing his income tax and left me with a huge debt on that. Not a good situation.I have been a stay at home mom for 20 years so I have to sell everything and get out of here to get out of debt.  As for my room, it looks pretty good but the worker only did what HE wanted and didn't put in the plug ins that were supposed to be there and  the ensuite never was finished. Still isn't. The electricians that were working here were also friends of Len and disappeared when I fired the contractor. Nice guys. I learned so much after Len passed away and most of it was not good, just painful.

It does sound like Stan is depressed and frightened. I guess if we were in the same situation it would be difficult to be happy and upbeat. I was fortunate that Len stayed upbeat most of the time and loved road trips. Before he got too sick he would have friends come and pick him up to go to AA meetings. I think that's what kept him going and kept him positive. He didn't cave in until a cold, stupid doctor started coming to the house and felt the need to point out to him that he was dying. He was furious with her. The second time she came, I kicked her out. All she cared about was him signing a DNR and was so forceful about it like she thought we were deceiving ourselves. I guess I was yelling at her as she went out the front door because my kids were at the top of the stairs and once the door closed they ran down to see what was going on. She left, he went to bed, and never got up again. I have always thought that I would write a complaint. She should never work with people that are in the last stages of their life.

Being fed up and angry is not unusual I think. Your entire world is going through a huge change and you have no control over it. I remember when Len got down on one knee on Valentine's day (not an easy task at that time) and asked me to marry him. Our daughter's were so excited and I sat there stunned and wanting to yell out 'No'. I was so angry and sad at the same time. I did finally say yes but I know my reaction was so stilted and slow that it had Len and the girl's wondering what was going on. I just wanted to run away. Such a happy thing at a time when my world was caving in. The two things just didn't work together. The changes that are happening in your life bring so many different emotions and although we don't really understand where they come from, they are not easy to push away. They just are. Nothing prepares us for watching someone slip away before our eyes.

Hugs,
Tracie
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Reply by Melinda
12 Feb 2014, 6:52 PM

Stan is still drinking which is a problem with his medication. The Pharmacist asked if he drank and I said "Yes, we are talking about a guy who finishes his beer in the morning before drinking his coffee."  So after phone calls to the chemo Doctor the medication was changed....though I had told the primary nurse that he drank...quess the Doctor did not get the memo! The last chemo Stan got (about two weeks ago) had to be halved because his liver enzymes were high.
The fella he hired is a smoker and drinker too...so they are keeping each other company....
I found it interesting about the decisions Len made near the end. Stan is busy finishing the basement and not the way I want it to be. (But I keep my mouth shut...things can be changed "after")
That Doctor does sound like a piece of work..glad you told her off! Why was she trying to force reality on your family..sometimes it does not hurt to just go along with any positive things the dying one is managing to hang on to!!
And luckily for me I will be okay money wise...what a shame you have to sell everything! Fortunately Stan decided that we needed to get married, redid his will, etc etc...so all his affairs are in order and I know where I will stand later...awful that you are saddled with debt and selling...I do hope you get out of this situation and are able to make a fresh start.
I take a mild anti-depression pill every morning..I have no idea if it works but even if it only works in "my head"....it has helped me to cope with everything. Perhaps its something you might want to look into at some point...I know I am glad I did. The depression you are feeling now is so normal...I remember well when my daughter died. I look back on it and realize how depressed I was...now I can think of her without crying and actually smile. It been five years since she passed. You will make it and come out the other end of the tunnel!! (Just takes lots of time) Take care Tracie    Melanie
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Reply by marstin
12 Feb 2014, 8:58 PM

It's sometimes hard to understand why people deliberately make things harder for themselves than they have to be. I think maybe it's a lack of feeling any self worth. I think that is why I continue to smoke. It could be that Stan has just given up and figures that it doesn't matter anymore what he does, the outcome will be the same. It doesn't help that he has an enabler who will help him continue on the road he's on. Len had been sober for 16 years and just before he was diagnosed, he sponsored a young fellow who was trying to get clean. He councelled this young guy up until he became too ill to do so. In return this guy came over every day and did work around here ( not much of a handy man but he tried) and was such a great helper as Len's illness progressed. When Len was in the hospital he would sit up there with him for hours going over the next days work. He was invaluable and would even give me time to run my mom around between medications when Len came home. I guess it was a win win situation. It's unfortunate that you have to deal with someone that is working against you in this battle. It must be so frustrating.

Yes, that doctor was horrible. She would put on this pained expression like we were too dumb to see what was happening with his body. I was well aware of it, how could I not be when I lived it every day. I always say that she killed him and even his regular nurse, who went away for about 10 days, was shocked at how quickly he declined. He asked me what had happened and I told him. He didn't know what to say. I truly believe that she ruined what was to be our wedding day.

Len really wanted to make things right as he got sicker. He wanted to be released from the hospital so that he could come home and put his affairs in order. The biggest problem was that they wouldn't release him and allow him to take the medication he was on in the hospital. It worked really well but I think there was a shortage of it or was too expensive. They wanted to put him on methadone and he fought them so hard about not wanting to take it but they won in the end. It was horrible stuff. He came home and every time he tried to do something he was so stoned that he would fall asleep. They had promised that he would be painfree and alert before they released him but then suddenly just told him he could go home and stay there when he was only supposed to have a day pass to celebrate Father's Day. I was not a happy camper. I guess his decisions about the mortgages wasn't all bad because it has made it so that I was able to stay in the house this long and pay the bills but that time has come to an end.

To add insult to injury, I think I may have told you that my mom passed away just weeks after Len, and my brother has caused me so much pain and stress while we deal with her estate. Although we were both named executors, he has been so secretive and refuses to work with me on anything. He refused to let me near any of the paperwork, even though  I was with my mom nearly every day and knew what she had in her accounts etc. plus had been doing most of Len's paperwork myself so I knew how to do much of it. He hired a pricey lawyer for 'us' but it turns out that only he is the client not me since he excluded me from signing. We are just drawing to the end of it all and he has blown a large amount of our money on this lawyer and made things even more difficult for me. He doesn't need the money and has stated it on many occasions, but I certainly did. He has been downright cruel (cold, money hungry wife syndrome) and once this is done I don't think we will possibly ever speak again. It has been really stressful and he has been far from supportive in any way.

I did get a mild anti-depressant from my doctor but have been afraid to take it because I have so many things to deal with and don't want to risk having my judgement clouded. Maybe I should give it a try anyway. It might help me start moving forward again instead of being in such a rut.

I'm glad that Stan made sure that he got things in place so that you don't have that worry. It's enough to go throught the grieving process without having so many other things to have to focus on. I often think if we had gotten it all together, that I would be further along at this point and not so weighed down.

Hugs,
Tracie
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Reply by Melinda
16 Feb 2014, 9:30 PM

Hello..have not checked in for awhile. Just wrote a long reply and forgot to submit it so I lost it...darned! Stan has had a change..alot of sleeping and absolutely no eating for two days.
Took him to the Doctor who just gave him fake marijuana pills to increase his appetite...did not work so he quit taking them...so still sleeping and not eating. Drinking some boost so that is good. I take him to chemo Doctor next week so we will see what happens.
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Reply by marstin
17 Feb 2014, 6:26 PM

Hi,

I don't know how many times I have done the same thing and wished that it could be like email that you could save and then come back to finish it.

I'm sorry to hear that Stan's health is changing. Although it is part of the process it  certainly is not an easy thing to deal with. Boost is a good thing to use and we had nurses that would find different flavors that are not in the stores and bring them to us to encourage Len to take in some calories. You might want to try that route if he doesn't like the standard flavors. Hopefully the chemo doctor will be able to give you suggestions on what you might do.

Just know that we are here for you at any time of day and will walk beside you so that you don't feel so alone in this.

Hugs,
Tracie
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Reply by marstin
22 Feb 2014, 1:35 AM

Hi Melinda,

I just thought I'd drop in and see how things are going. If you get the chance and feel like sharing, I'd love to hear from you.

Hugs,
Tracie
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