Hi Aphasia Sufferer's daughter,
How you must have suffered to see your loved one treated so poorly by others to whom you entrusted her care. Recent news stories about situations in long-term care facilities indicate that your experience is not an isolated one. However, please keep in mind that that not all facilities are the same. There are differences between long-term care homes, palliative care in a hospital setting and residential hospice. in fact the Quality Palliative Care in Long Term Care Alliance is working to improve palliative care attitudes and care delivery in long-term care facilities. Here is a brief overview of the work they are doing:
For anyone who may be interested, Some of the different settings where palliative care is offered are explained in this article.
Hi Kim,
I understand you are looking at residential hospice. I know this isn't an easy decision It seems like you are looking at the decision very objectively and seeking counsel to help with your decision-making.
My experience with hospice matches the picture that your pastor painted. In fact, getting the support and medical care for your husband that hospice care can provide can give you the space to be your husband's partner and soul-mate again.
I know I told you about these 2 threads with you elsewhere on the forum, but I thought I would re-link them here in case other people reading this conversation would like to see them. In these 2 threads Virtual Hospice members talk about their experiences with hospice:
I'm confident that you will make a good decision that is right for you and your husband.
Thinking of you both.
Colleen