Discussion Forums

 
Reply by KathCull_admin
27 Aug 2014, 12:08 AM

Hi J (alias oldbat - I must admit the name intrigues me:)
Welcome to the community. I am so glad you found us. As you say, it really does help to know you are not alone - others can understand and support - it just may take a little time to find them. Your ideas about Netflix and the library are great ones - I confess the library is one of my 'happy places'. 

BlackCat it must be so hard to watch your mom's health fade. Have you had the opportunity to talk with the doctor or nurse caring for your mom about the increased nausea and pain? 

Katherine

 
Report this post      
 
Reply by BlackCat
29 Aug 2014, 4:29 PM

Thank you for the responses! It really does ease my stress, having a place to vent, share and ask for advice. Things with my sister have gotten worse, and I am trying to let it go. 
 
 My mother is losing weight rapidly. She's never hungry...she eats on omlet a day. She doesn't want the shakes, or protein bars either. How can I get calories into her?! She is nauseas and often gets heartburn now.

 
Report this post      
 
Reply by NatR
29 Aug 2014, 4:44 PM

Dear Blackcat,

i just just saw your post.  Yes, let go of the fractured relationships...keep your energy and focus on your mom and her care

as a caregiver and having seen a lot of my residents as they struggled with age and illness, my personal point of view - and it's what I would want if I was in your moms shoes.....

this is hard to put into words and I hope you will understand 
your mom needs you to let her have what she wants to eat  - even if it is the same thing every day.  At least an omelet is nutricious:)
i woukd suggest that you try and give her what she will eat and drink, but you can't force her

i have watched and had to stand by silently while the powers that be - weigh weekly each resident, and if there's a drop in weight they immediately prescribe/order boost or energy drinks to increase calorie intake.

its fine to try that, but it usually doesnt matter, the resident or senior will refuse or just take sips.

quality of life is making the patient comfortable and free of pain.  Does that make sense to you?  I am not with you, I cannot see what you see, but from what you have said about your mom, I am  thinking that forcing drinks and food she want or won't eat is a pointless venture....you can try and then let it go.

you are doing all you can to be the best caregiver, I sense that.  I hope my note comes across as supportive and not in any way judging.....just trying to let you know it's a battle you can't always win.;)

But having said that, it's the trying that matters....we always keep trying....just don't feel guilty, it's not your fault.

sending you my thoughts,
 Best wishes 
NatR :) 
Report this post      
 
29 Aug 2014, 4:57 PM

NatR - you give wise counsel about 1) letting go and 2) balancing trying with not forcing and above all 3) not feeling guilty. I especially like that you said "I cannot see what you see."

BlackCat,

We don't see what you see, but much of what you describe matches experiences many of us have had as family caregivers. Food and eating are often a topic of discussion since it is such an important part of life, culture and joy. But in the end stages of life things change and we have to adapt. Our professional team has written a couple of articles about eating that you might find helpful:

Hope this helps.

Colleen

Report this post      
 
Reply by BlackCat
31 Aug 2014, 1:49 AM

Thank you natR...your post was helpful, and felt supportive. Years ago I belonged to another support forum, for something I was going through, and whenever the coaches posted support or advice, they would always say "take what helps, and leave the rest". I appreciate the comment about not forcing them to eat, and not feeling guilty.  When she doesn't eat, I feel like I just failed to find something she would eat. 
 
 I left a message with her doctor on Friday, because her pain is pretty bad...back shoulder area, as well as the liver area.  Plus, she told me the other day that she's been coughing up blood for a while.  She has a habit of not tellingme about new symptoms.  
 
 Thank you Colleen for your post and the info links!

 
Report this post      
 
Reply by NatR
31 Aug 2014, 2:01 AM

Hello Blackcat,

you are very welcome
most of all we need to be heard and to cast off the heavy burden of guilt - did I do enough? Should I have tried harder? Most of all we feel guilty because we care and want to do our very best - believe me - I can beat myself up all the time for not giving just an ounce more - 

i am am sorry to hear your mom has pain and other symptoms - it's most difficult to care for someone you love, and be surprised with new things to worry about, it can wear you down.

thats why caregivers need to be told - you are doing your best, no matter what the situation you are doing all you can.

stay in touch with the doctor and take it one day at a time.
thinking of you and glad to know something I said helped:)

i have cared for strangers and  family  - when the shift ended or the day ended - I worried myself to death going over my list and checking it twice. ;)  checking my charges and making sure they were asleep and safe - 

you are doing a good job, sending you a pat on the back;)
goodnight
NatR  


 
Report this post      
 
Reply by oldbat
31 Aug 2014, 11:03 PM

Can anyone tell me why a response I was writing to something someone had posted would apparently vaporize.? I had almost finished, was getting ready to sign and submit when, shazaam - everything was gone!

I HATE technology.

oldbat - who actually writes web sites, but still doesn't "get" what makes 'em work!
Report this post      
 
Reply by KathCull_admin
31 Aug 2014, 11:13 PM

Hi Oldbat
I cannot tell you exactly why + I cannot tell you exactly how often it has happened to me -but it is often!

What I have found works best is to write the post in a word document and then cut and paste it into the 'reply' box. That way it is somewhere somewhat stable:)

What kind of websites do you write OB?
Katherine
Report this post      
 
Reply by NatR
31 Aug 2014, 11:14 PM

Hi Oldbat,

you are not alone - it's happened to me a few times - it's a wierd and frustrating thing:(
keep posting - perhaps it timed out !?
don't give up!
technology can be frustrating but it still is a useful tool
best wishes
NatR 
Report this post      
 
Reply by oldbat
31 Aug 2014, 11:35 PM

Oh, thank you both for answering.  It's so good to know I'm not alone in terms of tech-ineptitude!  

You're right about "frustrating", NatR, and there's more than enough of that in my life right now! And KathCull, I've written web sites on everything from colleges to fashion to metal-welding. and, btw, I'm going to take your excellent advice about writing/copying/pasting from a Word document.

My latest oeuvre is a video of Karl and me, along with a little hard-cover book about his journey through stroke.  This is supposed to be published around Christmas.  I'm so excited!  So is he! 

OB 
Report this post      


Our Partners
Asked and Answered
Asked and Answered

Find out what Canadians
are asking

Ask a Professional
Ask a Professional

Our team of experts answers
your questions about
life-threatening illness and loss.

Just want to talk?
Just want to talk?

Join the Discussion
Forums

Books, Links, and More
Books, Links, and More

Recommended by our team

Programs and Services
Programs and Services

Find local, regional,
and national services