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Reply by Horton
10 Dec 2013, 5:52 AM

Hi, I am totally new at this and want to introduce myself. I am not sure if this is the right site to do this. I call myself Horton after the children's storybook character "Horton hatches the egg". If you know the story Horton was a caregiver for an egg that was abandoned by its mom and Horton stayed with that egg thru thick and thin.

That is my story. I was a caregiver for my two parents and it was a tough journey. The most difficult part is now. My dad passed away 6 months ago and now my mom has been given 1 month maybe 2. This has been a total blindside to me for one month ago we were out shopping together and my mom was not seriously ill.

I am now grieving my dad's passing and scared about my mom's passing. I am not ready to say good bye to her. I still need my mom even though I am over 50. To make matters worse, it is Christmas time and I never knew that last Christmas was going to be my last good one with her. How do you survive this? 
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10 Dec 2013, 1:58 PM

Welcome Horton. Thank you for sharing your story, especially how you came to choose your nickname for Virtual Hospice.

There are many people here to share with. Let me start by introducing you to a few.

Meet Lilbear. She was the caregiver for both her parents and recently lost her father and then her mother. If you post a message to either of the threads below, she and the other members sharing with her will receive an email notification that a new message has been posted and they will join in to welcome and support you.

Meet Embee. She lost her dad 6 months ago too.


I hope these are good places for you to get started and to connect with others.
Welcome. 
Colleen
 
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Reply by Brayden
11 Dec 2013, 1:10 AM

Dear Horton,
Thanks for coming onto this site. This is a safe place to share your feelings, frustrations, anger, whatever. Please keep the questions coming. I am sad to hear how you have to deal with the illness of both parents in such a short period of time. I would like to suggest to you that you surround yourself with a few good people that you can trust and share deeply with. We do have an organization here in Wpg. that can connect you with volunteers or groups that help you through the grieving process and also walk the journey with you as your mother is dying. That is Hospice and Paliative Care Manitoba 204-889-8525 ext. 229. I am a volunteer with them. I am sure others will come on here to welcome you.  Peace
Brayden
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Reply by Horton
11 Dec 2013, 1:41 AM

Thanks Brayden, I will call them tomorrow. My usual response at time like this is to hide away in a corner and shut people out. But I am not doing this now. I have learned that I need to look after myself. So I have been reaching out to family and friends and letting them know what I need from them and to my surprise they have responded wonderfully. 

I have taken compassionat leave from work and spending most of my time at the hospital with my mom. If I am not there she is asking "where is Dianne? Call her to come" to anyone in the room.  Yesterday I had my own doc appontment and then had to go to EI to file for compassionate leave and never made it back to the hospital. Today mom said to me (she was confused) that she was disappointed with "Dianne, but don't tell her". So up come the guilt feelings. Today she kept saying "don't leave me, you will be here and not leave" but I have to leave for my own well being. Today I found my patience getting very thin by late afternoon and got upset over the smallest things. So I do need someone to talk to. I will call them first thing tomorrow.
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14 Dec 2013, 4:34 AM

Hi Horton,

How are you doing? We're glad you posted to our community and chose not to shut people out.

Were you able to reach someone at Hospice and Palliative Care Manitoba?
Colleen 
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Reply by NatR
15 Dec 2013, 4:13 PM

Dear Horton,

the name horton is perfect as you mentioned the story line sticking through thick and thin.

i am so sorry that you are overwhelmed with the loss of your dad, and now your mom so I'll.

i do hope that as Brayden mentioned you were able to find support in your community, some who can understand, listen and give you  support in person...it is important to have that support.

having just lost my mom who suffered from dementia, lived at a distance from me, and when I visited her she thought I was going to move there, be there, and it ripped my heart out too.

i live several proVince's away from my mom and when she passed away this May, and of course for the several years before she passed - I struggled with not being there, and instead had a job, responsibilities I couldn't leave, and I also cared for a special needs family member - so it was a nerve wracking, guilt ridden and agonizing time as I was unable to be in two places at once.

one piece of advice, do what you can, regarding spending time with your mom - and know you are doing your best to divide your time up

secondly, it sounds like your mom is in periods of confusion and says words that are pointedly hurtful.
she does not have All the information, she doesnt have a clear mind, and she is probably struggling with many things, feeling lost, perhaps anxiety, or discomfort, and lashes out with words that hurt.

as a caregiver for others I took verbal assaults often from those with dementia.  I knew I was doing my best, they thought I was there to hurt them, which of course was farthest from the truth.

plain and simple Words can cut like a knife and because you already feel guilt naturally you are going to take on the feelings.  Please don't.  Please stand back, take a deep breath and remember that this is your mom, you love her and you are doing all you can.

will you get time off to devote more energy to caregiving and yourself?  Remember that you need care too.... Put on your oxygen mask first, then care for others.  Those are easy words yo say, and so hard to do.

send a note  and let us know how you are doing.
you are not alone.
best wishes from me to you.
hugs, NatR
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