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Reply by Carriek
11 Oct 2012, 4:36 PM

Thank you Cath1...Thank you
My soul does hurt beyond words... the anger, the despair of losing him is so overwhelming. 
How does one begin to accept..
How do I begin to smile... what happens? How does it come about? 
are there any good books that you can rocommend? is there a certain discussion on here that I should look up?
I am looking forward to the group meeting....
CarrieK    
 

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Reply by Carriek
11 Oct 2012, 4:52 PM

Hi NatR
how do I find online support groups that you mentioned?
I am not on twitter, nor do I even know how...
CarrieK   
 

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Reply by Cath1
11 Oct 2012, 7:23 PM

Dear Carolyn (Carriek):

How does one begin to accept such a devastating loss as you have suffered? It is a very straightforward question, but there is no simple answer. That is the truth. You cannot fast-forward to the day when you can honestly say, "I am OK". I cannot tell you when that day will arrive and you cannot in this moment tell me. But I believe it will come and one day you too will believe it, Carolyn.

You are doing already what needs to be done and in my opinion that is acknowledging your grief, rather than denying it. That is step one. It is a huge step, Carolyn and one that some people try to avoid because acknowledging the magnitude of one's loss is too difficult to comprehend, let alone to accept. I believe that you will take many steps over the next weeks and months to arrive at a place of acceptance. Of course your head knows the truth of what has happened, but your heart will take a lot longer to adjust and adapt to your new circumstances. I cannot say how long it will take, and as trite as it may seem to hear it, the truth is everyone does truly grieve at their own pace, in their own time and in their own way.

Some people try to let go of their grief or to deal with it by being busy, working, volunteering or travelling, by doing anything and everything possible but sitting still and thinking about how much they miss the person they love and have lost because the feelings are starkly and inescapably painful. Avoidance can work well for some people, but eventually, I believe the sorrow one feels must be expressed fully in order to accept it and to begin healing.

I can relate very much to how you've lost your spark for your work, Carolyn, the work that once captivated and challenged you, the work that now seems a chore as your heart is no longer in it and you wonder if you will ever again be able to feel about your career as you once did. It has been an excruciatingly long and agonizing year you have experienced. There is no way to make it sound better because for your husband, for you and the kids it was a living hell. Your husband was lifted I believe to the heavens, but you and the kids are left as the lonely survivors searching for comfort and hope that seems, so soon after your loss, never to come. It will come, Carolyn, but it will take time before you can see it and believe it.

You are hurting so badly and you must feel exhausted after all you’ve been through. You are now at your weakest point having been strong for your husband all those long and heartlessly cruel months and you need rest and support as you begin tiny step by tiny step to recover your sense of yourself and to again feel you have some control. Your life is so very different than you had once ever imagined it could be or would be and it is quite natural that you feel so at sea and alone in your suffering. You are never alone. I am here to listen whenever you need a virtual friend, as are we all.

You have made sure that your girls have counselling and a healthy outlet for expressing their grief, and now it is time for you to reach out through the hospice support group to accept that same kind of assistance. I am hoping through that group you will meet a close friend with whom you can bond and with whom you will be able to share without reservation the truth of what you are living through. You are questioning how you will go on and whether you will ever be able to accept your husband’s loss and how you will live and actually be able to feel grounded and happy again when he is not with you. Your life has been rocked to its core and its meaning has been dulled and jaded by grief.

You have experienced an extreme trauma, Carolyn and you will question everything as you try to come to terms with it all. Your heart and soul have been severely wounded. While so many of your questions are the natural response to life that has shown you how senseless it can be, try to remember that sometimes we have to accept that there are no answers to why some suffer more than others. There is no good reason, but there is always hope that even when we cannot find answers that satisfy our deep need to understand our sorrow, there are people who care and will help us reach that quiet place of acceptance and peace that we seek. You will touch upon moments of peace and hope along your journey of grief and these moments will renew your spirit little by little. Each small moment of serenity will multiply over time until you have more moments of harmony with yourself and your life than moments of extreme and inconsolable sorrow.

You are already on your way to discovering how to cope, how to live and how to heal. Your tears, your sadness, your anger and despair in no way reflect how far you have to go but rather how far you have already come! You are ever my inspiration, and you will always have my friendship and my support. Your heart is with mine as mine is with yours. It is a great gift we share.

As far as online support groups go, I believe that you have found the best right here at Virtual Hospice for all topics related to illness, caregiving, death and grieving. There are many people whom I am sure would love to connect with you Carolyn, like Jane (PPP) in this thread, and Pooka and Caron and Nanalovesu and Mark99, although we have not heard from some of them for a while. Perhaps they, like you, are waiting to connect with others who know firsthand how it feels to care for a dying spouse, to grieve the loss of one's lifemate and indeed the love of one's life, as you have experienced. Please keep reaching out here, Carolyn as there are so many people who you will help as you seek help and healing for yourself. We are with you!

With affection –hugs- xo
Cath1


PS Here's a link for Twitter https://twitter.com/ It's easy to sign up - and free - and if you type in 140 characters or less your message seeking others who have experienced the loss of a husband, I am sure you will make friends rapidly. There are also Twitter chats that use what is known as a hashtag (the number sign is the hashtag symbol: #). If you put #death #cancer #loss #grief #widow in your message - or in the search bar - for instance, you will find "tweets" (aka messages) with others talking about these sensitive subjects. Good luck!:)   
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Reply by Carriek
15 Oct 2012, 10:05 PM

Thank you once again Cath1, I can always count on you and your calming words to make me feel as better as I can be.
Im still having a very hard time getting motivated.... my previous life was busy, rushed, successful.... and now I just seem to want to hide in the house...alone...
It scares me.... my business has fallen to practically nothing... most people when I do see them say--we didnt want to call you, as we didnt know if you were back to work- so we called someone else !!!
Not sure what I can, should do......
how does one get motivated when I truly believe now----- why do we all work so hard to achieve---- when once struck with a terminal illness--nothing matters and nothing can save you, not all of the hard work, not all the achievements, nor the possesions..... NOTHING
so what is the point of busting our asses....
I guess I feel ............ beaten...... defeated....... lost
Carriek        
 

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Reply by Cath1
16 Oct 2012, 4:38 AM

Dear Carolyn (Carriek):

Thank you for your kindness. It means so much to me!

Please try not to expect so much of yourself so soon in your grieving. Your feelings are very natural. Of course, in this moment you cannot feel the same sense of satisfaction in your work as you once did because your entire perspective on life has changed and deepened in light of your loss. You are now acutely aware of your priorities and your feelings which make you extremely vulnerable.

Why do we all spend so much time working when life's events can suddenly cause us to lose everything we feel we have been working for? The reason most people work is because they need to support themselves and often others who are dependent upon them. Typically, whether we enjoy great careers where we can really express our talents or work at a job that may not be so interesting but pays the bills, most of us need to feel we are contributing through work, to improve our experience of life for ourselves and for our families. The possessions we accumulate along the way mean little when we don't have someone with whom to share them. Success cannot shield us from life's disappointments or tragedies. Success in business does not prepare us to accept personal loss. There is no comparison to the fulfillment we get from our careers and the fulfillment we get from our closet relationships. We are lucky if we have both at the same time, as you did, Carolyn, and you have not only lost your husband, the thought of which was your worst fear and now your deepest sorrow, but since he died you have lost the appreciation for other aspects of yourself and your life, including your work, which I think is more than understandable.

I know how desperately you want to feel whole again, happy and excited by life rather than to feel defeated, lost and distracted by the constant presence of sadness. Time seems endless in the first throes of grief. It is an emotionally draining and dispiriting experience. It can feel like you will never again feel good about anything but this is a part of the grieving process. There is no way around it, you will feel discouraged and even at times hopeless and yet you will begin to respond to the little voice inside of you that will encourage you, and it will give you the strength and the hope you need to carry on. Listen to your inner guide. It is always there for you to keep you on track when you feel like you've completely lost your way. It will not abandon you. Right now your sorrow is screaming so loud through your soul that it is really hard to hear your inner voice reminding you that you are a survivor, a capable, talented, loving woman, mother, and friend. You have very important work to do right now and your first assignment is to acknowledge all of your qualities, your resilience, your courage, your determination to find yourself again safe in the knowledge that you will get through every dark night to discover a new day. As the days pass you will begin to recover a stronger sense of direction, renewed purpose, little joys that will grow over time into acceptance, confidence, patience and compassion for yourself.

One day the trust you once had in life will return, although your experience will always colour your perspective it will also give you a wisdom that you have well earned. One day, I believe, you will know a deep peace that others may never know and it will be alive within you, in the comforting memories of you and your husband together, the profound love you shared, the laughter, the children you both adore, the family holidays, the special conversations between lovers, the gratitude you feel for the past, and in the promise of hope and happiness in the future. Tonight when you sleep I hope you will allow yourself to dream of a better day waiting to greet you so you will begin to imagine that it is possible for that day to dawn.

Tonight before I sleep, I am thinking of you, Carolyn, and Jane too, and I am keeping you both in my prayers. I will be praying that peace finds you both wherever you are waiting. I know how hard it is to wait for that moment, and you may not realize when it happens because peace will arrive through a subtle series of small mercies that will slowly transform you from within. Listen to your inner voice as it brings you messages of comfort and hope. You can trust it.


With affection -hugs- xo
Cath1

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Reply by Tian
16 Oct 2012, 11:17 AM

Beautiful words, Cath1. Absolutely beautiful. (Although I'm sure you meant closest relationships rather than closet relationships.) I'm still here Carolyn.

Tian 
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Reply by PPP
16 Oct 2012, 12:12 PM

Hi Cath1, Carriek, and Tian


Yes I alwasy look forward to Cath1 words of encouragement.  I posted twice and both times it never went through.  It was probably my doing so won't worry about it!

I am surviving since my family left for Thanksgiving.  It is very quiet, but I keep myself busy.  I seem to have come to terms with my grieving for now.  The six month anniversary was very hard but I am tired of shedding tears, having swollen eyes and a running nose!   Don't get me wrong, I still shed tears but they are subsiding somewhat!  Maybe I am accepting what can not be changed!  All the tears in the world will not bring back my Avery!  So I am trying to develop a routine and reach out to other people.  Carolyn, don't be afaid to ask people for their help.  I think we expect people to come to us.  Most people are busy with their daily lives and don't "want to bother us".  They feel uncomfortable about the situation and avoid it.  I do hope that you''re going to grief counselling.  I went to one meeting so far, and it helped me realize I am not going crazy and I am not depressed, just grieving.  That's what we are supposed to do.  So don't be hard on yourself, as we tend to be, it just takes time to develop our own way of life without our loved ones. 

Regards Jane 

  
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Reply by Tian
16 Oct 2012, 1:53 PM

I want to say I'm here for you too Jane. Although with the wisdom you are offering here I am receiving more out of this than what I'm contributing.
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Reply by Cath1
16 Oct 2012, 8:09 PM

Dear Jane (PPP):

I am so happy to hear from you again! Thank you for your amazing message and I'm glad you succeeded in posting it this time!

You have come so very far, Jane. I am so glad you are making your way through your forest of feelings to find hope branching out around and within you. It does make a difference, in my experience, when we hear from someone we trust and respect that our grief does not necessarily mean we are clinically depressed. It helps to know we have not lost our way and that our feelings of deep sadness are actually a part of our healing when accepted and expressed. Grief of course can feel like depression because it is so hard to function for what feels at times like an eternity. It is always best for anyone wondering if their feelings of sorrow have evolved into a full blown depression to check with a professional. It's natural to wonder.

In my experience with loss when my Mom died, I recall getting to the point where I simply could not stand another moment of sadness. I felt I could not bear those powerful feelings forever. I felt so weak. I really wondered if my feelings would have the power to overwhelm me for the rest of my life. I too felt sick of crying after several months had passed. I had often wept when I was alone in the private sanctuary of my home. After awhile when the numbness set in, I felt relief for a time. I needed a break from my tears and those breaks, when I simply could not cry another single solitary tear, helped me to regain my footing and to kind of go through the motions. Sometimes I did have to fake it, hoping I would ultimately make it through but not really believing I would. I certainly had no idea at the time how I could make it and live on in the face of my loss. For many months I went back and forth from feeling anaesthetized to pain to feeling that there was no pain killer strong enough to dull the constant ache in my soul.  I was determined not to take any kind of medication to dull the pain as I felt strongly that I needed to feel every sensation of sorrow in order to deal with it and to somehow get beyond it. Some weeks I cried all day long and I didn’t recognize myself in the mirror, so swollen and distorted by grief was my face. Weeks passed without one tear drop escaping from my weary and vacant eyes.

Tears are so healthy, yet when we cry for so long they can also drain our energies. We need to cultivate a balance in our grieving and that takes so much time and effort. I think at some point, we need to force ourselves to re-engage in life and to smile even when we don't feel like it. Smiling somehow helps build our strength as does being with people even when we may prefer to hide ourselves away from the world - perhaps especially then. Still, always underlying the absence of tears expressed, I could sense how fragile and vulnerable I was in fact and the thought that I would lose complete control of my senses scared me silly. I know now that time does help heal. As much as I wished for time to hurry up and help me, I also realized that I could not control how much time it would take. For me, giving up my need to control the timing of my healing actually helped to restore my faith that healing would occur. I always hated to hear that comment about time healing all wounds, but for me it has proved true thank goodness. I am hoping for you, Jane, and for Carolyn, that you will each find that time will bring healing.

There is so much empathy and wisdom in your post and in your advice to Carolyn to seek and to accept help from others. That is so important. I know you struggled as I did with reaching out, but it is worth the risk of being vulnerable with others because through our shared human experiences we give one another strength and courage to continue living as we suffer. It is powerful to realize that others have experienced and survived sorrow so painful that they felt it would kill them if they could not escape it. It gives us great hope to see them living on and learning to not only adapt to their new life after the death of a loved one, but to regain inch by inch a renewed quality of life in the presence of possibilities to which the dark night of grief had rendered them blind. We need to know we are not alone. We need to follow in the footsteps of others who have walked before us and have left footprints where we have barely begun to tread as we step bravely and blindly into the darkness of grief. We must feel our own way through the mysterious and frightening maze of sorrow, following footsteps, imprinting the path with our own footsteps of experience, while hanging on to our most miniscule hopes like a lifeline that will lead us to find the light of healing that is waiting to show us a new horizon.

You are inching closer day by day to that healing light, Jane. Please keep us posted with your progress and please keep communicating with Carolyn. Your experience shines a light she so needs to see.

With affection –hugs- xo
Cath1


PS Tian, you my humble friend, are incredibly kind! Thank you for sharing with us all through your many messages of support your especially warm and healing light. With you I don't need to hide my feelings in the closet!:-)

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Reply by Cath1
27 Oct 2012, 5:55 PM

Dear Carolyn (Carriek) and Jane (PPP):

Please come back when you have a chance to let us know how things are going, and especially how you are each feeling as life carries you along day to day.

Thinking of you both this weekend, as I do every day.

With affection -hugs- -hugs- -xo- -xo-
Cath1          
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