Discussion Forums

 
Reply by marstin
08 Feb 2014, 7:41 PM

Hi Aphasia Sufferer's Daughter,

I have been following your posts but not commenting because I have never dealt with a person with Alzheimer's but the more I read, the more I feel that I can relate on many other issues. I lost my husband to cancer in July 2012 (we cared for him at home) and my mom to heart compliications in Sept.2012. Losing my two closest people  so close together was devestating. I have two college aged daughters who live with me but there is only so much that you can share with them. I spent most of the past 20 years just dedicated to my family and my mom. Her and I were together every day so as far as having a friend network, it was virtually nonexistant. When I found this site, I felt like I had finally found people who could understand how full of grief and loneliness I was.

I have a brother who sounds similar to your sister so I can understand your bitterness. My brother came to me right after my husbands memorial and said how glad he was that someone else didn't think so highly of my husband. He was referring to a guy my husband had known 30 years before and showed up at his memorial stoned out of his mind and babbled a bunch of stuff that no one else understood. Funny thing is, my husband was well liked and admired by most people he knew for his loving, selfless ways. He actually did far more for my parents than my brother ever did.  I was in shock when my brother said that to me of all people. My brother stayed on the outskirts of my mom's life for many years and saw her every two to three weeks for dinner. Before my mom passed we vowed that the two of us would work together to deal with things once she passed. The day after she left us, all of that went out the window and he brought his icy money hungry wife into the mix. It has been a year and a half of pure hell dealing with him on top of dealing with the grief and the loneliness. I'm not sure why people think they are superior when they have money. I guess it does make them feel powerful. We are just now coming to the end of it all and I feel the need to cut the cord tying me to him and walk away. All I ever wanted was a brother who actually had some compassion in him and all I got was someone looking down at me with pity.

As for friends, like you, my true friends live at a distance and so we only talk on the phone. Their support has helped me keep my sanity although it doesn't keep the loneliness away.

I also have a dog who forces me each day to get up and out the door. Pets can be such a source of comfort and love when life seems like it's falling apart around us.

Just knowing that there are people on here who will listen at any time of the day, has helped me face my darkest days. I hope it does the same for you.

Hugs,
Tracie
Report this post      
 
09 Feb 2014, 2:26 PM

Hi Tracie
My sister rejected me when we were both in highschool. I was beautiful and also a nerd. I had  few good friends. She was moving in a pack of highly social kids. Shew as younger. She unfortunately had a boyfriend who came over to our house all the time who also baited me a lot about being a virgin and a christian. My mother didn't throw him out. My father was travelling on the road and home rarely (his employer didn't pay to bring their employees home).
So to be honest, and we can be honest here, I have struggled with that rejection all my life. She has always hooked up with an obnoxious male who bullies (with the exception of  one guy who was bisexual and not a mate). So I carry baggage. I always tried not to put that on her husband, but when he would be agressive or bully I would react.
When I was married, I would just turn him over to my husband who would handle him. My husband could be a bully as well  but he was far too smart and too well-raised to lower himself in the ways that my sisters' vaiour men have done-- so I had protection.
My father is a bully. and has no emotional intelligence. So my father makes things worse.

There is a possibility that your husband actually did hurt a few people when he was a kid - most of us did. And there is a possiibility that he didn't apologize for it - and truly make amends. Most of us with good hearts and a desire for peace hurst some people but we decided to learn from it.

Your brother and the person who showed up stoned are people who, sensing that you were suffering, moved in for the kill, like sharks or piranah. They were following some ancient animal urge to destroy the weak member of the pack. They're not civilized. Civilization means that we put some controls on our behaviour in order to bring our personal lives and our group lives into alignment with some higher principles. To do that we have to gain understanding about our individual and group selves.  Your brother and the funeral crasher are running away from understanding.

So this makes them dangerous for you when you're suffering. WHen you're not suffering however, they won't be dangerous. So you will have to decide whether to include them in your circle or not. If you don't wish to cut your brother off altogether, I would suggest laying down the law wtih your brother when you're not suffering. Give him one simple rule and one way to handle it. For example, my dad used to bully me with my husband in front of guests etc. I told him (on a day when I wasn't suffering) what he did. Two sentences. He had no opportunity for feedback. THen I told him that I was going to divorce him from that day on unless he stopped that. He was shocked and said he had no idea he was doing that. He suggested that when he did that I c ould just say: "Let's change the topic and remain friends." He largely followed that rule for the next thirty years. He has been breaking the rule while my mother has been deteriorating in the past 11 years. Not surprisingly as she deteriorated with Alzheimers he was rude and bullying to her---- he chose to see her problem as some moral weakness that she could be bullied out of or reprimanded out of... As late as two months ago I had to remind him that she wasn't going to learn to do what he wanted anymore...that learning and self-discipline were no longer on the table. So reprimanding her and shaming her were not going to work.

I have offered regularly for 2.5 years to get together and work it out with my brother inlaw and my sister . I offered to bring a mediator to help us. They have refused. They don't want to work it out. They prefer to blame and to try to pretend there isn't a prpoblem and that I am just crazy. So I have to protect my self AND keep the door open for reconciliation.  Pride gets in the way of their even hearing that they have done something wrong. And since I am the person who said the mean thing, I am an obvious target. I made it easy for them to slide back into pride and bullying.

It's boring human sin isn't it? Repetitive. DUll. Never anything new or imaginative.   Same old routes of bullying and blame and exclusion and revenge and shame and ------- What people don't say about the way of peace is that other things get done - inventive things.

My sister and brother in law do some interesting things without me. Their way of moving forward is to incise me out of their lives and to go on and acoomplish their goals. It's not a loving solution but it works for them.

As move out of the worst part of the wringer of grief, my sanity is returning and i will be able to think things through and act. For example, last night I figured out that the problem with the water in my sink and the film on my dishes is that my water softener has run out of salt. Over Christmas, when my mom was kicking and punching and biting me and saying terrible things, even though I understood her disease and knew that giving her eight days with family in my home was wonderful, I was in shock from her abuse. Literally traumatized. Her almost dying two weeks later and her problems all month long, resulted in my being in worse shock.

Now it's easing away. I have no intention of making myself vulnerable to anyone who is harsh or difficult in the next few months while my battered psyche tries to recover. I'm not taking on any tasks that are anything but gentle. I learned about gentle living in my thirties when I sorted things out with my dad. I am going back to that now.

hugs Tracie,

Cathy
Report this post      
 
09 Feb 2014, 2:36 PM

Oh I forgot to say: the baiting boyfriend in high school and my sister got pregnant. My mother would not raise the child: they gave her away. My sister blamed my mother for being so controling that my sister "had" to act out. The damage from the pregnancy and the giving away of the child persists to this day. The child found my sister and therefore us when she was 19. We have all gotten to know her and  she is tight with my sister's family. My mother and father warmly welcomed her into their love - and her husband and two kids.

So some healing has taken place. But there were consequences for everyone, including an innocent child, of my sister's aggression and acting out.

At my mother's deathbed, my sister asked if there was something she should do, I asked her if she had told my mom that she was forgiven for her part in the pregnancy. My sister said that she had done that. Whether my sister just forgave my mother for my mother's role or whether my sister confessed and repented her own aggression and unkindness  isn't known to me. I don't want to know frankly. 

At some point when my mother was dying my sister said something like "if ever there was a time for prayer this is it". I didn't pray out loud. I had been out in the hall hours before holding my mother up to God in my mind. I simply  had no words. So I stayed silent. I didn't pray with my sister. I don't regret that. It's odd that my sister's time for prayer was as she lay dying. Not my idea of prayer. I actually have no idea what my sister thinks prayer is ... none at all. My sister's life hasn't given me any clues about what prayer might be in her life.

Cathy

Report this post      
 
Reply by marstin
09 Feb 2014, 5:54 PM

Hi Cathy,

Thank you for sharing your story. It's interesting how our upbringing has such an impact on our entire lives. I grew up with an abusive dad who took his anger out on my mom when I was young and as the years went by he verbally abused me. My brother learned that the way to get by was to run away when things got bad(he was older) but I was the one who stood up and roared. Over the years I became my mom's protector and stood up to my dad when he was cruel. That doesn't mean that I was a strong person, I was actually a very gentle, sensitive person and still bear the emotional scars from it all.

My brother and I were very close for many years. He was always viewed as the golden boy and I was just the trouble maker who it seemed no matter what I did that was good was never recognized. He did so little for our parents but was always admired for the little things he did. I was always there doing things for them but never felt like it really counted for anything. It didn't bother me so much back then because we were the best of friends. Things changed when he married the woman he is with now, they've been together for over 20 years, and her whole focus in life is money and power. She caused so many issues with the females in our family throughout the years but did it in such a sneaky way and my brother hid his head in the sand so that he didn't see what she was doing. Of course the mouthy side of me just couldn't not react to the things she did so I was the bad guy for standing up and roaring. It got worse throughout the years as she lost her mom, then her dad, and did something when her dad passed away that caused her brother to cut the cord and never speak to her again. She also lost her best friend around that time due to the issue with her brother. When I asked my brother what had happened, he said he had no idea. She has alienated many people in her life but consoles herself with money and power. She tried many ways to get control over my parents finances but my mom wouldn't go for it. When my mom was having heart issues, she sucked up to my dad because she knew that we didn't have the best relationship and I think she figured she could push me out. It was so obvious that even my dad started to wonder what she was doing. Anyway, my dad passed away first while my brother was off on a cruise that he didn't want to go on because of my dad's health issues. Len jumped in and took care of my mom and all of the paperwork that followed. Anyway, since then my brother has become extremely emotionally detached from everything. I think he is consumed with guilt and has spent the past almost 6 years thinking he is dying from something and has just become a shell of himself. Anyway, it's a long compicated thing but once our mom passed away he was incapable of being any kind of support to me. In the beginning he came over once in awhile to do a few little things around here but always had to say something negative against Len. I think he got scared off because every time he did that, something would happen here to startle him. As we went through the process of dealing with my mom's estate he became incredibly focused on 'assets' and was angry that we were both named executor's of the will. I believe it was his greedy wife talking in his ear. So, on top of the pain of loss I have had to deal with a cold, selfish brother.

What I know now is that I have learned a strength that I didn't think possible. He sits back with his money and power and I have to sell my home to get out of debt and relocate myself and my daughters. He blew our inheritance money on a fancy lawyer (He was able somehow to hire a lawyer without my signature as co-executor) and blocked me all the way along from knowing what was going on. I found this out just before Christmas and we have sent heated emails back and forth since then. Yes, of course I am the bad guy for speaking up.

Although I am not a religious person, I am spiritual and have worked very hard to let things go and not allow them to eat me up any longer. Walking away from him and his cruelty was the toughest but was best for my peace of mind, and for my daughters. I'm sure he thinks he is the winner.

As for the issues he had with Len, I think it is a form of jealousy.  Len was an alcoholic but had 16 years of sobriety behind him. He followed the steps closely and did make amends for many things he had done. He was strong willed but as my brother pointed out to me one time, never in a malicious way. He did so much for so many people in the years we were together including taking on anything that my parents needed since my brother found it to be an inconvenience to him. He wasn't a perfect person but he tried hard to do the right thing. My dad was a jerk to him but he never let it bother him and would run over in the middle of the night if he had a fall to make sure he was alright and get him back into bed.

I so understand your need to not be vulnerable to other people's cruelness. I now only surround myself with people who make me feel good and support me. I have learned so much about this since my losses and although I don't have a large circle of people around me, I have people that I can trust wholeheartedly. They mean so much to me. In time I may let some of the people who caused me pain back into my life but that will be when I am healed and able to deal better with their insensitivity. I am a survivor and it sounds like you are too.

Hugs,
Tracie
Report this post      
 
09 Feb 2014, 6:17 PM

ty
Report this post      


Our Partners
Asked and Answered
Asked and Answered

Find out what Canadians
are asking

Ask a Professional
Ask a Professional

Our team of experts answers
your questions about
life-threatening illness and loss.

Just want to talk?
Just want to talk?

Join the Discussion
Forums

Books, Links, and More
Books, Links, and More

Recommended by our team

Programs and Services
Programs and Services

Find local, regional,
and national services