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Reply by NatR
20 Jun 2012, 1:23 PM

Brayden - a great piece of advice!  Bizzy remain steadfast in your care and support of your husband.  Do not take his anger personally, Brayden is right - you will look back and feel good about your part in this situation.  Be strong, you are amazing!

Best wishes and a hug
NatR 
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29 Jun 2012, 8:27 PM

Hi Bizzy,

We haven't heard from you in a while. How are you? While I don't contribute often on the forums, I read every post and worry like a mother hen when I don't hear from someone for a while. Did you see that we have quite a few threads started on the forums. You may be interested to Pooka on the thread she started a few days ago called So glad I found you all. She too is caring for her husband who has advanced cancer and would like to share with someone in a similar situation. I'm also going to tell her about this thread.

If you have a minute, we'd love to hear how you're doing.
Colleen      
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Reply by Bizzy
05 Jul 2012, 6:04 AM

Oh my gawd!!  I am such a loser!!!!!! My wrist is still numb from the painfully tight handcuffs I was in. I hope the feeling in my wrist will come back.  I nearly got taken to jail. I got a ride in the back of a police car handcuffed and then thankfully taken to my mothers who took custody of me. I am so sorry  and shocked and ashamed and scared out of my mind. I've been trying to put myself back together and reaching out for more help.  I was so stupid to not reach out for more help. My counselor told me I had compassionate fatigue but I didn't want to believe it. He showed me how I was at risk when I blame myself and try to pretend the situation is not as seriously painful as it is.  I had no idea I was going to crash and burn.


A couple weeks ago I drank without my partner knowing.  It felt so good to numb the emotional pain.  . A few days later I drank again hiding the drinks from my partner again.  The next week I drank again but this time a lot more.  My partner tried to take away my drink and physically restrained me.  I got so angry that he was holding my arms from drinking more and I started blacking out after that. His father came over and tried to reason with me.  I've been holding all that anger in and apparently I am told it came out.  I am told I pushed his father down and called him an old man and spit at him. I remember being so angry in the back of the police car and banging my head against the bars thinking how could I be the one who was in trouble when I have been suffering all these months. Also, I'm the one who stupidly called the police because my partner was restraining me.  I"m the one who asked that my partners father come over because the situation was getting out of hand.  


That was 3 days ago. 


Honestly, I'm so darned lucky I didn't get thrown in jail. My partner tells me he talked the policeman into taking me to my mothers instead of taking me to jail.  All these months of negative pain, sorrow, grief, anger, exhaustion, frustration, forced patience, fear and all those other awful feelings that come with caregiving and end of life events all came bursting out without inhibition.  To make things even more strange my mother offered me more to drink and then asked me if I wanted to commit suicide with her and that she had the means to do it. It freaked me out. I reached out to my sister who I hadn't talked to in about 6 months and she began telling me about how her ex boyfriend was involved in a murder that she witnessed. I thought to myself what is going on?!!  Its all so bizarre. Even tv shows don't get this weird. I have to be careful about reaching out to family for help.  I don't know them well enough even when I thought I did. 


I've reached out for more help and seen another counselor today since my regular counselor is on holidays. I joined a "cancer clubhouse" yesterday that I can go to every day if I need to  and am waiting for a call back for a counselor who specializes in the type of cancer my partner has. I've been keeping close contact with one of girlfriends. I know I've burned out  and somehow I've got to pull myself back together fast.


I went today with my partner to the cancer clinic. I hate that place. He drove home but he was falling asleep at the wheel and pulling at his shoulder belt like he was dreaming.  I was scared and I mentioned this to him and he said he was okay just a little tired, probably just the fumes.  Something was wrong.  I was so angry at him.  I told him I should drive but he wouldn't let me.  I didn't know what to do. We got home safely. It was so hard to go back to his constant complaining and trying to be patient and understanding...so hard to have to suppress my own hurt and to continue to hold in the fear and grief and awkwardness of what happened.  He mentioned that the neighbours had complained to the caretaker about the other night. I was so deeply ashamed and embarrassed and frustrated.  I needed his understanding and forgiveness. I told him I had to go and I've left.  I feel so unappreciated and misunderstood.  I have given of myself as best as I could and I failed miserably.  I don't know if I will go back.  I don't know if he'll take me back. I feel like such a two headed freak. 


I feel so scared for him.  I think he's getting sicker with the way he was driving today and the way he was struggling to breathe at night. I don't know if things can ever go back to the way they were. Things were a lot better before this happened.   I'm so desperately heartsick this evening.

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Reply by Cath1
05 Jul 2012, 1:26 PM

Dear Bizzy:

I was fast asleep at the time you were pouring your heart out in pain in the wee hours of this morning and I so wish I had been awake to be with you in the virtual realm as you wrote! I am astounded by your honesty in describing your feelings and the dramatic events of the recent past. Thankfully you will be seeing a counsellor today and I suggest you be as frank and forthright with that person as you are here with us because you need to unload all of this pain with which you are dealing with a professional who knows precisely how to advise you. You might want to print out your posts to take with you to help you focus on your feelings and concerns.

I cannot advise you in a professional way, Bizzy nor would I want to as I am your friend not your therapist. I want you to know, as your friend, that I believe you have made the right move by not being with your partner in these tense moments of uncertainty. Good for you, Bizzy in seeing that you need first to protect yourself and to find a safe place to unravel your feelings and decide what you can handle in the future in terms of your relationship. Your partner and you are both suffering but each in a very different way. If your efforts to care for him are not helping despite your sincerest commitment, then you may have to accept that he needs help of another kind from other people. Please never forget that your first obligation is to yourself!

My late mother had a mental illness - bi-polar disorder - and she often experienced very strange thoughts about others and events. Her emotions were very erratic at times which was confusing and hurtful to me, especially in my youth. Reading your post I felt the familiar feelings of discomfort when my mother had an episode of her illness and I recall how heartbreaking it was at times to try and get through to her rationally and could not. I cannot and will not try to diagnose your partner or your family members or you with having a mental illness, but please consider that there may be something going on mentally and emotionally in this scenario you describe that would benefit greatly from deeper exploration and professional intervention. You are ultra courageous for seeking help today with your counsellor and I hope you will have the stamina and the strength to explain your deep need for outside help so that your inside healing can begin! I believe in you Bizzy, in your good and kind heart that is breaking today. I know because I have seen it with my own eyes how the right kind of professional help in delicate and dramatic situations can make all the difference.

My cousin passed away in June and she had a mental illness and she tried to treat it by self-medicating with alcohol. She engaged in this self-destructive behaviour for years and her closest family enabled her choices because they did not see another way. There is ALWAYS a better way in every situation to deal with whatever life tosses at us. Sometimes that means that to be healthy and whole we have to be apart from those we love and think we need most. I'm so sorry that your Mom let you down by making that very sad suggestion to you about suicide, but obviously, even in your distressed state of mind you had the presence of mind and spirit to know that it is not the right choice. I see that you have been trying for so long alone to struggle against the tide, against the odds and against your own best counsel as you've cared for your partner. Compassion fatigue indeed. Today Bizzy it is time to turn all the compassion you feel for others into yourself and accept whatever help is offered by others.

Please update us when you get a chance and know in the meantime we are all in your corner rooting for you and believing that tomorrow and all your tomorrows awaiting you will be better and brighter days! Stay strong and hopeful - hope is your best friend right now and you have many friends here at Virtual Hospice who know without a doubt that hope is a virtue that we all must befriend!

With affection -hugs- xo     
Cath1
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Reply by NatR
05 Jul 2012, 1:50 PM

Dear Bizzy,

I agree with all that Cath1 said and recommended!

Please focus on your own needs right now!  You are as important as your partner who is of course so unwell.

But your cry for help and support is evident.  Please seek that out for yourself.  As much as we all care - you need face to face support.  I am rooting for you;)

You are in my thoughts today
Sincerely,
NatR 
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Reply by Tian
05 Jul 2012, 2:25 PM

You are a winner Bizzy. We all make mistakes and with the enormous pressure you have been under it's understandable that cracks have appeared. It takes real courage to admit weakness and plead for help as you have. Get the help you need. You have already shown us that you have the strength to get back on track.
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05 Jul 2012, 3:42 PM

Dear Bizzy,

I'm so sorry to hear what you have been going through, especially these last 3 days. From the bottom of my heart, I want to thank you for being so honest and open on this forum and reaching out to us. 

Cath's response was absolutely brilliant. I'm so glad that Cath, NatR and Tian have sent you their support. I encourage you to stick to your resolution to get professional help. I know that you have had good and not so good experiences with professional help throughout this journey. Be patient with yourself and don't give up until you find the help and support YOU need. 

The Cancer Clubhouse is a good place to start as well as the counsellor you are seeing today. If you have any questions about services in your area or about how to communicate with health professionals don't hesitate to submit a question to our professional team here at Virtual Hospice. Simply use your same login info and follow the instructions on Ask a Professional

Please let us know how today goes. I'll be thinking of you. Take care of yourself Bizzy.
Colleen
 
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Reply by Brayden
05 Jul 2012, 6:26 PM

Dear Bizzy,
I can only agree with what has already been said, but I want you to know that we are all here to support you and not judge you. I forgive you for not having made the best decisions lately. Having said that, there is no way that you can move forward on your own strength. You appear to realize that and know that professional help is to only way out.
Hope that you will continue with your honest feedback.
Brayden
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Reply by Cath1
06 Jul 2012, 5:23 AM

Hi Bizzy:

I'm up very late tonight and you are on my mind as I think of the many traumatic memories of the past few days that must be occupying yours. I so hope you were able to make contact with your counsellor today, and if not today that you will get connected soon. It's so unfortunate that your regular counsellor happens to be away on vacation at this particular time as it seems you have an established trust and mutual rapport. Remember to keep everything in perspective as holidays go by quickly and soon your counsellor will return.

It breaks my heart that you are feeling so shamed about your behaviour. Shame is the absolute worst emotion and if we are all honest we each have experienced its piercing prick to our hearts and our consciences. You are no different than any other human being. Sometimes life gets that intense and it just makes us say and do the most outrageous things - and often things that we know deep down are not reflections of our true character. I hope you will focus on how extraordinary it is that you possess such a keen insight about yourself and your situation. I can see your intelligence and sweet and caring heart shine through every word you write. Try not to dwell on regrets about things you cannot change or undo. It is much more productive to focus on all the many things you have done well since caring for your partner since your shared nightmare began. When you wrote about "forced patience" I could relate so well and I recognized in you what I too have felt while caring for others at times. But it is not always forced patience that claims us as these more negative manifestions of caregiver burnout are transient and I see these type of feelings as strong signals to step away and regroup.

You need a break from all the heartache you have been carrying around with you for so long. I hope you will find that others help you to regain your composure and that you will allow them and us here to help you carry some of the emotional burden. You are not alone Bizzy and you will get through this terrible time in your life! It's amazing, I always remind myself, what a difference a day can make - it's the truth and we need this truthful reminder often as life sometimes in an instant erases this truth from our memories - and yet we know from past experience and acquired wisdom that it is true.

You need sleep and food and hugs and understanding and I know you will find your way back to your natural optimism and self-confidence again soon. Wishing you a peaceful night and hoping to hear from you again soon. I loved what Tian said to you Bizzy and I believe he speaks for us all - "You are a winner!" Never lose sight of this fact!

Until the next time we connect, please know that you and your partner are in our prayers and our hearts. Your answers will come - trust yourself to recognize them when they appear!

With affection -hugs- xo
Cath1  


        
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Reply by Bizzy
07 Jul 2012, 8:18 AM

What a journey.  My deep gratitude goes out to each and every one of you for the unfailing support you have given me through your wisdom, compassion and undeserved kindness.  Truly each one of you have made this site a powerful and sacred place.


At a time when I was most vulnerable and weak, a time when I thought my world had ended, you were there.  Your words gave and continue to give me strength, hope, direction and courage. I have learned so much this past week.   I have experienced the necessity and power of forgiveness. I realize that all the tender words in our language are not just there as polite niceties but are actually essential for us as human beings. In practice they have the ability to transport a person out of the depths of hell and bring us back to a place of peace and stability. Communication, caring, kindness, community, compassion, reconciliation, courage, patience....the list goes on and on. I think I'm beginning to understand what is meant by spirituality.


I had to face my partner's father after what happened.  I was so scared.   I looked at him in the eyes and said, " I am so sorry" and hid my face in my hands. I couldn't say anymore.  He simply took my hand and said, "It's just the circumstances, but thanks for the thought". He held my hand and we just walked for awhile.  What a wise, gracious, classy human being! I am sooooooo lucky to have him in my life.  Just as I am so lucky to have my partner in my life.  They have and continue to bring a steadiness and peace into my life even after I upset the applecart.


I'm so blessed to have the community of help around me. I've reached out to so many places this week and all were there in some way to help me get back on my feet. I realize it is vitally essential that I stay connected to the community because as soon as I begin to feel I am alone I lose my balance. I find such comfort and strength in "being in the same terrible boat" as every one else who is facing the horrors of this  profound boat ride.

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