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Reply by Missy2012
04 Mar 2013, 10:36 PM

Dear Pudding, 

I am so sorry to hear that you lost your mom. I am glad she is at peace but like Colleen said, it's never easy to lose your mother. Sorry I  not able to write more now but I though it important send you & your family my condolences.

Missy 
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Reply by Missy2012
04 Mar 2013, 10:45 PM

Hello Mark99,

The last bit of your post is worrying me so much that I felt compelled to log on & to ensure that you are ok.. You are merely someone who is grieving the passing of a dear spouse. Your loyalty doesn't make you a loser. Is hope you are well...take care of yourself. 

I will try to write more later.

Missy 
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Reply by Mark99
05 Mar 2013, 1:23 AM

Missy thank you for checking I am fine. Just need to lick my wounds and understand that no one knows or understandings what I had and have. I can't doubt the caregiver I was and what my heart knows. 
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05 Mar 2013, 2:07 AM

Dear Mark,

I can hear your anger, which I suspect is standing in for a mixture of frustration, confusion and sadness. Our memory can so easily shade our truths as we remember and reconstruct what was and work to move forward. I'm not sure if I'm articulating what you are feeling, but that is what I pulled out of your message.

I wonder if this is a discussion that you'd like to have with Jimmie and the others on the thread:

Caregivers: Can we talk honestly?  

You may even find it cathartic to read your own messages in that thread.
Thanks for responding so quickly to Missy's note to you. Good to know that you're in principle "okay" while ruminating and licking wounds. Take care of yourself.

Thanks Missy for taking the time to fire off quick notes to Pudding and Mark. I'm sure it means a lot to them, but it is also good to see that we have such a responsive community when bells go off.
Colleen 
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Reply by Mark99
05 Mar 2013, 3:24 AM

I am not angry. It is more disapointment with facing a reality from those who do not live in my world or understand. And that disapointment is directed at me for believing my motivation and goals have meaning beyond me and my dog. 

I've had my say on this topic and need to focus on my survival and finding a path. I remain committed to VH and all it does and means to so many of us.  
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Reply by eKIM
05 Mar 2013, 9:49 PM

Hi Mark, this is eKim.  I am a hospice volunteer and a member of Virtual Hospice.  I have not experienced a loss such as yours, and therefore I realize that I cannot fully empathize with you – not having “walked in your shoes”.  However, your story touched me and I want to reach out to you with compassion.

The following is the basis for my understanding of the love between two people:

I met my wife when she was a teenager 43 years ago.  I love her more now than when I first met her.  But I have to admit, that I still don’t understand love.  The closest I can come is this: “Love is like the wind.  You cannot see it, or understand it, but you can feel it and you know when it is there.”

I will start with the last thing you wrote, “Sorry to sound like a loser.”  In my view, Mark, you are a winner.  You love your Donna from the day you met her until the day she died, and you will love her for eternity. 

I believe that the greatest test that we experience throughout our lives, is the test of love.  As far as I can see, Mark, you passed life’s greatest test with a perfect 4.0 grade point average, an A+.  That’s all you need to be a winner for the rest of your life. 

Anyone who knows you should know this, and believe this to be true.  Those are the people that you should surround yourself with – people that respect you, nurture you and encourage you.  Surround yourself with people who can see, and love your true spirit, just as you love Donna’s spirit.  When you encounter people whose spirits are not aligned with yours, simply wish them well, and move on without them.

The reason that I wrote the above is in response to your comment, “But to hear someone say her husband who I like and is a sweet sweet guy tell her that while Donna was alive he didn’t want to be around her or me.”  I hope that this comment wasn’t the thing that caused you such pain and such doubts.  That comment seems just plain thoughtless to me, especially if it caused you to write:

“There are moments in this grieving process and healing you face something so painful that you recoil in horror at all your hard work and question the reality of the memory you’ve built.  This makes me wonder in all the grieving I have been doing and trying to, I guess, rehab Donna’s image is just that not real but a public relations argument.  I doubt my motivation and myself and am angry with myself for loving Donna.’

I hear a great truth in your next statement, “Not sure that last statement is valid.”  That statement simply shows the depth of the confusion you feel in your grief.”  Grief, in this case, (through confusion) is a thief that is trying to rob you of all the good that you have done and the great love that you have.  Do not let this happen, Mark.

You say, “I was there I cared and tried to make her life better in the face of her knowing her death was coming.”  In saying this, Mark you showed Donna, yourself and the world, all anyone needs to know about the love you have for Donna.  To know and understand you, people need to search no further.  I have great admiration for you, Mark.  You set an outstanding example.  Just understand that doubts and confusion are simply facets of the grieving process.

When it comes to defining love, perhaps Thomas Merton put it most eloquently when he said, “The plain truth is this: love is not a matter of getting what you want.  Quite the contrary.  The insistence on always having what you want, on always being satisfied, on always being fulfilled, makes love impossible.  Love is not a deal, it is a sacrifice.”  Your love for Donna, was certainly a true, pure love of great sacrifice, Mark. 

You said, in your posting:  “In fact it is more to the point she had a very strong personality and was not universally loved. I loved her and saw her truth.” 

What is wrong with a strong personality?  Nothing.  My wife has a strong personality and our two adult daughters have a strong personality – that’s how we raised them.  Men who have “strong” personalities are admired.  So too should women be admired.  A “strong” woman is a gift and a blessing for any man.  And besides, it takes a strong man to love and/or be married to a strong woman. 

You write, “If anything, I would say the difficulty I face is trying to find my place in the world both professionally and personally, to do something with my life and be something or someone to others.”  

Mark, I don’t believe there is a quick fix to this “difficulty”.  There is no timetable for you to follow.  For some people it happens quickly, for others it takes more time. 

The following statement I honestly believe is true:  “If you do believe that there is a another special role for you in life and if you remain patient and trusting, and NEVER stop searching, that, when the time is right, it will unfold sweetly for you.”  It could be a mission.  It could be a person.  You will recognize it when it happens.  Many people never find these “hidden gems of life”, either because a) they don’t seek them out b) become discouraged and stop seeking or c) do not recognize these gifts or blessings when they arrive.

I can say this from experience.  I had a life-changing occurrence that set me on a path of discovery about my role in this life.  Other that my marriage and family, this gift has turned out to be the most important thing in my life.  I refer to my hospice volunteer work.  What is in store for you, Mark, will be unique to you and will give your life great meaning.  Believing and trusting in this, will bring you a life of peace.

When you said, Mark, “I loved her and saw her truth.”, I thought of my own wife.  I love her and see her truth.  This is where I connect the most with you, Mark.  If you want to share your story, and what you mean by that statement, you have a compassionate audience.  I love the anonymity of Virtual Hospice – it truly allows for a cathartic outlet, in the name of healing.  And the compassion of supportive “others” who will listen to your story without judgment.

The other thing you could do, is to recall all the happy times that you and Donna shared, right from day one.  Perhaps start a remembrance journal. 

Whatever it is that you consistently focus on, will become your new reality.  Focus on the positive, Mark.  Focus on the happy and joyous things.  Discover that which brings you joy, peace and love and move forward with this mindset.  And always remember this: “Even in those times when you fall forward, flat on your face, remember, you are still moving forward.

I wish you peace, Mark.   – eKim

Ps  Please forgive me if I am “butting in”.  As I said, I have not shared your experience.  I have no professional training in this field.  My motivation theme comes from a great quote from “A Streetcar Named Desire”, in which Blanche Dubois says, “I have always depended on the kindness of strangers.”  This has happened so often in my life that it has become part of my belief system, and so, I simply try to “Pass It Forward”.

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Reply by Mark99
06 Mar 2013, 12:58 AM

eKim
An amazing note that went directly to the truth and reality of my current world. It is amazing how from a short messive one can see so deeply into another and create something that I will return to frequently as a tool to learn and reflect upon. I wrote to my counselor at CancerCare who in no uncertain terms said the following: 

I am sorry about the feedback that you are getting from people at thistime about Donna, you and Donna. She had a very strong personality and
that might be very hard to take sometimes.  I am sure that it is painful
to hear and makes you question your role as her caregiver. Don't. Know
one lived with you and no one knows what you wanted to do for Donna to
make her time here count for something. Do not doubt yourself and what
you did for Donna.  Not everyone is made to be a caregiver and will
handle situations differently.


Thank you for your kindness and support. I value VH and how you all manage those who come to you to help others and find help. It is a true community. I will not doubt what I did and how I did I guess I want to give more to Donna but will give more to those who need support. 
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23 Mar 2013, 4:53 PM

Dear Pudding, Missy2012, Mark99 and everyone else sharing on this thread:

A new member just joined our community. Sad1 would like to connect with people who can relate to her situation as she cares for her mother who is passing away. I hope you will welcome her to the community and let her know she is not alone.

You can link to her post here: How to deal? - my mother is dying

Thank you!
With gratitude,
Colleen
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Reply by KathCull_admin
26 Apr 2014, 10:46 PM

Hello everyone,
I have been working with Colleen since last November - and have appreciated the words, experience and support I see extended on the forum. Thank you for what it means to me.

Two new members have joined our community since last night. If you have the opportunity to go to the thread(s) and respond as you are able - I am sure it would mean a lot to both lindsaymarie Failing Friendships   and beanie722   I lost my friend a month ago

Thanks so much
Katherine
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