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Reply by marstin
09 Mar 2014, 8:48 PM

Hi Melinda,

This definitely is a safe place to vent. It also gives us the ability to look back at some of the things we have written and understand how much pain we were in at different times. It's like a diary but with feedback and support.

Living with an alcoholic is not an easy thing. It's funny, I was digging through a drawer the other day and came across a lighter that I had bought for Len years ago. Inscripted on it was the Serenity prayer. It really made me think about my own life at this point in time. It also brought back the memory of what I believe made Len give up the bottle. We had taken our two little girls in for shots that afternoon and then he took off to the bar. I put them to bed and then all hell broke loose. Suddenly they were both crying and were somewhat paralyzed and couldn't even get out of bed to go to the bathroom so they wet their beds. I was running back and forth between their rooms trying to soothe them and change their beds. I called the bar and they pretended that he wasn't there and I flipped out. He came home a short time later and I totally freaked out on him. He was so shaken by what was going on and seeing the distress that his little ones were in, that I think it was the turning point for him. He never took another drink. Maybe you blowing up at Stan was a good thing. It may not make him give up the drinking at this point but at least you got his attention. It can be such a love/hate relationship even when they do get sober. The personality doesn't really change much and I think that is the hardest thing to have to accept. I don't know how many times I nearly walked out the door over the years.

When Len was diagnosed, I went into a spiral of depression and fear. All of the 'what if's' kept going through my mind. I always used to say 'What if something were to happen to you? What would I do?'. He would laugh and say 'Don't let anything happen to me then'. When we found out that he was terminal, I began to mentally fall apart. Two kids, being unemployed for 18 years (at that point) and huge debts incurred because he'd been out of work so much in the previous two years. What I found was a way to push that aside and just devote myself to him and his care. I think I loved him more at that point than I ever had. I found a strange acceptance of what was happening and drifted along until he passed away. I was then thrown into taking care of my mom going in the hospital the day after he passed and just kept drifting through that. I didn't lose it until soon after my mom passed away and my brother took his wife into her house and cleared her bedroom out without my knowledge. Then I crashed. I have fought hard to keep my sanity since then and stay upright for the sake of my daughters without much support. This forum has kept me from losing my mind.

The income tax issue I guess will be what it will be. There is such a thing as taxpayer relief which I'm hoping I qualify for. It's not like he left me with much other than debts and my income is so low, widow's pension, that I'm hoping they will at least waive the penalties and interest on what he owed. I know that it woke up his younger brother who I pressured to fix his own issues so that if anything were to happen to him, his wife wouldn't end up like me. He has been taking all of the necessary steps to remedy that.

I hope that things go well with the chemo doctor on Thursday. I guess if there is a bright side to Stan's drinking, it's that at least he is still ingesting calories in his beer and hasn't totally stopped taking in anything. Not a very bright side for you as you wait and wonder what will happen and when.

Hugs to you,
Tracie
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Reply by Melinda
12 Mar 2014, 10:38 PM

HI Tracie  I'm here because I need to vent. He has been absolutely awful the past couple of days. The "buddy" is here all the time and finally left this afternoon. I went down to spend some time with him and soon returned upstairs. He does not want to go on the trip to see the chemo Doctor. Its a two hour trip both ways so can be tiring for both of us. I am in tears from the way he is speaking to me and taking out all his anger and frustration on me.
Did you have this happen to you and what do I do about it? Really feel I don't deserve all the abuse and its maddening that he is doing it! grrrrrrrrr  I hate this roller coaster and want to get off!
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Reply by marstin
12 Mar 2014, 11:16 PM

Hi Melinda,

You poor girl. What is his reasoning for not going to see the chemo doctor? Sure he's frustrated by it all but it's not your fault that things are the way they are. Has he had any changes in medication? Len had his moments when there was no reasoning with him and it hurt so much. You're doing the best you can under the circumstances and it must frustrate you so badly that he won't even make the effort to try to help himself. I wonder what the conversations are like between him and his friend. Maybe there has been something there that ticked him off so that he's taking it out on you. Also, it seems as they get sicker, that the filter comes off and they just speak whatever goes through their minds without a care as to who gets hurt.

You need to take some time away and breathe. My reaction used to always be to go quiet and ignore Len. In time he would figure out that he had pushed me to the limit and that he had to reach out to me because I wasn't backing down. This road is not an easy one and yes, there is often feelings of resentment.

I am so glad that you thought to come here to vent. Going it alone is sometimes unbearable. I'm here for you my friend and willing to listen to whatever you want to spill it out.

Sending you huge hugs,
Tracie
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Reply by Melinda
13 Mar 2014, 1:11 AM

Hey Tracie!
Thanks so much for making me feel better! Feels so good to reach out to someone who understands. I have no idea what his reasoning is?? I know its a long drive for a 5 minute appointment..but it is what it is! And he is always upset before the appointments because he dreads getting bad news. But he has always been able to talk about this with me.
The Buddy knows I don't like him and Stan and I have talked about him stirring up trouble between us with his remarks to Stan when my back is turned....but its up to Stan to stick up for me and I find he is not doing that! He will shout and scream at me because I keep "changing my mind" about the basement project (not true) and he hates it when I point out mistakes that Buddy has made. I have to learn and keep my mouth shut
and remember it can all be changed after. But its so maddening to see all this going on (and of course as buddy gets drunker the work is awful). Have to learn to "Be Quiet"!! I honestly don't know how you did it Tracie!! I could kill this "Buddy"!
Yes, I just stay away from Stan and ignore him also. Spent a quiet evening reading...had a nice bubble bath and will go to bed soon. Tomorrow is another day...I will let you know how the appointment went.  Thanks again for being there for me.
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Reply by marstin
14 Mar 2014, 12:33 AM

Hi Melinda,

Hmm! Maybe you hit the nail on the head with the comment about how he is always upset because he dreads getting bad news. The fact that he is sabbotaging himself probably brings the guilt out in him too so he hates to be reminded of it when he goes to his appointment. It all makes sense but doesn't mean that you should have to be hurt by how lousy he feels about himself. He is so fortunate to have you there caring for him.

How did things go today? Hopefully he went to the appointment.  That buddy of his sounds like a real piece of work. He should have some respect for you as he is in Your home too. I can imagine how tough it is not to just tell him what you think of him and his drunken, sloppy ways. I guess I was lucky in some ways that the buddy of Len's started really messing up just after Len passed away. Although I do remember at one point that him and I went around the house to see what work needed to be done and he asked me if I really wanted to spend the money (he kept trying to push the budget up) because I would probably have to sell the place and it would be a tear down. Len overheard him and blew up. He said to talk to him about the reasoning and not me. I think he was angry that the guy already had him dead and gone. I have a huge problem with lack of respect. I don't ask for much but that is one thing I do demand of people and expect the same from myself for others.

I hope that things are calmer for you tonight and that maybe you can catch another bubble bath and yell 'Calgon take me away'.

Hugs,
Tracie
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Reply by Melinda
14 Mar 2014, 12:33 PM

Hi Tracie
It was a very quiet two hour trip. The chemo Doctor did tell Stan that the chemo is not working as he hoped it would. Stan argued that he was sure it was working...the lumps felt flatter and were going away!! Doctor just shook his head...then repeated to Stan that what he had was going to kill him and that there was no cure.  That it was all about "quality of life" now for the time he has left. Every time Stan hears this speech he tunes it out...The Doctor is going to try Stan with a  chemo pill for 3 weeks and then another appointment with him.
So now Stan is quite content with that...its going to be his new savior!! Rose coloured glasses firmly on! And so be it...who am I to break them.  Interesting thought you had about Stan and the way he is feeling about himself... I totally agree! And I know he is trying to have company in his misery and trying to make me feel as bad as he does. I usually don't fall for this and just walk away...but every once in awhile it gets to me! Called being human lol!
Anyway the Buddy is your typical alcholic (oh did I mention Stan is alcholic too lol!). He will hang around as long as Stan is supplying the booze and smokes and as soon as that is gone he will be gone also. Its all about the alcohol and nothing else...they really do turn a blind eye to all the pain and misery they cause because Nothing You Do will every stop them from drinking. Period. I learned years ago to just do my own thing and as I mentioned was getting ready to leave when he got sick. So even though Stan should not be drinking he will..because he can't stop now..I always said he will litterly die with beer bottle in hand.
Good for Len for quitting drinking!! I cannot tell you how fortunate you were that he did ...at least it gave you some quality time at the end. I am not going to get that and that is sad....but it is what it is. Okay quess I better get off the computer and get ready for work!
Thanks again Tracie! I think I will eventually print off all this stuff and make a diary of it..and read it after he is gone. Wondering if it will help? I remember keeping a journal of all my frustation when I was in Alanon...it was so interesting to read it years later. It kind of makes you step outside of yourself and look at the situation in a different light...and shake your head at all the pain you felt trying to "change the drinking"!!! Re-reading that stuff make me change my life and start to do my own thing and eventually plan to leave him.
Crap...gotta go!  Chat soon! Melinda X0
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Reply by marstin
14 Mar 2014, 3:24 PM

Hi Melinda,

At least you managed to get Stan to his appointment. I can almost picture him trying make a deal with the doctor and the doctor having the sensitivity to allow him to take chemo pills even with the knowledge that they won't help.

Well, they do say that misery loves company and it certainly sounds like Stan has found his partner for that. When he's with his friend he can probably push away his fears and just do what he's been doing all along and drink to keep himself from facing reality. Although he may be acting like he believes he will beat this, I think deep inside he knows the truth and is very scared. I can't imagine being in that position and hope that I never have to experience it, but how does a person accept that reality? I know for Len that he kept going to his AA meetings for as long as he was able to but towards the end he stopped praying. I don't know if he accepted the truth or that he was angry inside at what felt like a betrayal.

I think that you already know that you have to take care of yourself as you travel the road. In time he will quit drinking and smoking and it may take him at that point or you will be in the position of caring for him in his final days. Have you given any thought to what you might do if he becomes unable to do anything for himself? Would you care for him at home or place him in the hospital? We cared for Len in our home as he wanted but I also made the decision that if it got to where I couldn't handle it anymore that I would surrender him to the care of professionals. Either decision is difficult but I still see the look on my youngest's face when she went to give Len his medication and found that he had passed. I'm sure it haunts her to this day. I remember running in and frantically trying to make him wake up and knowing that he was gone. I guess the question is, can you handle that? It's a difficult thing to think of but a necessary one.

Your idea of a printing out what you have written about this journey is a great idea. I said to my half sister one day that I would print out all of the emails that we exchanged after my mom passed away (we reconnected just after she passed) so that I could look back on it and realize how much my life changed. My daughters and I have often talked about writing a book about the journey with Len, losing my mom so soon after and the aftermath. I used to always write journals and when I look back on them I can see how differently I see things now. It's pretty amazing stuff. As I clear things out of my house I keep coming across notes written by me to Len or from him to me in his drinking days and it amazes me how it can still hurt but also reminds me that things weren't always sunshine and flowers.

You're a good person Melinda and don't lose sight of that. Do nice things for yourself and always take time to see the little miracles in life that surround you. Yesterday I took such a delight in seeing the crocuses in my garden flowering. Two years ago I would have taken that for granted but have found that the smallest things can put a smile on my face when life feels so heavy. I must admit that I like this new side of myself and don't ever want to lose it.

Hugs,
Tracie
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Reply by Melinda
15 Mar 2014, 4:19 PM

Crocuses....really!!!!! We still have three feet of snow on the ground and no sign of spring..its actually snowing right now...so you are a lucky girl!! I bought a couple of new gardening books and have been pouring over them. We live in zone 3 to 4 up here so I have to be careful what I plan for. (but I can dream!!)
So I don't know anything about these "chemo" pills Stan is taking. He started them yesterday with no side affects (nausea) so that makes me wonder if they are even working?
I haven't had a chance to talk to my sister yet (retired, who used to work in the cancer clinic I take Stan too). She can tell me what they are for and what to expect. I did find out on this wonderful site that Stan has "Chronic Ulcerating Malignant Skin Lesions" and that these usually occur about 6 to 8 months before death. His started in September...so...according to the time line he has about 2 months left. The public health nurses have been coming every day since September to clean and dress the wound. And today we discovered the beginning of another hole just in front of the one he has already. The existing hole is about 1/2 inch deep behind his ear and about 1 inch long and 1/2 inch across. We can now see muscle and the concern is what happens when bone is exposed.
Poor Stan, he is being eaten alive..just awful! And he is getting alot of infections...the nurses are keeping him going by keeping it clean, etc...though some days the smell is awful from the wound. The Doctor is now alternating antibiotics to try and prevent immunities to them. So just when you think things cannot get worse, they do...
Stan wishes to die at home. I think we all do...and perhaps I will be able to do it for awhile...I just don't know. He says he does not want to go into palliative care..because you die there (really!)  I don't think I could do it at home. I think at the end I would hospitalize him because I am not sure he will really be aware at the time..Len was fortunate to get his wish to die at home. Even though your poor daughter got an awful shock...that sucks!
I have talked to my boss and they know the situation. I will be able to get the time off work with no problem. You know me...try to plan and cover all my bases!! It sounds like you had alot of help from your daughters which is great. Here, it will be just me...with a nurse dropping in once a day. I am the "wild card" in this situation..have no idea if I can take care of him!!! Time will tell...I do have a wonderful nurse neighbour who is more than willing to help near the end if I need her...and lots of sweet caring friends who will help too. I am so blessed! My daughter lives a two hour drive away and works full time as a nurse. (Yes, I am surrounded by nurses!!!) So she will help when she has time. But I am so afraid of the end. I don't know how you coped with the care and death waiting in the wings...poor Tracie!
It must have been just awful and yet you would not want to give up trying to help him!
I probably will be okay.... sorry rambling this morning....I'm sure there will be lots of rambling from me as time goes on. Tracie I cannot thank you enough for your support and listening!
It's comforting to chat with someone who has gone through it and understands! MelindaX0
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Reply by marstin
16 Mar 2014, 3:05 AM

Hi Melinda,

There sure has been a lot of snow this year. So many people I talk to are very sick of winter. Although it's pouring rain here today at least we don't have to shovel it but it's certainly depressing.

It does seem strange that the chemo pills don't appear to be causing any side affects. It may just be that he has run the course on chemo. If nothing else, I guess the doctor had the sensitivity to allow Stan to hope that he still might beat this.

Those skin lesions must be a tough thing to deal with. About 5 years ago I had a lesion open up on the back of my ankle due to blocked arteries in my legs. Before that happened, they had determined that I had to go in and have a stent put in my one leg. The surgeon refused to do it because I was a smoker. As the specialist searched to find another one to do the procedure, the lesion opened up. It was so ugly and painful that I wouldn't even let Len see it. Finally they set me up for the procedure and I ended up with the same stupid surgeon who this time, performed it. I now have a really large ugly scar on the back of my ankle.

I think you're right that we all would prefer to pass away at home. I know when my mom was near the end that we discussed trying to get her home to her own bed.
As much as I knew that she would want that, I also was well aware of the amount of work that it entailed and that she was so weak that I don't think she could have handled being transported there. We managed about a week before she passed to get her outside into the sunshine but even that was a huge feat and very tough on her. As time goes on you will be able to judge just how much you can handle. It also depends on how strong Stan is. During the time that Len was ill and just after, I watched two other people just suddenly pass away even though they had been walking and talking earlier that day. There's just no way to know. I guess that's a good thing. You certainly do seem to be surrounded by a lot of nurses. At least you can hopefully get some answers from them on different issues.

As I was writing to you the other day I started remembering how things were in our early years.Len's best friend lived with us and all they did was drink all day. After I had our first child I had to return to work soon after because Len wasn't working and leave our tiny baby in their care. I was angry, resentful and worried every day about our little one. Finally, the guy moved out and I was relieved.They remained good friends even after Len quit drinking and against our better judgement this guy married Len's daughter. He did quit drinking and they had a little girl and all was good for awhile. The daughter kicked him out after taking up with a younger guy and he disappeared from our lives. We tried for years to find him with no success. We thought maybe he had drank himself to death or something worse had happened to him. When Len was diagnosed, I tried everything to find this guy and ran into dead ends everywhere. Last night my phone rang and when I looked at it to see who was calling, I nearly passed out. It was him! I nearly fell apart as I told him that he was too late. We spent an hour talking. He told me that he has colon cancer. He asked about his ex-wife and daughter and I told him that her and I had been looking for him too. Today they reconnected and she said that she will stand by him as he goes through his treatment. What a strange twist of events within such a short time.

It's good that you have an understanding boss and that you are able to think ahead so that most of your bases are covered. I often wonder how my life would be now if we had managed to set everything right before Len passed away. I have had to learn so much the hard way and mostly by myself. I know that once I finally get out from under everything that I will take the time to just heal before I start to figure out what I want to do with the rest of my life. I think I've earned it. Still though, I have gained an inner strength that I didn't know I was capable of so I guess that that is the one positive in all of this.

I hope that you are having a peaceful evening curled up somewhere with a good book.

Hugs,
Tracie
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Reply by marstin
22 Mar 2014, 4:59 PM

Hi Melinda,

I've been thinking about you all week and just wanted to check in and see how you are doing. Please write when you feel up to it.

Hugs,
Tracie
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