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Reply by Melinda
22 Mar 2014, 8:44 PM

Hey Tracie! Was thinking about you the other day! If you ever write that book let me know!!
The story of the long lost fella was simply incrediable...life is so strange sometimes...
Things are quiet here. Stan is not too bad..eating slightly better. And sleeping soundly at night, which is unusual. He took his second dose of chemo pills on Friday...and I swear they are not doing a thing. He is starting to swell alot on his face...before the chemo treatment would take down the swelling, but its not this time. Also his neck is starting to bleed now and again. We where told they would lightly radiate when this started..but that will not work forever and then no more options...same with the chemo..not working anymore. We see the Doctors on April 3rd.  Probably a question of pain management now..though Stan swears he has no pain and does not act like it. The Buddy is still around...and our neigbour was asking him if he is planning on moving in...in a very teasing voice...it was funny as hell. I piped up and said he was trying to move in but it was not working...I am refusing to cook for this fella. He thought he had it made..supper and a bed every night..that lasted two days until I realized what was going on! Stan was mad at me for refusing to cater to the Buddy...but I think with the neigbours comments, its kind of sinking in with Stan...lol!
Oh well... my take on life: All bad things eventually end!! Having a very relaxing weekend..hope yours is good too!  Melinda  X0
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Reply by marstin
23 Mar 2014, 4:08 PM

Hi Melinda,

I think if I ever get out of this house that I will take some quiet time and start to write that book. I'm sure it will be a challenge to have to bring up all of the memories but then again it might help me to heal.

Having Len's old friend come back into our lives is amazing. Last I heard, he was sticking close to my stepdaughter and they were getting to know each other again.

I can't imagine how difficult it must be to witness the changes in Stan's appearance. I know that with Len it was the drastic loss of weight and the swollen ankles that was the toughest for us. If Stan truly isn't feeling any pain it's a great thing. I can't understand that friend of his trying to take advantage of you. I applaud you for speaking loud and clear about not catering to him. Although I can't understand the friend I do remember how many people tried to take advantage of me in my weakened state when Len was dying and soon after he passed away. I even had one of the workers for the contractor friend of Len's, send a guy over here to steal things out of my yard. My neighbor caught him and brought him to my front door. I should have called the police but didn't because the guy seemed so scared. I let him go and within the week the things that he was trying to steal disappeared from my yard. Grrr! I called the contractor and thanked him for bringing such a sketchy person into my home. I think it was at that point that I realized how vulnerable my daughters and I were without Len around. All I could think was 'karma's going to get you for this'. It was horrible.

My youngest daughter has been after me lately to start putting together a recipe book for her with all of the things that I make. I happened to be clearing out a cupboard full of stationary yesterday when I came across two little boxes with my girl's names on them. When I opened them up I nearly cried. Inside were a few recipe cards with Len's famous pancake recipe on one and his mom's bread recipe on the other. I can only guess that when he was sick, he decided to leave the girl's this gift. They were in tears when they saw them as none of us had any idea that he had done that.

I wonder if the fact that Stan drinks is maybe what is helping to manage any pain that may come at him. I know that many people smoke pot to relieve the pain symptoms so maybe the beer is doing the same thing for him plus is adding calories at the same time. I know that Len was going to try the pot route but his specialist messed up the forms and by the time he realized it, he was too weak and too far along to try to get the papers back to have them fixed. The specialist had such a heavy workload that I think he lost many patients because he didn't have the time to do what was necessary. Soon after Len passed away I can remember sitting with my mom in hospital and hearing a doctor visiting a man next to my mom saying that he was the original doctors assistant. I was angry. Getting an assistant came too late for Len and I know that there was treatment that the cancer agency tried to set up with his doctor that he declined. I think he was just too busy to try the option. I have little faith in the medical profession these days.

Well, the sun is shining so I guess I should go get something done. I hope that you are kicking back with a book and having a relaxing day.

Hugs,
Tracie
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Reply by marstin
29 Mar 2014, 3:43 PM

Hi Melinda,

I just thought I would check in and see how your week went. Mine was busy but productive so I guess that's a good thing.

Hope to hear from you when you have time to write.

Hugs,
Tracie
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Reply by Melinda
29 Mar 2014, 9:35 PM

Hey Tracie! I think its awful the way people will try to take advantage of other people in a weakened state. I remember when my first husband died. Thankfully I had my parents living a couple of miles away. Years later my Mom told me that my Dad went quietly to a few "sketchy" neigbours of mine at the time and had a "chat" with them. My Dad was protecting me and I didn't even know it! But I am much older now and wiser (lol!) and pretty sure I will do okay.
I'm not sure I will like living alone but I will adjust somehow I am sure.
I have been thinking alot lately about the statement you made of how you would spend the last days with Len differently. It made me look at myself and at how I was treating Stan. I was always so angry (with Buddy being here all the time) and I was taking it out on Stan. Thanks to you, I always go down and say goodnight to him and tell him I love him..because he may not be there in the morning. I am getting really scared. He is changing so much.
Very sweet story about Len and the recipe boxes for the girls...I would have been crying my eyes out...wonder when he did it? I remember watching a show about dying and the woman in the story was taping messages to leave to her children. Extremely sad. I think it is wonderful that Stan still does not realize he is dying...and I am terrified when he does acknowledge it..how do I handle his fear...how do I help him? Melinda X0
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Reply by marstin
30 Mar 2014, 3:24 AM

Hi Melinda,

Yay for your Dad to step up and quietly draw a line in the sand when it came to your neighbors after losing your first husband. I so wish I'd had someone who had my back when Len passed away. Although I felt that I was able to take on anything, I was totally surprised that people would take advantage of me knowing I'd suffered a double loss. The only word that comes to mind is 'pathetic'. Even the neighbor that caught the guy stealing, who we had known for over 20 years, suddenly stopped coming over after I realized that someone had cleared a space to be able to climb into my garage and steal things and I had a friend of Len's board it up. He hasn't come near since and I can see him watching from his house. I've heard from old neighbors that he has been caught stealing from the yards of some of his closest friends. Very sad.

Sometime's it's very hard to step outside of what is going on and see things through someone else's eyes. Emotions are high and anger plays a huge role. I'm guessing that Stan is reacting to you differently now that you have pushed the anger aside and are showing him that you love him. He's probably been putting on a front for you but I'm sure he's like a frightened little boy and needs some reassurance that you will be there until the end. I know with Len that it took 23 years and the fact that I stood by him as he got sicker and sicker for him to believe that I actually loved him. You saying that Stan is changing so much reminds me of how one day I looked at Len and saw that something in his face had changed overnight. No one else could see what I saw but I just knew that time was running out.

I have a feeling that Stan knows that he is dying but is determined to not give into any thoughts of it. Hopefully by the time that Stan is getting near the end, he will have enough pain killers in him to ease the way. Possibly he will be given medication that will keep him calm. I can still remember Len being so drugged up that he'd get himself to the bathroom and it would take me half an hour to convince him to come out because he kept falling asleep in there and he'd just chuckle everytime I'd call him and say 'Yea hon, I'm coming out'. It was frustrating but in a strange way it was endearing. Eventually he was unable to get out of bed and for the most part he seemed quite calm and mostly slept. I know that it plays out differently with each person and some may just suddenly pass away without warning. I guess in a way for the survivors it's probably good that we don't have a crystal ball to see how it will play out.

Living alone for me has been quite the learning experience. Although I have my daughters they are rarely home so I spend a lot of time by myself.  It's taken me this past year and a half to be able to accept the quiet. Not having someone to discuss things with or lean on has been the biggest challenge. I've gained strength from it but I still feel very lonely. I miss having a male perspective on things. Maybe someday I will be able to open my heart to someone else but not now, not yet. At least for today I was able to finally take Len's shoes out from under the desk and put them away. That in itself was a huge move ahead.

As for the recipe boxes, it definitely brought back so many emotions. I also found a journal he kept when I was pregnant with our first born and he had gone to the canary islands on a boat race that had been preplanned. I smiled while the tears poured down my face as I read it. I don't think I ever truly appreciated how much that man loved me.

I hope that you are okay with me checking in with you every week. If not, please let me know because I don't want to bother you.

Hugs,
Tracie
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30 Mar 2014, 12:45 PM

I have been reading this post about the Buddy and am very concerned. Your husband is not well enough to see that your home needs to be a safe positive place for you. He has lost his boundaries. Is it possible for you to create a support group for yourself and to meet with the Buddy-bully and tell him that he can visit at a specific time for two hours once a week and to have a male friend of yours supervise the visit while you go out? Is there a male volunteer who would do this? From the visitation group at church or from AA or from a community group like kinsman , rotary etc? You must learn how to set boundaries. Could you and a social worker meet weekly with your husband to get him working with you on creating appropriate boundaries for the Boundaryless Buddy?
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Reply by Melinda
30 Mar 2014, 2:48 PM

Tracie!! you're not a bother lol! Find myself thinking about our chats at odd moments...its very comforting to talk to someone who knows how I feel...and thank you for taking the time to read and respond to me. It means alot!
I had forgotten about my Dad doing that. I was lucky he was around.  I have a son who only lives a couple of miles away and he is very supportive...I know if I have trouble with anyone he will help. It's awful that as a woman you have to worry about other people. I live in a very small rural community and only have two neigbours who are wonderful people. Nobody locks their doors around here and we all leave our keys in our cars...but I will be locking up at night when Stan is not here. Trust will probably go out the window lol!
I imagine when Stan is gone that I will find the evenings long...right now I work full time so the days will be filled. Weekends will be okay too...I am very comfortable with myself and never bored. But like you the "quiet" will take some getting used too. I quess time will tell, eh!
Just thinking about the past four years when the drinking was so bad...I spent so much time by myself...so I have had lots of "practice" !!! I would always round up a few friends and we would go to auctions or garden shows, etc.. I belong to an African Violet Society and have made wonderful friends this way. Though this year I have not made any meetings...but that will eventually change....life will change and go on. Poor Stan, I will miss him terribly and I hope he goes in peace. My biggest fear is his fear and pain...I think this would kill me and I am so grateful we are not there yet.
Well the sun is shining..beautiful day even though we still have 3 feet of snow here (not kidding!)  Will touch base on Thursday after our meeting with the Doctors. Take care.
Melinda
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Reply by Melinda
30 Mar 2014, 4:01 PM

Dear

Aphasia Sufferer's daughter

Just noticed your reply and thank you for your concern. Buddy is an alcoholic but so is my husband. They hang out together and drink together. Buddy is actually finishing our basement, putting up drywall, etc...mind you, it has taken him since December to do three rooms. So needless to say it is getting extremely tiresome!! My husband hired him and puts up with him because it is company. I am gone all day. I certainly agree about the "boundaries" issue. Neither my husband or this Buddy have them. Buddy is never here when I am alone. I have wonderful neighours and a grown son close by....and 911 to call. When the work is done Buddy will not be here....he knows I strongly dislike him and quit trying to stay here overnight and quit expecting suppers cooked for him. I flatly refused to do it. My husband got upset with me that I would not cook...but I stuck to my guns and Buddy goes home!! (Home is a dirty little hole in a motel for his fella) So I certainly have my boundaries with this fella even if my husband does not. I cannot stand Buddy...he is your typical drunken user. I confronted him yesterday about the money spent on booze this month. He whined to my husband after I left. But my husband gives him his bank card and Buddy heads to the Beer Store. Buddy did not realize I do internet banking and check the account daily...but my husband should not be giving this jerk the bank card (and believe me, we had words about this). Once again, its all about boundaries!!! I have them, my husband does not!! Melinda
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30 Mar 2014, 5:30 PM

You could tell the bank that your husband is doing that and that it is against the rules and you want them to confiscate your husbands card without telling him that you ratted. They might do that. He is violating the terms of his card agreement with the Bank.
My alcoholic uncle started doing that - he was bankrupt and doing harder drugs ina very short time.

You might consider seeing a lawyer about steps to bankruptcy proof yourself against your husband.
You could certainly move all of your funds out of any joint accounts with your husband - so Buddy et al would not be able to access your and the household accounts.

I am a lawyer and this is pretty standard for situations like yours. Buddy has your husband's PIN.

Very dangerous for you YOu might enforce your borders without having to change your husband's behaviour
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Reply by Melinda
30 Mar 2014, 6:36 PM

My husbands card is only linked to one account which I keep a close eye on. The other accounts are mine and Buddy cannot get near them. Also neither my husband or Buddy knows the slightest thing about computers or have one. Buddy was rattled that I was tracing his actions. Also as soon as this guy is done the work, the pin will be changed. My husband does not drive and gives this guy the card so he can pick up supplies (and beer!). He returns with the receipts and the card. I am upset that this person knows the bank balance and expressed my deepest concerns about this to my husband...we fight about it but he trusts Buddy....plus its my husbands account...so the bank would not even talk to me. I have my own accounts...my husband does not have long to live...maybe six months...and Buddy will not be getting one more penny out of me...plus the work is almost done in our basement so there will be no reason for Buddy to be here. But thanks to your comments I will be very vigilant from now on.   Thanks!  Melinda
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