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Reply by NatR

29 Jul 2012, 11:38 PM

Ahh thanks Suzanne,

Appreciate your reply and I know you will add a lot to the forum

Good evening to you and yours,
NatR :)

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Reply by moderator | modératrice

14 Aug 2012, 2:52 PM

Bonjour Suzanne,

Vous pouvez vous présenter dans ce fil français Venez vous présenter. Mille merci pour animer la communauté francophone.
Au plaisir,
Colleen

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Reply by passirose

14 Aug 2012, 3:25 PM

Merci Colleen,
C'est fait!

Au plaisir,
Suzanne

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Reply by Roy70

14 Oct 2012, 11:48 AM

I everyone,

I have joined for several reasons. Firstly I have been a caregiver to my brain injured daughter for over 20 years following a MVA. Also I have been volunteering in hospice palliative care for the past 10 years. Still finding my way around this site and am really enjoying reading all the amazing stories.

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Reply by moderator | modératrice

14 Oct 2012, 5:21 PM

Hi Roy70,

Welcome to Virtual Hospice. How lucky we are that you found us. Thank you for joining the community. I look forward to contributions as you obviously have several perspectives to add to the conversations.

I hope you'll take a minute to add the information that you shared with us here to your profile page. It's a simple form to let the community know a little about you. It's also nice to add a picture (either of yourself or something else) as your avatar.

We look forward to getting to know you.
Colleen

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Reply by passirose

14 Oct 2012, 5:49 PM

Hi Roy70,

Welcome to this wonderfull community!

Suzanne

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Reply by NatR

14 Oct 2012, 9:07 PM

Hi Roy70, welcome

Like you I am a caregiver to a family member, a grandchild awaiting her placement in long term setting. I think we have that one thing in common;) I also worked in LTC and have an understanding of caregiving for the elderly. Glad you have similar talents to bring to the community and forums.

Please feel free to join in and add your comments.
Look forward to your posts.
Sincerely,
NatR

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Reply by Roy70

15 Oct 2012, 11:08 AM

Thanks NatR.. updated my profile, jusy doing that and sharing my story makes me feel a little better. Looking forward to this forum all pretty new to me so far.

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Reply by NatR

15 Oct 2012, 12:49 PM

Roy, its really hard...to care for a family member who needs an advocate. I understand your position. My family member is almost adult age but has major delays both physical and mental. She is like a 1 yr old. Presently she is in a setting away from home several days a week. I may not be in charge of her those days, but I stay in touch with her wonderful workers, I involve myself in outings when I can with her and her and her worker, and I dont look forward to the day when she will be placed in full time long term care.

It then will no longer be our choice and preference of workers..it will be round the clock care by many workers.

I feel that being her voice is why I am here...and if I can educate enough people to understand that she is voiceless..but not mindless. She is funny, she is smart, she loves attention and affection, she has favorite movies and toys...and she deserves people around her who can find what makes her tick, what makes her day better.

I admire you for caring for your daughter for so long. At some point you will of course have to look at other options. Do you have any alternatives lined up? A place where you can visit her often but give up the round the clock care?

As people often tell me..the caregiver forgets to look after him or herself. You and I understand that feeling...because our loved one comes first..no matter the cost...but at some point we all have to let go and trust others to fill our shoes.

I wish you well today...I hope we can continue to talk about this subject in perhaps a separate thread. You and I need support and attention too:) so remember that:)
Sending you a hug today for your dedication.
Sincerely
NatR

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Reply by moderator | modératrice

30 Oct 2012, 8:15 PM

Hi NatR and Roy70,

I encourage you to start a new thread to talk about caregiving. Or perhaps you can add the conversations that have already been started like:

How do we keep our Identity while caring for others?

Caregivers: Can we talk honestly?

I look forward to your continued conversations.
Colleen

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