Oh Pooka,
I have back on here daily looking to see if you replied... Im so glad that you did. Im lonely, afraid, scared and really need someone that is going through the same thing.
I hope that you will find at least 5 minutes in your day every day where we can share our fears and thoughts. Please try Pooka
I know exactly what you are going through.... the incontinence is something that has just started in the past week, the inability to stand walk, feed himself, the lack of strength, confusion... My heart aches for his loss of dignity, for the fear he must be harbouring alone.
He too has gone downhill, then bounces back.. he is a fighter as well. He is 47 yrs old and far too young to be suffering.
Palliative care is coming in the morning to convince him to return to hospital. His wishes are to die in hospital, and they feel the time is drawing close.
I am trying to prepare myself and my daughters for his end of life, but can one ever truly be prepared? When you love someone so much.
please stay close Pooka-- lets lean on each other-- Im here for you, and Im sure you will be for me too.
talk soon