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Réponse de marstin
12 janv. 2014, 21 h 02

Hi Carolync,

Welcome to our community of love and understanding. It's a place where no one has any expectations of you and where you can actually say what is going on in your mind. It's a safe place.

I have found that grief affects everyone differently and takes a very long time to go through. The fact that people get uncomfortable when you speak his name is not uncommon. Those who have not gone through something like this seem to want to place a timeline on how long you should grieve. For each of us it varies and when you have watched your loved one disappear before your eyes, I think it takes that much longer to deal with. I've found that there are people that I've had to distance myself from in the past year and a half in order to keep my own sanity. I've also found that there are people I would never have expected to bring support, who have propped me up along the way. It's been a tough lesson to learn but the real gems have shone through.

How old are your daughter's? Mine were 20 and 22 when we suffered our losses. I understand the loneliness when you see other couples together. On many occasions I have had to point out to people that they truly don't understand what it is like to lose the love of your life, the person you turned to when you were sad, the person who was the backbone of your family. To suddenly be alone in making all of the decisions and to have to try to stay strong for your kids when all you want to do is break down and lean on someone. The responsibility of having to rebuild your life is huge. It takes a very long time.

Know that we are here for you and don't be afraid to share what is going on in your head. I've found that just being able to speak honestly helps relieve some of the stress.

Hugs,
Tracie
 
Réponse de KathCull_admin
12 janv. 2014, 21 h 24

Hi Carolyn
Welcome to the virtual hospice community. I am glad you found us.

Life can change so quickly - and you are right - no matter what you do ahead of time you can never be prepared for the emptiness and sadness in life when we lose people we love.  He sounds like a wonderful man.  His illness must have been very hard on you and the girls too. 

Are there people you can talk to - speak his name to?  

You will find people in this community, like the people on this thread - Marstin, NatR, Paige96 will understand your grief and walk beside you. I look forward to hearing from you again.

Take care Carolyn,

Katherine


 
Réponse de NatR
12 janv. 2014, 21 h 32

Hello Carolyn. 

I appreciate your note to the forum.  I am sorry for your loss - I cannot imagine the shock of  losing your husband too young.  You are not alone.  There are others on the forum who can identify with your feelings.

it does seem to take forever.  The forum is a place where you can vent and share your feelings.  Others respond and by doing so we learn we are not alone - and we learn how to take baby steps forward...holding each other's hand we gain support.

i for one have found talking with other survivors helps.  I have lost my parents and a sibling taken in the prime of life.  I remember how I felt when that happened.  I cannot compare it to your loss, but we all understand pain...

it's hard to speak about your husband to others.  They feel uncomfortable perhaps because they don't know how to say they care..or they feel guilty because they aren't standing in your shoes. 

I hope you will feel the strength to tell us your story, and we will listen - it really helps I think  to control that spiral of pain you mentioned.  Just share and wait for replies.  We want to help.

sincerely,
NatR 
 
 
Réponse de Xenia
12 janv. 2014, 22 h 34

Dear Cathie and Carolyn:

I've just read your emails and my heart goes out to both of you. 

I am trying to get my head around loss and reading both your emails I find that I am having some of these moments you describe even though my husband is home on palliative care.  Even though he has not passed, I too find the house empty at times as he sleeps so much and I am alone except when the family come over.

My mother spoke of being lonely and being alone.  I now know what she meant when she lost my father.  Being lonely is being so different than being alone.  I try not to think too much about John's illness as I find it frustrating at times.

To both of you and all others on this Discussion group I send you wishes that you will find comfort in sharing, comfort in remembering the good times with your husbands and comfort in knowing that people you have never met are sharing your sorrows and wishing that you will find there are many who care for you and help you overcome this very difficult time.

Xenia 
 
Réponse de Carolync
12 janv. 2014, 22 h 40

Thanks so much for your kind and understanding words. 
Our daughters are 15 year old twins- who miss their Dad so much.
One of the twins is experiencing anxiety attacks and outbursts of anger. Neither want to talk about him.  
I feel emotionally drained. So alone. I don't understand why. he was in the prime of his life. Our world! And such a great guy.
I often dream of him- with no real conversation but in my dreams he is so mad at me. I seem to wake up wondering why he would ever be mad at me?
i can't help but wonder if I will feel like this for the rest of my life? Wondering how we can ever heal.
There does not seem to be any councilling in my area ( unless I pay for it) and I cannot afford to pay for councilling for the three of us.  
carolyn.  
 
Réponse de Carolync
13 janv. 2014, 3 h 11

Hi Xenia 
my heart goes out to you. You are at such a difficult time of this whole process. I remember like yesterday, the constant flow of Doctors, nurses and the wonderful team that were through our home daily.
I'm so sorry for the pain and sadness. The loneliness is like no ther.
Please know I'm thinking of you
Carolyn.  
 
Réponse de Carolync
14 janv. 2014, 0 h 23

Hoping someone is online and in the mood to talk. Has a pretty down day today. Feeling so alone in this big world. 
:( 
 
Réponse de NatR
14 janv. 2014, 0 h 38

Hi Carolync,

sorry you are feeling alone...this would be a good time to have live chat for the forum:) so we could answer each other quicker.

what can I do to help?  Did you get outside at all today?  I know it's a difficult time of year to breathe fresh air, clear the head....keep talking, there are caring listeners:)
natR  
 
Réponse de marstin
14 janv. 2014, 0 h 57

Hi Carolync,

There's always someone close by to listen to you. Now that you've found us you can unload you sadness here and know that there are many who care. We may not be professionals but we are survivors.

Hugs,
Tracie
 
Réponse de KathCull_admin
04 févr. 2014, 16 h 00

Hi
Thinking about all of you on this thread, Cathie, NatR, Traci, Jenn, Xenia and Carolyn and wondering how your 'today' is.

I just finished reading through an article on the Virtual Hospice site by Fred Nelson called 
Grief Work 

One of the comments stuck out for me: "Grief demands attention, refusing to go away automatically with the passage of time. Your experience of grief will be unique. No one can tell you what the process will be or how long it will take. Grief takes as long as it takes."

That last sentence is reassuring for me. What do you think?
Katherine








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