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Réponse de Cath1
29 mai 2012, 6 h 05

Dear Tian:

Thank you for your support. I look forward to a new day to hear your suggestions about creating a soothing atmosphere for a person when they are dying. Music was an essential comfort for my Mom and for me when she was in hospital during her last week.

Get some sleep fellow night owl!:-) Nighty night.

-Hugs- xo
Cath1 
 
29 mai 2012, 12 h 17

Dear Carrie,

I'm so grateful that Cath and Tian are online late at night when your fears loom especially large. I'd like to add just a couple of things.

Is there a social worker or spiritual worker on your palliative team who could help? They may be able to help your husband feel less panicked. They could also help you and the doctor talk about staying at the hospital vs. going home. Ask them about what you can expect. 

You may find a few useful tips in these articles as you prepare to talk with the doctor this morning Tips for Talking with Your Health Care Providers or Communicating with Health Care Providers. Thanks Tian for recommending the article When Death is Near too. 

Carrie, don't forget that you can ask our palliative care team any questions you may have on Ask a Professional

Good luck with talking with the doctor today and the decisions you have to make. I'm sending you strength and courage along with a shoulder to lean on.
Colleen 
 
Réponse de Caron
29 mai 2012, 15 h 45

Carrie,


So very sorry to hear how things are going.  You are presently on a journey that I soon will be on.  Cath and Tian have made some very excellent statements on how to go through the passing of your husband.  I hope that the doctors will listen to your concerns and adapt their approach.  You have not only yourself to consider, but that of your children.  To make your dear husband's passing as comfortable as possible is a consideration as well, but you know his wishes prior to getting so ill.


My husband is undecided as to where he wishes to die, but I am alright with him passing at home.  I have seen the death of my father, and he was so peaceful and it was not scarey at all.  I hope to have someone with me when he passes, but I know that he could pass at anytime now, so I may have to be here on my own.  My children are in other cities and can not come here at a moments notice.  The rest of my family avoids the whole situation with no phone calls or visits ... so I cannot look to them for help. But I know that God will be with me and that is enough.


My prayers are with you Carrie, and your husband and children.  Know that you are thought of and prayed for everyday .


Caron  

 
Réponse de Tian
29 mai 2012, 16 h 25

Dear Caron

You seem to be holding up well but I'm concerned that you may not be getting the support that you should. Though geography separates you and your kids I hope that you are otherwise remaining in touch on a frequent basis. Are family members still pressuring you to get your husband well? Have they accepted that he will not get better but now believe in out of sight, out of mind? Perhaps you can reach out to them so they can reach out to you and you can support each other. What support are you getting any from the medical crew?

Know that you are being thought of as well Caron.

Tian

 
 
Réponse de Cath1
29 mai 2012, 21 h 05

Dear Caron:

It's so lovely to see your response Caron and your support for Carrie. Despite all our best efforts to comfort and console you both, it is beyond our ability to change the course of events for your husbands.

Your faith is amazing, Caron! Your resignation about what is possible in terms of your family's support and what the future holds for your husband and you is commendable. Your courage and ability to gracefully accept the challenges in your life humbles me and your husband is already blessed by an angel in you. My Mom had that same kind of deep belief and trust in God and in the final hours I could see for myself that she felt His presence within her. You will not be let down, your faith will continue to lift you up, Caron.

Blessings to you and your husband and always know that despite the virtual distance between us, you are ever close in heart. I and others are praying for your husband, you and your family.

With affection and hugs - xo
Cath1 
 
Réponse de nanalovesu
30 mai 2012, 5 h 13

Hi Caron & Carriek


My husband passed away one year ago, at home, from cancer.  I can only imagine all the confusing and scary things you are dealing with everyday, and yet can relate.  I think it's different for everyone yet there are some things that sound oh so familiar. It was especially difficult for me to hear one doctor after another say, there was nothing they could do except make him comfortable. To try to figure out how much time he had left was far to difficult.  I too was told not to cry, to be strong for the children and in lonely silence I shed many tears. Sometimes I wish I had done more stuff with him, or for him during his last days here.  But then I remember all we DID do.  We spent the weekend at a cabin at our favorite lake, as I lovingly tended to his pain medication. I had become his nurse, caregiver as well as his wife.  And I did so with love. On evening, he had lit the candle in the room and had the fireplace going. We sat and just held each other for a long time. And I took pictures of us there, even tho he looked thin and not like he used to. We had OUR time together and later I called all our children to come, surround his bed, to tell him, they loved him, and they would be ok.  That moment when they all surrounded him and said those words one by one, has stayed with them, even bonded them more than ever. And it seemed as if he needed to be reassured, we would be alright. Tears roll down my cheeks as I write this, hoping you will know you are not alone.  My thoughts are with you. Feel free to ask me any questions you might have.

 
Réponse de Carriek
01 juin 2012, 19 h 32
 
Réponse de Carriek
01 juin 2012, 19 h 33

Oh no.....I again lost my entire reply !!!

:(

 
Réponse de Cath1
01 juin 2012, 19 h 35

Hi Carrie:

I will alert Colleen. Hang in there.

Cath1 
 
Réponse de Cath1
01 juin 2012, 19 h 56

Hi Carriek:

Colleen is aware of your posting issue. She will be looking into it in the next hour.

In the meantime, may I suggest that if you write a new post be sure to select all the text and copy and paste it into another program like MS Word or an email draft before you hit "submit" so you won't lose your message.

Perhaps you may want to write your message to begin with in another program and save it and then copy and paste it in your message here. I understand how upsetting it is to lose a post and to have to re-write it from scratch. :(

Anyone else reading this, please follow the same advice as it may spare you the same frustration that Carrie just experienced.

-hugs-
Cath1 


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