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Réponse de Glasslady001
10 déc. 2012, 19 h 34

Hello everyone,
i thought I would share some thoughts.... My husband and I will get a prognosis and  (if any) possible treatment options on the 18th. It will be a long 9 days. He is still in denial, and it makes companioning very difficult, but I will hang in there.
i do not know if any of you know of Dr Alan Wolfelt, but he has written a number of books on companioning. I have been to a number of his conferences through my own work as a greif counsellor and I believe that I have learned a lot from him.
if you would like more info, just let me know.
please know that my thoughts and prayers are with you all..... 
 
Réponse de eKIM
10 déc. 2012, 21 h 14

The ending of your posting touched me, Glasslady.  It is me, (eKim), and the others at Virtual Hospice who will be keeping you and your husband in our thoughts and prayers.  I am assuming that you are the caregiver and it is your husband who is getting the prognosis. 


Sometimes, hope can be mistaken for denial.  Is it such a bad thing to hope for the best possible outcome, the longest life possible, even when facing a grim prognosis?  Is it a good thing, if the end result is a calm, bright demeanor? Is it not the goal of palliative care (whether we are talking about days, weeks, months or years) to maximize our comfort and the quality of our lives?


I have observed that denial seems to be a fairly common response by people.  It can raise some difficult questions and problems, of course.  However, in one way, denial is easier to deal with than many of the emotional and/or negative reactions that accompany a prognosis


In some cases it keeps the one who is ill in a calmer state of mind.  This may not be intellectually honest, but it might serve an emotional purpose, allowing them to get the most out of their time, rather than spending many days in a negative and emotionally draining state.  This, of course is merely my unqualified observation.  I would seek some professional opinions, if I were you.


Yes, Doctor Wolfelt's books are wonderful.  I (as a hospice resident support volunteer) attended one of his lectures.  It was very, very good.


Remember, if either you and/or your husband would like some support during these difficult times, simply post something and people will respond. 


The input from many sources sometimes is more helpful that input from a single source.  It allows one to pick and choose those comments which are most appropriate.  Also, the input from a compassionate stranger who is not emotionally invested - because they are not close to you - can be helpful in clarifying your thoughts when your emotions are running high. 


I wish the two of you all the best.    – eKim

 
Réponse de Digger
11 déc. 2012, 16 h 39

Glasslady,

The experience of denial is so common for all of us in any dire situation. 'This can't be happening to me', is often what we feel but are afraid to admit. Is he in denial about the looming prognosis or about the fact that he might die? They will evoke a different response from a companion.

Cancer is not a death sentence - no matter what the prognosis is. However, cancer is one of those diseases that compels one to get clear about they want to happen next. Denial is OK up to a point. The question to be asked is a difficult one. Do I want to live? At a deep level he knows the answer.

If the body is damaged beyond repair, then the question becomes, where and when do I want to die? You and your husband are on an amazing journey, no matter what the destination is.

You are in my thoughts.

Dale
 
 
Réponse de Glasslady001
26 mars 2014, 16 h 04

I know it has been awhile since my last post, but wanted to share the updates.
My husband was diagnosed with stage 4 neuroendocrine cancer just after my last post (cannot believe that was in 2012)
Since then he has been receiving chemotherapy and we travel to Edmonton every 3 months for radiation treatments. In November (2013) he underwent surgery where they removed a large portion os his liver, a large portion of his stomach and all the lymph nodes in the surroiunding area.
They were unable to remove all the cancer, so the treatments will continue.
He is still in denial    
 
Réponse de eKIM
26 mars 2014, 17 h 36

Hello GlassLady

Thank you for updating us.  I think of you two and I send you prayers.  Tell us, please, if you will, how you are coping emotionally and also how your husband is coping emotionally.  I imagine that leaning on each other is comforting.  What are your other sources of strength and support?  With thoughts of loving-kindness - eKim 


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