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Réponse de KathCull_admin
02 juil. 2016, 1 h 55

Hi Mollee
I have been thinking about you over the last week. So glad you are finding the hospice is just what you all need.

Take care
Katherine 
 
Réponse de Mollee
07 juil. 2016, 12 h 30

Dear Katherine

I am heartbroken to tell you my husband passed away June 26th. It happened so fast, I am still in shock. We thought we still had at least another 2 months....Glioblastoma is a horrendous cancer, to watch a strong independent man have to rely on me and others to do everything for him broke my heart. He was an amazing man never complaining once from diagnoses to the end. 

The hospice was truly the right choice for us, calming and compassionate. His entire family was with him. 

Dave brought incredible love and peace into my life and I am so honoured to have had him as my husband. 

Mollee 
 
Réponse de Carlyn
08 juil. 2016, 1 h 23

Dear Mollee,

I'm very sorry your husband passed and so fast. There isn't any sure way to predict what a Glioblastoma will do and when. I'm so very sorry for your loss. 

Do you have family around you now or are you taking some time to yourself? 

Thinking of you

Carlyn 
 
Réponse de JennJilks
08 juil. 2016, 11 h 39

I'm so sorry for your loss. I'm glad it worked for you, the hospice. 
 
Réponse de KathCull_admin
10 juil. 2016, 1 h 58

Dear Mollee
My heartfelt sympathy to you.  Love, peace - what wonderful things Dave brought to you. And you brought to him as well. 

Take care Mollee - I wish for you rest.
Katherine 
 
Réponse de Kimmy61
21 juil. 2016, 1 h 18

Hi. This is my first time on this forum, so I'm not sure if I am doing this right, but I am looking for conversations regarding caring for somebody with GBM grade 4. My 78 year old mother was admitted to hospital April24, 2016 and diagnosed shortly after with grade 4 Glioblastoma. After surgery to remove portion of tumor, she did chemo and radiation, but decided to stop after her 7th treatment. Her tumor had already started growing back before treatment started. Also, by the time treatment started she had lost use of her whole left side. So she can't walk at all. Hospice nurse comes in twice a week. They say my mother only has a couple of months to live. But her condition hasn't changed at all. She has no pain, no headache and she isn't sick. She does sleep a lot, but she always did that. She has COPD and still smokes and she only weighs 85lbs. She has always been very small. No weight loss from the cancer. She still has an appetite, but I have noticed that things are starting to taste different to her and she can't seem to get enough salt into her. I have moved in with her to take care of her. I just find it hard to believe that she is dying? i have no idea what to expect. All I can ever find for an answer is that everyone is different. She just doesn't seem sick enough to be dying. Her condition has been the same since May, no better, no worse. Has anyone had a similar experience ? 
 
Réponse de Mollee
21 juil. 2016, 16 h 38

Dear Kimmy61

Welcome Kimmy. First I would like to say I am so sorry your mom has been diagnosed with this horrendous disease, and that having you there with her will be a great comfort for her as well for yourself. My husband and I went through the same thing nobody told us what to expect, that everyone is different, nature of the disease....I was so upset because no one told me it would happen like it did, he did the surgery, radiation and chemo. We went to Mexico, naturopath anything to cure or at least prolong his life. He was the same way, he smoked up until 10 days before he passed. It was his left side too, his speech, sight, and walking were deteriorating. You don't mention seizures? The Dr's were constantly asking if he had any seizures and he hadn't until April 27th, we were on our way to chemo and he just started to stare right through me, I asked him if he could see me and he said yes. I mentioned it to his nurse and she called the Dr immediately and he was admitted to hospital. They were doing a CT scan on him and he had a significant seizure then and the Dr figured that I had witnessed mini seizures. They gave him anti seizure medication we spent the night in observation and sent home. No one told me he could experience seizures even on medication. May 27th he had a grand mall seizure at home, I didn't know what was happening at first, grabbed the phone and called an ambulance. Again one night in hospital and sent home. A couple of days later we went and saw our Dr and he said realistically we had 3 months....we made arrangements to enter a hospice.... We got into the hospice June 21, June 25 he experienced 3 seizures and passed the next morning With his entire family surrounding him. Stay strong and really cherish every single moment. I hope I helped, and like they say remember everyone is different but it kind of helps to hear someone's experience....
 
Réponse de Carlyn
24 juil. 2016, 22 h 14

Kimmy61, i'm glad you connected with Mollee, though what a time for both of you.

My heart goes out to you both.

 
Réponse de Kimmy61
25 juil. 2016, 1 h 58

Thank you Mollee and Carlyn. Sorry for your loss Mollee. My mother had what were probably mini seizures , but we just thought it was twitching and her face was drooping on left side and that's why we went to the hospitaL at the end of April. She has been on anti seizure medicine the entire time and I have been told to expect seizures. so I am always looking and watching to see if anything seems to be changing, but the most I can see is that she seems to be a little shakier than usual. I just have that feeling of impending doom. Everyday I wonder if today is the day something is going to happen. Trust me, I'm not in a hurry for her to die, but at the same time I want this to be over, mostly for her. She said she is so disappointed that she is still alive when she wakes up every morning. Her quality of life hasnt been good since the beginning. all she does is lay on her couch, smokes, eats and naps. She has no desire to go out at all. She does have friends and family come to visit on occasion. It's just crazy to think that a couple of months ago she was driving and living alone and babysitting the great grandkids. And it's even crazier to think that she will be gone soon. 
 
Réponse de Mollee
26 juil. 2016, 5 h 23

Dear Kimmy, 

I just want you to know that I care and can understand everything you are feeling. It is a emotional roller coaster. I always had hope and I think that is why I was so shocked at how fast he passed away after he started having seizures. I hope that you have other people around you and your mom for support. Take care of yourself and if I can help I'm here.


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