Dear Bubu
Like natR, I welcome you to our community.
I think you have been very wise to 'anticipate' what is to come and prepare intellectually by seeking professional help. It's so hard to prepare emotionally - because you are preparing for what is often unknown.
Since your husband is no longer able to carry the role of 'Superman' (which must be difficult for him too) have you needed to take on more of those tasks? Keeping the home running, caring for him and others who may be in your family/friend circle, trying to be optimistic, arranging appointments - almost like a 'Superwoman'. One of our members, Oldbat, started a thread that talks about some of those roles on The Long Haul .
Can you tell me more about other family/friends who support you?
Katherine