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Réponse de winter
30 juil. 2012, 0 h 22

Well it is Saturday, July 28, 2012.

I would like to say Hi, to all the friends I have here on the forum.....

Well, so far it is a fine day here in Ontario.....and the sun is shining.....and I am for the first time out on my deck over looking the Ottawa River.....with my laptop.....is is so beautiful this time of yr.....

I went this morning to see mom and made a decision to not go up in the evening.....but to sending the morning with her tell lunch time.....she was a waking and listening to ever word I spoke.....for at least a hour and half....to all our surprise.....she ate a yogurt for me, and drank a full glass of apple juice, and a half hour before that she had two glasses of water for the psw......that was all she wanted, and she said she was full....

Mom I don't think fully understands what I was saying, it was like the look in her eyes was in a far off place.....she barely spoke a word....simple words were all she spoke.....but i remembered my phone, and it was a video camera built into it....so i recorded our conversation, which i shall cherish, cause i don't have anything of her ever speaking on video.....so i recorded the hour and a half i was there.....thank god for a good phone....

i know alot might think that i am crazy to do that....but when i get lonely, when she is gone, i will be able to listen to it...and on this one i said i love you, see you tomorrow, and she said, i love you see  u later.....i think i will rest tell lunch....thank you for coming she said....

i left there with my heart filled with peace is that weird.....i dare not say that to alot of people...cause they think i am nuts.....

Tonite it is just my 100lb lab, and my hubby who is fast asleep on my rocket on the deck....lol....i don't mind then i don't need to chat.....lol

Sometimes i don't feel like chatting.....but just doing a puzzle in my book or attempting to read a book.....but books outside put me to sleep...lol.....

I have been getting a little of sleep lately, but my hubby still wakes me up at 5am knowing i don't fall asleep tell 3am....oh well, right, ....lol...so of course he is now asleep because of it.....lol....he will never learn......

I am for the first time this yr having a drink....lol....one of my favorite, is a ceasar.....

Yes i am trying to relax.....i know i have to...or all this stress is going to manifest into a health issue,  as if it hasnt already.....but time will tell....

When people ask me if i have learnt anything from my mom's illness, and her up coming death due to it.....I really have.....and that is to question every result you get for the tests you have done.....and always get a copy of them, whether you must pay of them or not....it is so important....and if you disagree, ask for a another test, different test...mri, ctscan, exray....ultra sound, whatever.....what i have learnt is all show different things and all can't be trusted.....if you can get 5 before you rethink....your position.....doctors are great, but they need black and white before they trust your instinct.....that something is wrong with you.....

i have been there, my hubby has been, both my parents....so i have learnt a valuable lesson....
from all this.....

Anyways not sure why i came on, but to tell you all that all is so far fine, with mom, and that i am doing a bit better...emotionally, yes i still have 4 or 5 panick attacks, but i am trying to deal with them......sorta...lol....

I hope you all are doing good....and Cath1 and Tian and Nat are all doing great....hope you are all enjoying the summer, and I would like to tell you guyes, that I oh so thank you for all the words you have wrote to me, they have meant so much, .....where my family have abondoned me you all have filled the void....

thank you all so very much....

tam 
 
Réponse de winter
30 juil. 2012, 0 h 24

ok missed my date....lol sunday july 29/2012...lol, fo my letter above....lol.....
 
Réponse de Cath1
30 juil. 2012, 2 h 40

Hi Tammy (winter):

It's so good to hear you sounding a little more relaxed and accepting of whatever is meant to be for your Mom. It's very good to know that you are finding a way to pace yourself with respect to visits with your Mom. By taking some time to replenish your energies when you have time at home you are doing both your Mom and you a favour.

In my situation with my Mom, she had become ill suddenly and died a week later. When someone is ill for a much longer period of time it is very hard on their loved ones and caregivers to maintain a constant vigil. You need rest for certain because you don't know with any certainty when your Mom's time with you will end. You will need to keep up your spirits and your stamina so when you are able to visit with her you can continue to be strong for her and for yourself and your husband and family.

I took a videos and photos of my Mom regularly and I know when your Mom is no longer physically in your presence, the videos you have taken will indeed bring you great comfort! I still have my Mom's voice mail messages to me on tape as well, and I will keep them forever. I don't listen to them very often and in fact I haven't listened to them for months now, but just knowing I can hear her voice if I need to helps me feel better and brings her closer to me. Her voice and her laughter especially, I miss terribly. On one message she is telling me a funny little story about her day and she is so full of herself and her own sense of humour as she gleefully relates her story to me. She began to laugh so hard while speaking that she could barely finish her message to me, but it gladdens my heart to hear her sounding so happy and full of life and joy! Together we often got carried away by giddiness, sharing jokes no one else would understand or find so amusing, but we did and that's all that mattered to us!:-)

Tonight I am thinking of you, Tammy and wishing that you will share more smiles than tears each time you are with your Mom. I also hope that when your Mom does leave this world for the next that you will know that the love you give to your Mom, and she to you, will never pass away. Your memories are yours to forever cherish.

You have no doubt learned many deep life lessons throughout this arduous journey with your Mom, from the way things might have been done differently medically to the decisions, limitations and realities you each had to accept and could not change, but I know that the most profound lessons of love will linger the longest and you will carry them with you all of your days! Peace will come from knowing that your mother-daughter bond of love is powerful, expansive, healing and heartfelt and its enduring essence will live on within you and within your Mom eternally. Dwell on the sacred expressions of love that you have had the time and the privilege of sharing privately together with your Mom and may each precious moment and poignant memory fill your heart with perpetual peace.

With affection -hugs- xo and prayers for your Mom and you and your family.
Cath1




  
 
Réponse de Tian
30 juil. 2012, 21 h 28

Dear Winter

In this very stressful time I'm glad you are able to appreciate the important as well as simple things in life. That wouldn't be a bad thing to continue. You may not have agreed with everything the doctors did but remember they're human and did what they thought was best. Hopefully your mother will be comfortable in whatever time she has left. She's surprised you by hanging on as long as she has. She may also surprise you by passing away at a point when it seemed like she'd have more time. You never know.

Tian 
 
Réponse de winter
30 juil. 2012, 22 h 22

hi all

just a short note, mom is not doing the best, all of a sudden a change in which she is getting harder to wake, and and well her breathing is not good, and she is swelling really bad.....so i don't know....i am really worried.....my aunt said the same thing today, she thinks mom has taken a turn for the worse....just awful.....so hard to believe that the other day she was talking and enjoying a conversation and then this sudden change.....the pain in my stomach has gotten so bad that i feel like i am going to be sick.....all the time.....mind u it could be the heat...and the stress....also having issues with health, related issues from the accident causing me pain...so it is hard to tell what or which is bothering me....jus tthought i would jot a note...quickly.
 
Réponse de NatR
30 juil. 2012, 23 h 33

Hi Winter,

I have been reading your notes...one day your mom is up and doing better, the next she is down and barely hanging in.  Unfortunately it is a roller coaster...I have seen it happen...and you just have to tighten your seat belt and hang in there.  

You can do no more than you are doing.  You are an exceptional daughter.  You have let your mom know she is loved and surrounded by care.  Try to relax a bit and know you have done all you possibly could.

You have made the most of her lucid moments, you have held her hand and whispered to her when she wasn't responding.  It is a rough road you are on - but you will make it, you are making it.

It is really kind of you to post to us, as we sit in our homes and wonder how things are with you.  Glad to be one of the people watching from the side lines and cheering you on when you falter or need a shoulder.
Hang in there Winter,
Thinking of you tonight,
Sincerely,
NatR 
 
Réponse de winter
31 juil. 2012, 19 h 47

Good Afternoon 

Hell of a storm just pasted by and another going on right now.....

 relative of mine has a tree down about 2 ft from his livingroom window....and his road has all kinds of    officers directing traffic.....

It is a good thing he went to Ottawa, to watch the horse racing...lol...

Left mom, she was seemingly doing all right....the talked abit....but a little weird....dont know, just seemed to be in a transe.....

Managed to get a couple of glasses of water in her....that is good, she didn't want to eat....
the woman in the first  palliative bed, passed away last nite...and she seemed good, she was sitting up on her own and ate a nice supper last nite....i was so surprised....

They told me that the man in the rm ahead of my mother is also only days away from passing away, he is a 97 yr old man, but seemly well withit.....

It only takes about 24 hours and that other bed in be filled with some else who is only days to die...again...

While i wait out all that is taking place I am left with many issues...I am trying to deal with a few....and some that will and could change my life and my familys lives.....which is also so mentally painful........

I also just picked out mom's funeral home and signed the papers, for her cremation.....as her wishes....

Which was  very hard...and I am still shakey....I could not believe mom did not have that set up....she had a will, thank goodness....

Well so far so good, I guess, thank you so much for all your comments they mean alot to me....

Tammy(winter) 
 
Réponse de Cath1
01 août 2012, 5 h 50

Hi Tammy (winter):

Thanks for your recent updates about how your Mom and you are each doing. I have only witnessed two people die in my life: the first person was my daughter's mother-in-law and then I witnessed my own Mom's death. In both cases it became very clear that they were dying in their last days, but I have known about others whose health seemed more stable, and like the lady you describe whom was able to sit up and eat dinner last evening, they died without much warning or blatant expectation.

It is so hard to know what is happening to your Mom or when she will pass away, but I think you are doing the right thing by making her final arrangements now, as difficult as it is for you, it is better done now while you are able. It is helpful to have this done beforehand as you will likely feel emotionally distraught in the immediate days after your Mom dies so by taking care of the practical plans you will have spared yourself additional heartache for later. My Mom did not have her funeral arrangements in place when she died so I - and mostly my eldest daughter who stepped in to help me - had to make the arrangements for my Mom's funeral and burial and this painful yet necessary process began on the afternoon of the day she died. It felt overwhelming for me to even think about all of it as I was both physically and emotionally spent. Thank goodness I had my daughter and my other kids there to help me!

I hope you are able to get some rest tonight Tammy as you face all the decisions you refer to in your last post.  Tomorrow is another day and I am sending you wishes for courage to face whatever the day brings to your Mom and to you and yours!

With affection -hugs- xo and continued prayers for you all!
Cath1
 
Réponse de winter
02 août 2012, 14 h 19

Smile

GOOD MORNING

Hi there,

Had a minute before I was heading out, once again....

My hubby decided he needed a break, and I told him it is important for him to relax....all so...

He has been very good....and like he says to me, take time yourself....I told him I would be alright.....

So he is having brother time....he is gone out with his 2 brothers which they haven't done in yrs....so i think it will do him some good......

Moms best times of the day seem to be 6am to 10am and then from 6 pm to 10pm not sure as to why.....but that is the times i have been going.....

She different some how, not sure how to explain it, but she is.....

Now yesterday she was looking pretty good, as if nothing was wrong with her...really other than she was in need of phyiscal care....weird.

And her  mind set changed once again, to i wonder when i can go home....oh know was all our thoughts.....so the nurses tried a couple of tests to see where her mind was, and she no longer understands what is wrong with her once again,. she thinks she is in the hospital to get better...great....now we all have to tread lightly again....cause we all don't want to rock the water with her....this i was told be the staff again....think she might be ready to turn aggressive again....god i am not looking forward to that....that is so utterly exhausting....oh well time will tell...

Ok well, time to see what she is like...since i am now behind in my day oh well....i will talk it as it comes.....

thank you cath1...

tell later.... 
 
Réponse de Tian
02 août 2012, 14 h 28

Thanks for keeping us posted. You and your husband just continue doing what you need to. One day at a time, or less.


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